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Omg...i Might Be On To Something


Rachel--24

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jerseyangel Proficient

Your doctor sounds very knowledgeable, Andrea. So many now that I see really don't know a thing about suppliments or nutrition, for that matter. <_<


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AndreaB Contributor
Your doctor sounds very knowledgeable, Andrea. So many now that I see really don't know a thing about suppliments or nutrition, for that matter. <_<

I think he is. He's a family doctor that's gone into holistic type medicine and also does chelation. He's our family doctor now. I just don't know what I'll do when he retires. He's his own practice.

CarlaB Enthusiast
Kelp, isn't that a powder? :unsure: I think I've seen it in a powder anyway.

I believe you can get it in both powder and pill form.

tabasco32 Apprentice

OH rachel

I got some rocky jr chicken at whole foods yesterday. Need to take it back. I was tooo sweet. It gave me vaginal discharge. Foster Farms is better for me.

tabasco32 Apprentice

I don't know what happened to my last post so I will post again.

This weekened I got real sick from a molded lemon in my cabinet. I now have big time bubble guts and brain fog. I don't know what to do. I eat and I am still hungry. Losing weight rapidly and the dentist won't see me till 15 of may. What should I do or eat to keep weight on does anyone know? Rachel do you think seacure is o.k.? Should I open the doors or keep them closed because of the mold? I can't believe I got myself sick. It's been 4 days and still sick. I guess it's chicken soup all day everyday. They say stock is the best thing for people with gastro diesease because of electrolytes and minerals, brestbone, neck and backbone are best. NO organic chicken for me to sweet. Should I take a probiotic even if I have mercury and candida? I am taking pearl right now 1 billion. Took blood test for dentist to make sure he knows what composites to put back in my mouth. Rachel have you heard of this blood test. I am tired will talk more later.

lisa

CarlaB Enthusiast

Lisa, I answered this question on the thread you started ... did you know you started a thread on this?

I like to air out my house. I do it as soon as the weather's warm enough. It drives Adam crazy sometimes because if it gets a little warmer in the winter, say into the 50's, I'll leave the heat on, but open a couple windows for an hour or so. :rolleyes: Today I have 22 windows open! But the air is off.

I wouldn't mess with the candida until you are addressing the mercury. Your body allows more candida to be there to protect you from the mercury. I don't think it will hurt for you to continue with the probiotics you are currently taking though.

dlp252 Apprentice
I remember that! Do you still have a problem with itching?

Yes, but mostly when I eat things I shouldn't. I also get it when I eat almonds, but not almond butter...weird, huh! I haven't eaten chicken since December, so that's not it alone...I do itch when I eat it, but that's not the only thing. :lol:

Make sure you have real salt or himilayan salt. Himilayan is supposed to be the best, but is very cost prohibitive.

I DO have some, but it was expensive so I've not been using it, lol. :lol: I use it for special ocassions. :P

Do you guys take this in the morning hours? I bought the Yaeyama made by Jarrow Formulas in the powder form.

I was taking liquid, 1 tsp in the morning and 1 tsp in the evening. I may try this again. My D is back so it wasn't ONLY the chlorella. :(

Should I take a probiotic even if I have mercury and candida? I am taking pearl right now 1 billion.

Sorry you got so sick! You can definitely take a probiotic even with mercury and candida and you probably should. Also you can keep your sugar intake pretty low and that will help.


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rinne Apprentice
NoGluGirl- Now I know why they call them Glamour shots. You look so glamorous!!!!!!!

I completely agree. I thought you were twenty in the photo and was shocked to think you were only 13!

Fiddle-Faddle Community Regular

NGG, you look stunningly beautiful in that picture, and the brown hair IS gorgeous--such a warm alive, color!

You might find that your hair color has much more life (i.e., no more mousy brown) now that you are off gluten. That's what happened to me!

dlp252 Apprentice

<--------- New photo...me standing in the garden of the house that dad built, lol. Also another photo on my personal pic page....my sister, me and my mom.

Patti--great wedding photo!

AndreaB Contributor

Great photos Donna and Patti!

Thanks for the heads up again Donna. :P

Rachel--24 Collaborator
We always order the whole chicken but you don't have too. Check out the website and see what you think. You could always give it to your mom if it doesn't work out. They do have a $75 minimum order.

Otherwise you can just skip the chicken until you get detoxed some more.

Thanks Andrea....I think I'm just gonna skip chicken for now. <_<

You can start by warming up 2-3 glasses of water in the morning and drinking them before you go to work. You'll probably, actually want to start with 1-2 since you aren't used to it. Your body will love you for it though. :D

I did this today. :) I totally racheled the water....and guess what...I didnt even urinate nearly as much as I did yesterday when I took the one drop of NDF. :huh:

I'll have to see what happens tomorrow when I take my NDF again. ;)

P.S. This is my Glamour Shot from when I was 13.

I love it Jin!!! I agree with everyone about that hair color....it really does compliment your features. :)

Rachel-

#1 this is the cutest picture !!! I can just see you sitting there smiling like an angel while all the while planning some sort of weird mischevous act.

Yeah...who knows what might have been going through my mind. :lol: I thought my mom had always said that I was a really good kid....now she's saying "Well.....you were kind of hard." :huh:

Does that mean difficult?? :unsure:

I think maybe I've traumatized her or something...she says she does NOT want grandchildren. :o She says she has enough to worry about already. :(

She's the type that couldnt sleep at night until her kids were home and safe in bed. I was the kid who sometimes just didnt come home. :ph34r:

Shes still the same way...even though I'm 35. She worries alot....she worries about my brother too but she says I've always been "harder".

Ok organic chicken- no but processed chicken with added crap - ok? I know it makes no sense but my body does not really follow the natural laws of sense. Ijust figured I'de share this with you. Sometimes I seem worse off wih the truly pure stuff liek its just to much for me to handle- My body the eternal mystery

Ok...I have some thoughts about why your body may not like the fresh organic chicken. Its just some guesses so might not mean anything.

These are possibilities that I know would make a difference in whether I react to cooked meat or not.

1. Are you eating the skins?? I react to the skins and never ever eat them.

2. Is there alot of grease from the meat?? I react to the natural juices that accumulate from cooking so I try to avoid that stuff as much as possible. The "juices" are really high in glutamate...so if you were sensitive to MSG you could react to this.

3. If you were sensitive to "amines" you could react to meat thats been cooking for awhile. The longer its cooked the more the amines increase. Anything that is slow cooked would have high amines....this could also increase glutamates.

4. Could be something you're putting on the meat?? A seasoning??

Anyways...those are my theories. :P

Rachel--24 Collaborator
You're going to think this is crazy, but I only dated two other guys (we got married young), and one was only for a month when I was in Mexico ... we'd have dated longer but we didn't live near each other. I didn't dislike either of the other two guys. :rolleyes:

I seem to be extremely picky....its hard for me to get really interested in someone. I guess I dont fall in love too easy. :unsure:

I've went out with more people than I could ever count or even rememeber :ph34r: ...but if I dont really feel any butterflies right away I'm pretty much only thinking about friendship...nothing else.

I know people say you have to spend time with a person and get to know them..etc. It just doesnt work for me...if its not there...its just not ever gonna be there.

The last guy I went out with really wanted me to *try* to fall in love with him. He was saying I just dont open myself up and give anyone a chance. So I did...for about a year...I did fall in love with his family (they're great)....but...NO...I did not fall in love with HIM. :(

I guess I can say I've been in love maybe 4 times. Those were all people I initially didnt like at all...people that I didnt want anywhere near me and I wasnt at all shy about my feelings. I never dated any of them....somehow we just ended up together. :rolleyes:

So I guess I've never actually dated someone and developed feelings the way most people do. I'm just not good at dating. :ph34r:

One relationship got started because of a very persistant bar/club owner. I wasnt interested at all and I cried (actual tears) to my friend because I was sad that our favorite dance club was not fun anymore...cuz of the owner "bugging' me. I didnt wanna go there any more. :(

I wasnt trying to hide the fact that I wasnt interested. One night I went to the club and the bouncer wouldnt let me in....said the owner had "banned" me from the club. :blink: I was arguing at the door and finally I got let in...but I had to pay double!! :angry::angry:

It was very distressing...this is where all my friends hung out.

One night I was playing pool and the owner challenged me to a game...if I lost we'd have to go out on a date. If I won I could choose what I wanted. I said I wasnt interested in a date but I really wanted to have one of the cool neon Budweiser bar lights.

So yeah...I played a fierce game...and I walked out with the Bar Light. :D

Eventually a whole group of us were going out for a brunch. The owner said since both of us were going why couldnt we just go together?? I said "OK....FINE...we'll go then and thats the end of it."

So we went to brunch and amazingly IT WAS FUN :o ...next thing I knew we were driving to Tahoe, renting snowmobiles, totally having a blast and we were together for about a year. :lol: I did fall in love...although I did get "banned" from the club a few more times during that year. :rolleyes:

So thats pretty much how all of my realtionships started. My last serious relationship started in a similar way...with me refusing to even give out my phone number...let alone go out on a date. We broke up after I got sick and my heart is still broke I think. :(

I think my heart cant heal until the rest of me starts healing. It seems like the toxins get in the way of healing hearts too. <_< Is that possible or I am just really lame for having a broken heart this long?? :unsure:

Rachel--24 Collaborator
<--------- New photo...me standing in the garden of the house that dad built, lol. Also another photo on my personal pic page....my sister, me and my mom.

Patti--great wedding photo!

Great pics. Keep em, coming everyone. I love them!! :D

Donna, I didnt get my CD57 done today. I went there but then I was wondering if the labwork is in or out of network?? :unsure:

I figured if my "in network" Dr. from Camino Medical could order the same tests insurance might cover more of the cost. They filled out the labslip for me...all of the tests are done through LabCorp...even the liver and kidney tests. They said I should call insurance and see if LabCorp is in network....if it is I can go back and do the bloodwork or go to camino medical and have it done.

They filled out the labslip so in case I get it done somewhere else the results will still go to Dr. S.

If LabCorp is not in network I guess I'll just have the liver and kidney testing done by my Camino Medical Dr. cuz it'll be cheaper that way.

First I'm gonna find out how much the tests cost....if they're not terribly expensive it might be more trouble than its worth. <_<

So hopefully I can get all the info. tomorrow and then go back for the blood draw. I wanna hurry up and get the results. :)

Rachel--24 Collaborator
I don't know what happened to my last post so I will post again.

This weekened I got real sick from a molded lemon in my cabinet. I now have big time bubble guts and brain fog. I don't know what to do. I eat and I am still hungry. Losing weight rapidly and the dentist won't see me till 15 of may. What should I do or eat to keep weight on does anyone know? Rachel do you think seacure is o.k.? Should I open the doors or keep them closed because of the mold? I can't believe I got myself sick. It's been 4 days and still sick. I guess it's chicken soup all day everyday. They say stock is the best thing for people with gastro diesease because of electrolytes and minerals, brestbone, neck and backbone are best. NO organic chicken for me to sweet. Should I take a probiotic even if I have mercury and candida? I am taking pearl right now 1 billion. Took blood test for dentist to make sure he knows what composites to put back in my mouth. Rachel have you heard of this blood test. I am tired will talk more later.

lisa

Lisa,

Be really careful with mold. Hopefully you dont have any mold in your home....other than the lemon. I would definately air out the house but breathing the spores like you did could mess you up for awhile.

Also make sure you get rid of the lemon in an outside garbage.

I took the bloodtest to check for compatibiltiy also. Its true that you could be sensitive to any materials they put in your mouth. Its a good idea to know whats safe so you dont end up with composites you're allergic to....which would make everything worse. It sounds like your dentist is really good.

I also like that hes only removing one filling at a time. As sick as you are right now...that is definately the best way to go about it. He doesnt want you to get too much exposure at one time. He's doing the best he can to not get you more sick during the process.

Personally I would not take the SeaCure or the probiotics or anything else right now. SeaCure got me alot sicker. I lost all kinds of weight and couldnt gain anything back. I was at 94 lbs. and I didnt start gaining until I stopped the supplements...all of them....even the probiotics.

Once I stopped taking supplements I gained more than 10 lbs. and my weight has been stable ever since. Its been about a year now....my weights been stable at 110. I cant gain anything more but at least I'm not losing.

My body cant process alot of this stuff so even if its "suppossed" to be good...its not necessarily good for ME. Some of it can be quite bad or even toxic because it doesnt get utilized the way it should or the immune system is reactive to it.

I would stop taking supplements and see how you feel after a few weeks. If you want you can always try them again...one at a time though...so you can see if you develop problems or additional symptoms.

I know SeaCuRE affected me in a bad way. I wouldnt take it...after all its FISH. :o

It might contain mercury...I dont know but I did get ALOT worse taking the SeaCure. <_<

I have it all written in my journals I was keeping back then....It was definately SeaCure making me sicker. I didnt ever think about the fact that it could contain mercury until you mentioned it a couple weeks ago...I think you're probably right about that!! It could definately explain why I was getting so much worse!! :o

I hope you feel better soon. :)

Nantzie Collaborator

Hello!

I've been seeing all the cute 70's and 80's pictures on the board and figured there must be something going on in Rachelville. :D

You guys are all so adorable.

I read a few pages back and I saw that you guys have been talking about yurts. It reminds me of my dad telling me about yurts and how they make the felt for them. I swear, he knew about so many unusual things. I'm sure that's where I get my research-mindedness from. Makes me miss him... I'll have to get some old pictures up too.

:D

Nancy

miamia Rookie
Lisa,

Be really careful with mold. Hopefully you dont have any mold in your home....other than the lemon. I would definately air out the house but breathing the spores like you did could mess you up for awhile.

Also make sure you get rid of the lemon in an outside garbage.

I took the bloodtest to check for compatibiltiy also. Its true that you could be sensitive to any materials they put in your mouth. Its a good idea to know whats safe so you dont end up with composites you're allergic to....which would make everything worse. It sounds like your dentist is really good.

I also like that hes only removing one filling at a time. As sick as you are right now...that is definately the best way to go about it. He doesnt want you to get too much exposure at one time. He's doing the best he can to not get you more sick during the process.

Personally I would not take the SeaCure or the probiotics or anything else right now. SeaCure got me alot sicker. I lost all kinds of weight and couldnt gain anything back. I was at 94 lbs. and I didnt start gaining until I stopped the supplements...all of them....even the probiotics.

Once I stopped taking supplements I gained more than 10 lbs. and my weight has been stable ever since. Its been about a year now....my weights been stable at 110. I cant gain anything more but at least I'm not losing.

My body cant process alot of this stuff so even if its "suppossed" to be good...its not necessarily good for ME. Some of it can be quite bad or even toxic because it doesnt get utilized the way it should or the immune system is reactive to it.

I would stop taking supplements and see how you feel after a few weeks. If you want you can always try them again...one at a time though...so you can see if you develop problems or additional symptoms.

I know SeaCuRE affected me in a bad way. I wouldnt take it...after all its FISH. :o

It might contain mercury...I dont know but I did get ALOT worse taking the SeaCure. <_<

I have it all written in my journals I was keeping back then....It was definately SeaCure making me sicker. I didnt ever think about the fact that it could contain mercury until you mentioned it a couple weeks ago...I think you're probably right about that!! It could definately explain why I was getting so much worse!! :o

I hope you feel better soon. :)

I have a box of sea cure in my cabinent too I am hoping pne day i will be able to take it but I kow when i tried it I also got sicker. So I am with rachel - be careful.

jerseyangel Proficient
I've been seeing all the cute 70's and 80's pictures on the board and figured there must be something going on in Rachelville. :D

:lol: Hi Nancy--I'm glad you popped over to take a look! Yes, please put up some of your old pictures :D

I must be the only person who didn't know what a yurt is..... :unsure:

dlp252 Apprentice
....now she's saying "Well.....you were kind of hard."

Does that mean difficult??

:lol: Probably. ;)

She's the type that couldnt sleep at night until her kids were home and safe in bed. I was the kid who sometimes just didnt come home.

Shes still the same way...even though I'm 35. She worries alot....she worries about my brother too but she says I've always been "harder".

My mom is still the same way...and I'm almost 52! I don't think that ever changes, lol. Every time I tell her I'm being tested for something new she and my aunt look it up in their medical journals and the next time I see them, they tell me all about it. :D When I had my surgeries, my mom was more nervous than I was. :P

These are possibilities that I know would make a difference in whether I react to cooked meat or not.

...

3. If you were sensitive to "amines" you could react to meat thats been cooking for awhile. The longer its cooked the more the amines increase. Anything that is slow cooked would have high amines....this could also increase glutamates.

Hum, that could be it...I cook chicken to death, lol. Not so much because I'm afraid of bacteria, but because I don't like the texture of it unless it's almost shoe leather, lol. Steak I eat rare though. It's just the chicken I can't stand the texture of unless it's very well done.

I seem to be extremely picky....its hard for me to get really interested in someone. I guess I dont fall in love too easy.

I think I'm just the opposite...I seem to fall in love fairly easily, but never act on it. I can have strong feelings for someone and they'd never know it. How sad is THAT, lol. I think I just can't decide if I WANT a relationship so I never do anything about my feelings. After my last boyfriend (who put me through an emotional wringer) I decided relationships weren't worth the effort and then I got sick, so that kind of took care of it. I do flirt sometimes, but if someone ever took me up on that I'd probably run for the hills! :lol:

Donna, I didnt get my CD57 done today. I went there but then I was wondering if the labwork is in or out of network??

I figured if my "in network" Dr. from Camino Medical could order the same tests insurance might cover more of the cost. They filled out the labslip for me...all of the tests are done through LabCorp...even the liver and kidney tests. They said I should call insurance and see if LabCorp is in network....if it is I can go back and do the bloodwork or go to camino medical and have it done.

They filled out the labslip so in case I get it done somewhere else the results will still go to Dr. S.

If LabCorp is not in network I guess I'll just have the liver and kidney testing done by my Camino Medical Dr. cuz it'll be cheaper that way.

First I'm gonna find out how much the tests cost....if they're not terribly expensive it might be more trouble than its worth.

So hopefully I can get all the info. tomorrow and then go back for the blood draw. I wanna hurry up and get the results.

I don't think the test is horribly expensive. The girls back at the nurses station went over all the costs with me for all the tests, but since I had 7 tests, I don't remember what was what. They gave me a sheet of paper with all the tests and costs, etc. I wish I had my paper in front of me--I have it at home with all the prices written down and which ones billed insurance.

I didn't write a check for LabCorp so I think they are one of the ones that will bill my insurance. I only wrote three checks, one to Igenix, one to Spectrcell and one to Doctor's Data. I think the rest were to be billed to my insurance and paid for with credit card at the office. All of the remaining costs for tests couldn't have been more than $150 because my whole bill was $408ish and the initial office visit of $365 was included in that (I keep thinking they made an error somewhere though, cuz that seems cheap, lol).

I went to Camino for my annual exam a few weeks ago cuz I knew there'd be blood testing...they're the ones that showed the low lymphocytes. I go there for routine stuff cuz it is definitely cheaper for me especially since I've met all my out of pocket maximums, lol.

I read a few pages back and I saw that you guys have been talking about yurts. It reminds me of my dad telling me about yurts and how they make the felt for them. I swear, he knew about so many unusual things. I'm sure that's where I get my research-mindedness from. Makes me miss him... I'll have to get some old pictures up too.

Hey Nancy, good to see you here! Wow, interesting about the yurts, lol. :lol: I'd heard about them before because I watch all these obscure television programs on stations like Discovery Channel, lol. :lol:

CarlaB Enthusiast
she says she does NOT want grandchildren. :o She says she has enough to worry about already. :(

Cheryl, are you CRAZY???!!! :P I can't wait to be a grandmother!!!! :lol: But then again, I'm not a worrier ... I don't know why, but I just don't worry about things.

Rachel, hard does mean difficult. You said yourself that you always wanted to do the opposite of what you were told ... that's difficult. ;)

And, OMGosh, my kids would be terrified of missing curfew!! :o Once Morgan had a ski trip with her class and I forgot about it (Lyme Brain). She would normally call after school was over to remind me, but she didn't ... or else she would tell me in the morning before she left for school, but she didn't ... or she would call me from the ski place, but she didn't ... so I called the cops when she was an hour past her normal curfew! In our old small town, they had nothing better to do than look for her, so they were waiting at the school for her when the bus returned! So, now the family joke is, don't miss curfew or Mom will call the cops! :lol::lol:

Okay, so maybe I was a little worried that time ...

CarlaB Enthusiast
Hello!

I've been seeing all the cute 70's and 80's pictures on the board and figured there must be something going on in Rachelville. :D

You guys are all so adorable.

I read a few pages back and I saw that you guys have been talking about yurts. It reminds me of my dad telling me about yurts and how they make the felt for them. I swear, he knew about so many unusual things. I'm sure that's where I get my research-mindedness from. Makes me miss him... I'll have to get some old pictures up too.

:D

Nancy

Nancy, I hope you stick around for a while!!

CarlaB Enthusiast
I must be the only person who didn't know what a yurt is..... :unsure:

I didn't either.

Adam just emailed me that he's on his way home to take me to work out ... why do you think he thought I was on the computer???? :lol::lol::lol:

Rachel, for me, I had to have the butterflies, too!

When I saw Adam and he saw me for the first time, we both stopped and looked at each other. It was like our guardian angels tapped us on the shoulder and said, "This is the one!" Later that night (it was a frat party), we danced and talked. I kept getting calls at the sorority house, but I was a freshman so hadn't moved in yet. ALL the other guys I knew knew my phone number, so I knew it was Adam. He never left a message. I called him and asked him to the dance in the picture.

We saw each other for about 4 weeks, but he had a girlfriend in Texas! :o That summer I dated someone else, in Mexico. He was part of IU's group there... I hadn't met him or noticed him (he had brown hair :lol: ), but several of us were going to Acapulco and I was sitting next to him. It was a nighttime bus trip and he told me I could lean on him if I wanted (we were all trying to get comfortable enough to sleep)... so, shallow me, I LOOKED at him first, decided he was cute, then leaned on his shoulder to sleep! LOL I dated him the rest of the trip, but he didn't go to the same IU campus I did, so it was over when we got back. I didn't find out until 25 years later when I had breakfast with him after not seeing him all these years, that he tried to find me. :( But it all worked out fine ... for me anyway ... he's alone (divorced).

I had other guys who wanted to date me, they were all VERY nice, too ... but if there wasn't that spark in the beginning, they didn't have a chance. I joke that I'm just shallow ... if I'm not attracted to a guy, I'm simply not attracted to him!

The third guy was my hs boyfriend. Nice guy, we still keep in touch ... all my group of friends from hs does.

jerseyangel Proficient

The night I met Mark, I was on a date with another guy (the prom date :P ). I literally turned the corner to go to the dance floor area and he was sitting right there, straight ahead of me. He smiled at me and I smiled back--he was really cute :ph34r:

Anyway, we very briefly talked about how we both loved the music the DJ was playing, and sometime during the time I was there, he asked for and got my phone number. He was also the most polite and well spoken guy I had ever met--and mature at 4 years my senior :lol:

Did I say I was a bit of a rube B)

We've been together ever since our first date :D

jerseyangel Proficient
Adam just emailed me that he's on his way home to take me to work out ... why do you think he thought I was on the computer???? :lol::lol::lol:

:D Mark told me recently that I'm wearing the letters off the keyboard! :lol:

CarlaB Enthusiast
Did I say I was a bit of a rube B)

I had to look up "rube"! :lol: It said "unsophisticated country person"!!! :lol::lol::lol:

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    • Ginger38
      Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes would not be affected. WRONG. I have tried this several times since I crossed over to full blown diabetes, because I get so sick eating gluten that I end up getting frustrated and go back to gluten free to get some relief. I have a continuous glucose monitor so it is easy to see how my body and glucose are reacting to foods. Unfortunately my suspicions are correct. When I eat gluten-free foods -like Schar breads or rolls, or the crackers, including when I stay in my carb limit,  my sugar spikes and just sits there.. .it won;t even come back down for hours. So in the end it drives my overall glucose and A1C up. I can't really even eat oats or things like that. Cereal is very iffy. Gluten free pizzas, gluten free nuggets, and things like that majorly spike my sugar as well, again, even when staying in my carb limits. I already feel so limited on foods because of the diabetes so of course, when medical people and family and friends are like just go eat gluten, I have been like oh okay - maybe it is all in my head and hey its way cheaper to eat gluten and tastes wayyy better...and then I end up right back where I am today,. MISERABLE, just laying around in pain, spending all day in the bathroom, having accidents related to diarrhea, constant tremors, heart rate issues, chest pain etc. and I forgot about these terrible painful canker sores in my mouth right now, I can't even hardly eat or drink or swallow they hurt so bad.  Not being able to feel like I can eat gluten free is extremely frustrating. I had some great recipes and substitutes for things, and was at a decent place with all that, until the diabetes went crazy out of control, so gluten-free living seems to not be an option for me. However, eating gluten when I truly still believe I am celiac -just misdiagnosed- does NOT seem like a wise idea. I am honestly scared  I am going to get deathly ill from all this or something. I even asked my GI doctor, more like begged, if he would please just label me as celiac and tell me I was for sure (like he did before) so I could get the support I truly need. No such luck. He just keeps saying but your tests were okay 🙄 My family went to an arcade and pizza/pasta buffet yesterday - obviously I didn't want to miss out spending time with my family and my mom spent money paying for my meal/buffet - and I was hungry, so of course I ended up eating pizza and pasta that was not gluten-free, because they don't offer any gluten-free options, and then my brother and others want to ask can you eat that or are you supposed to, and I am like well no, and I will definitely pay for it. They think it is hilarious when I say things and then make comments, like how it is so fun to go out with me especially places like that because I am not supposed to eat but I just do it anyway and say I will pay for it 😥 just seems everywhere I turn it is pointless and I have no support 
    • Wheatwacked
      Just like you cannot be a little pregnant, you cannot be a little Celiac.  Here is an article I found that explains what the numbers mean. Are You Confused About Your Celiac Disease Lab Results? Here is another article about the non traditional symptoms of Celiac Disease. What Are the Symptoms of Celiac Disease? I've been taking 10,000 IU vitamin D3 since 2015.  My blood tests every 3 months for 25(OH)D have never gone above 93 ng/ml, even in the Florida summer.  70 - 100 is the body's natural homeostasis level. Surge of information on benefits of vitamin D "“When combined with supplemental magnesium, vitamin D repletion has dramatically changed my practice,” said McCarthy ... “There are now very few patients with infections, and asthmatics who are coming off medications are staying off of them. ... A lifeguard study that found vitamin D levels in the 70 ng/mL range up to 100 ng/mL (nature’s level) were associated with no adverse effects; ... Colon cancer data showing a reduction in the incidence of new cancer (linear) with postulated 0 point at 75 ng/mL;
    • somethinglikeolivia
      Interesting! Recent labs I had done did show that I was low in Vitamin D so I just began supplementing, it’s hard to tell so soon but it does seem to have a positive affect! Thanks for the input!
    • Scott Adams
      Your frustration and exhaustion are completely valid, and many in the celiac and gluten-sensitive community can relate to the overwhelming confusion you're experiencing. You’re being pulled in different directions by medical advice that seems contradictory, and it’s heartbreaking that your efforts to feel better are met with so many setbacks. Positive TTG IgA antibodies are not something to brush off, especially when combined with your long list of debilitating symptoms that clearly worsen with gluten exposure. A negative biopsy does not necessarily mean you don’t have celiac disease—it’s entirely possible that damage was missed, especially since biopsy results can vary depending on where the samples are taken and how many are collected. It’s also true that celiac disease exists on a spectrum, and many people have serious symptoms and immune responses without yet showing classic biopsy damage. Managing diabetes alongside suspected or confirmed celiac disease is incredibly tricky, especially when healthcare providers don’t work as a team to support your whole health. You shouldn’t be forced to choose between controlling your blood sugar or protecting your gut and immune system. A well-planned gluten-free diet can be both nourishing and diabetes-friendly, especially with guidance from a knowledgeable dietitian who understands both conditions. It’s also deeply concerning that your symptoms—neurological issues, severe fatigue, GI distress, rashes, and more—are being dismissed. You’re not just describing discomfort; you’re describing a level of illness that’s life-altering, and your instincts that something is seriously wrong are absolutely worth trusting. You know your body better than anyone. You deserve a team that listens, believes you, and helps you build a realistic, sustainable path to healing. Whether it’s celiac disease, non-celiac gluten sensitivity, or something else, you have every right to go gluten-free permanently if that’s what makes you feel functional. Many people never get a “perfect” diagnosis but reclaim their health by honoring their own experience and choosing a path of least harm. You are not crazy, you are not weak, and you are not alone. Keep advocating for yourself—you and your daughter both deserve a healthier, more stable life.
    • Wheatwacked
      While a definitive causal link remains unclear, vitamin D's known role in immune modulation and intestinal barrier integrity suggests that it plays a significant role in the development and progression of celiac disease.  Reduced 25(OH)D levels are associated with celiac disease.  In celiac disease, gluten can damage these tight junctions, and vitamin D may play a protective role in this context. 
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