Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

CarlaB Enthusiast
CarlaB
Posted
Carla is right

Sorry, don't hear that often so I had to highlight it!! ;):lol::lol::lol:

Are you throwing down the gauntlet? :P

Umm, if I need to. :rolleyes: It's a need that no one else has filled!!! You'd really be a taifun if you could do that!!

I'm sure Rinne bars will be a hit, too.

Bev, so glad the appt. went well. I want the details, sent you a PM.

As far as presidents, will they give their speeches with no shirt on? :P It's good to see that we're all as shallow as those men who want women with good bodies! :lol: Then we have Andrea wondering who all these people are. ;):D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
jerseyangel Proficient
jerseyangel
Posted
As far as presidents, will they give their speeches with no shirt on? :P It's good to see that we're all as shallow as those men who want women with good bodies! :lol:

:lol: As shallow as they come :lol::ph34r::P

AndreaB Contributor
AndreaB
Posted

Ok, here's the updated list with Bev added.

Rachel Rhonda Mia Carla Laura Charlie Donna Bev

18 kDa '- '- '+ '+ '- '- '- '+

22 kDa '- '- '- '- '- '- '- '-

**23-25 kDa '- '- 'IND '+ '- '+++ '+ 'IND

28 kDa '- '- '- '+ '- '- '- '-

30 kDa '+ '- '++ '+ '++ '- '- '+

**31 kDa '- 'IND 'IND '+++ '- '++ '+++ 'IND

**34 kDa 'IND 'IND IND 'IND '- IND '- 'IND

**39 kDa 'IND 'IND 'IND 'IND IND IND '- '+

**41 kDa '++ '+ '+++ '+++ '+ '+++ '++ ++

45 kDa '- '- '+ '- '- '+ '- '-

58 kDa '+ '+ '++ '+ '+ '+ '+ '++

66 kDa '+ '- '- '- '- '+ '- '+

73 kDa '- '- '- '- '- '- '- '-

**83-93 kDa '- '- 'IND '++ '- IND '- '+

I need to figure out a way to make this more readable......

AndreaB Contributor
AndreaB
Posted
Bev, so glad the appt. went well. I want the details, sent you a PM.

Bev, you know I want details. I want everyone's details. You have my email. :D

jerseyangel Proficient
jerseyangel
Posted

Andrea--It's interesting--when you hit "reply" to your post, the list is more spread out and much easier to read. :blink:

jerseyangel Proficient
jerseyangel
Posted
Bev, you know I want details. I want everyone's details. You have my email. :D

Me too!

Except the email--I'll PM it to you :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Nothing from Bev yet??? Shoot.... :P

I'll have to wait longer I suppose...

I'm not taking garlic yet...I AM trying to add fresh garlic to my dinner...but I'm cooking it, so I'm thinking it's not beneficial that way. I'm going to try the one you mentioned...sounds good.

Yeah...I'm really liking this one so far. Its the one that was mentioned alot in "The Yeast Syndrome"...I've taken it in capsules before but never could find the liquid extract until last night.

I'm putting the drops in warm water...it tastes really good. I LOVE garlic. :D

Did Dr. S suggest you take alpha lipoic acid? There has definately been no list of supplements that he's wanting me to take...just the whey protein and cats claw. :lol:

He's gonna be really impressed with all I'm taking now...in the past I havent been able to stay on anything...Its only been a few weeks now that I've been on the whey....( he gave it to me in October :rolleyes: ).

I bought the ALA on my own.....but then I read this...

Alpha lipoic acid should not be used alone, as it only mobilizes mercury with a weak bond. Without additional chelators present, such as DMPS or DMSA, the mercury may just redistribute elsewhere in the body instead of being removed.

I need to see what Dr. Amy says about it...I'll also ask Dr. S. in a few weeks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I would consider coming to the states for treatment. The San Francisco Bay area has an appeal to me, I still have friends there from many years ago. :)

Yeah....and you have new friends here now too!!! :wub:

I didn't know you are supposed to hold it for 15 minutes ... I did for just a few, maybe 3? That was probably a good way to ease into it anyway and see how I react. Tomorrow I'll hold for longer. Had no trouble at all with a whole quart. :ph34r:

Rachel, does yours have a hard plastic tip? I read to use a soft tip, but mine is hard.

Carla...I dont force myself to hold it for any certain length of time. I just hold it as long as I can....sometimes its less than 5 minutes...other times longer than 15.

Yeah...mine is also a hard plastic tip. I havent had an uncomfortableness from it or anything.

I am blissfully ignoring all talk of coffee enemas. :ph34r:

:lol::lol:

We'll see how long you last......I think you'll get sucked in :P ....I agree with Carla....you know you wanna try it!! :lol::lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I totally get the withdrawal :(:lol: I went for two days without a rinne bar and then lost it yesterday and ate more than 5, I lose track after that many :o but I had a really good excuse. :rolleyes:

Yeah....I ate 3 quarts ice cream. :ph34r:

I had a really good excuse too!! They were in the freezer and I needed more space for the veggies and meat. Plus its harder to be tempted when they arent staring at you every time you go in the fridge. So I ate them ALL. :D

Problem solved B)

I have wondered about a number of people on this board who are don't seem to recover with just the gluten free diet.

Yeah....there are alot here who continue to have problems.

Word of advice: Dont say too much about it outside this thread. ;)

Remember the heinosity of the thread we shall not speak of. :ph34r:

Let off steam? Can we let off steam?! :ph34r:

Let me just say it's much easier being a mother hen to you guys then to my children. (insert pulling hair out emoticon).

Yeah....you wanna add some words to your punching bag Andrea??? I ran out of space on mine several hundreds of pages ago. :lol:

In some ways I was fortunate because the consequences of eating anything risky for me were so awful I was self-disciplined by that. :lol:

Ummmm yeah....I know a thing or two about this too. :P

I dont know if I'd ever say I'm fortunate to be tortured by nearly all foods though. :unsure:

Yeah....the consequences are too great. At least God provided me one flavor of ice cream to enjoy for 8 months while I blissfully ignored candida. :D

OMG....I wonder if you guys can even guess how many hundreds of pints were consumed during that time. Hot ice cream....it got me through the entire winter. :wub:

tom Contributor
tom
Posted

Hey everybody!! This is Murph after finding old acct name. Woohoo I used to party like member 1999! :)

At this point, I'm not turning down a test for anything!

I heard that.

AndreaB Contributor
AndreaB
Posted
Yeah....I ate 3 quarts ice cream. :ph34r:

I had a really good excuse too!! They were in the freezer and I needed more space for the veggies and meat. Plus its harder to be tempted when they arent staring at you every time you go in the fridge. So I ate them ALL. :D

:o:ph34r: That sounds really good.......somehow I think I'd be sick if I ate that much!

AndreaB Contributor
AndreaB
Posted
Andrea--It's interesting--when you hit "reply" to your post, the list is more spread out and much easier to read. :blink:

Yeah, it's nice before it's posted. I don't know why this program scrunches everything together. :huh:

AndreaB Contributor
AndreaB
Posted
Hey everybody!! This is Murph after finding old acct name. Woohoo I used to party like member 1999! :)

I heard that.

Boy! You are an oldie. :P:lol::lol:

Must have had some time on your hands. :D:P

AndreaB Contributor
AndreaB
Posted

Just talked to mom a little while ago. Talitha was taking her turn talking to her and I guess grandma had brought up taking her and Micah to NW Trek and Talitha started talking about grandma giving her food that made her sick before.

I think that must have been awhile ago. When we've been up recently (all of us) it's been fine. Anyway, grandma got mad and hung up on Talitha. Talitha was in tears. :( She thinks she said something wrong. I told her that she's right in being concerned about getting sick and bringing up that she has gotten sick before wasn't necessarily wrong.

jerseyangel Proficient
jerseyangel
Posted
Anyway, grandma got mad and hung up on Talitha.

OMG--that is so sad...poor Talitha :(

Gee, she's just a child. Is your mom always like that? :unsure:

AndreaB Contributor
AndreaB
Posted
OMG--that is so sad...poor Talitha :(

Gee, she's just a child. Is your mom always like that? :unsure:

Pretty much. She doesn't agree with our lifestyle, beliefs or anything so that may be part of it. Talitha is easy to hurt, just like my mom and I were. I've got a backbone with some things, others no. My mom was hurt when she was younger and built a wall of protection around herself. I really don't want Talitha to have to do that.

My mom should know how T operates since she is pretty much like the females on my mom's side of the family. Headstrong, opinionated, perfectionist........

I'm not so much a perfectionist anymore, for the most part. I've learned to respect others opinions.....I'm not sure about the headstrong......you'd have to ask my husband. :ph34r:

I'm wondering if my mom doesn't have some kind of metals problem. She had/has a lot of amalgams too. With me being second born I probably didn't get so much of that, but my brother and I are five years apart. She thinks we are out in left field with half this stuff anyway. :blink:

She told me that my brother was following (kinda?) my advice and feeling better. She said it's hard for him because he eats out all the time. I don't know what my mom thinks about this. I hope she takes it seriously. I think she sees it as a way for him to lose weight, which he does need, but I hope she realizes he can't eat ANY gluten.

CarlaB Enthusiast
CarlaB
Posted
:lol::lol:

We'll see how long you last......I think you'll get sucked in :P ....I agree with Carla....you know you wanna try it!! :lol::lol:

Yeah, Morgan is already wanting to try it.

CarlaB Enthusiast
CarlaB
Posted
Yeah....I ate 3 quarts ice cream. :ph34r:

In ONE sitting???? :o

Hey everybody!! This is Murph after finding old acct name. Woohoo I used to party like member 1999! :)

So do we call your Murph or Tom? I see you had some extra time on your hands!!

Just talked to mom a little while ago. Talitha was taking her turn talking to her and I guess grandma had brought up taking her and Micah to NW Trek and Talitha started talking about grandma giving her food that made her sick before.

It's sad when adults act like children and hurt children in the process. I just tell my kids that sometimes adults don't act like adults and to remember how much it hurt to ... in this case ... be hung up on so that they're sure they never do that.

tom Contributor
tom
Posted
So do we call you Murph or Tom? I see you had some extra time on your hands!!

Hmmm I'll answer to either. Not sure which acct I want to use. I suppose there's a certain cachet to a lower member #, but not so much to me.

I'd turned on the pc to check out food/symptom diary from aug/sep '05, when I was last feeling great. Mentally anyway. And ran into old links to threads here that I knew I'd posted in. Bingo! There I was.

Then again, I didn't need the name as much as guessing email/pw for that name. :)

tabasco32 Apprentice
tabasco32
Posted

Yeah I found a store here that sells enyma bags. You can use for douce, enymas and it's rubber. But they sold the last one today. SO now I have to wait till tomorrow to do the enymas. Did anyone feel the squirt come from their right side. Wouldn't all the toxins squirting from their cause badness for the small intestine? Just thinking about it makes me weak like jello. A squirt. Does the squirt hurt or feel funny? Just wondering before I do this tomorrow.

Lisa

rinne Apprentice
rinne
Posted

Hi Murph/Tom. :)

Sorry, don't hear that often so I had to highlight it!! ;):lol:

Umm, if I need to. :rolleyes: It's a need that no one else has filled!!! You'd really be a taifun if you could do that!!

Glad to give you a giggle.

What would go into these magical bars? No dairy, no fruit, no sugar, no chocolate, no nuts, no grains.... :lol:

Yeah....and you have new friends here now too!!! :wub:

....

Shucks. :wub:

Yeah....I ate 3 quarts ice cream.

I had a really good excuse too!! They were in the freezer and I needed more space for the veggies and meat. Plus its harder to be tempted when they arent staring at you every time you go in the fridge. So I ate them ALL.

Problem solved

Yeah....there are alot here who continue to have problems.

Word of advice: Dont say too much about it outside this thread.

Remember the heinosity of the thread we shall not speak of.

Yeah....you wanna add some words to your punching bag Andrea??? I ran out of space on mine several hundreds of pages ago.

Ummmm yeah....I know a thing or two about this too.

I dont know if I'd ever say I'm fortunate to be tortured by nearly all foods though. :unsure:

Yeah....the consequences are too great. At least God provided me one flavor of ice cream to enjoy for 8 months while I blissfully ignored candida.

OMG....I wonder if you guys can even guess how many hundreds of pints were consumed during that time. Hot ice cream....it got me through the entire winter. :wub:

Rachel, you are too funny. I love the way you solve problems, you rachel them. :P:lol::lol::lol:

I venture out of Rachelville once in a while but I am generally careful about what I say, I'm sure I could be strung up for heresy if I suggested that many of those who have found their cure may find in a few years they have other problems. I think some will find they may have multiple diagnosis and treatments for a variety of ailments that in some cases I think may solely be attributed to Lyme. This is just an opinion.

.....

I think that must have been awhile ago. When we've been up recently (all of us) it's been fine. Anyway, grandma got mad and hung up on Talitha. Talitha was in tears. :( She thinks she said something wrong. I told her that she's right in being concerned about getting sick and bringing up that she has gotten sick before wasn't necessarily wrong.

Ouch, poor Talitha. :( How difficult to have a Grandmother who behaves like that.

I've been sitting here laughing, I love it when we hit our funny bones. :lol: I think laughter is an expression of wellness and that the more we laugh the more we help our bodies remember wellness.

CarlaB Enthusiast
CarlaB
Posted
Did anyone feel the squirt come from their right side.

I didn't.

What would go into these magical bars? No dairy, no fruit, no sugar, no chocolate, no nuts, no grains.... :lol:

I have no idea, but I have an idea for the name ... The Nothing Bar!

rinne Apprentice
rinne
Posted
...

I have no idea, but I have an idea for the name ... The Nothing Bar!

:lol:

AndreaB Contributor
AndreaB
Posted

Oh, I forgot to mention. I asked my mom about the rat bite and the possibility of lyme. She said they tested for that and I was clear.......with all I've learned is that supposed to make me feel better. :blink:

jmengert Enthusiast
jmengert
Posted

Thanks for the welcome, Patti. This place *is* wonderful, and I don't know what I would have done if I hadn't found it when I was diagnosed. I learn so much more from you all than my doctor(s).

And, Patti, that's what I'm afraid of, too--that's the tests for bacterial overgrowth is going to come back negative because all of my other tests have. It's kind of sad when you get to a point to *wanting* to be diagnosed with something!

That leads me to ask you all, what are your thoughts on IBS? My GI thinks I have it and celiac, but then again I was diagnosed with IBS about 7 years ago, well before my celiac diagnosis, which I now think was undiagnosed celiac. Do you all put any faith in a IBS diagnosis (because I kind of don't....)?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,859
    • Most Online (within 30 mins)
      7,748
    Lesley-Anne
    Newest Member
    Lesley-Anne
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.