Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Results From Upper Gi Series Test And Dr. Appt.

Canadian Karen

Recommended Posts

Canadian Karen Community Regular
Canadian Karen
Posted

Well, had the upper GI series yesterday.

I ended up having to drink more of that barium stuff because when they took me back in to do more pictures, the stuff had already gone through me. The technician said I was what they call "rapid transit", LOL, "No Kidding Bub! More like Super Sonic!" LOL! :D<_<

Anyway, I had to stick around the hospital until 1 pm for the doctor appt to discuss the results. I get on the elevator to go outside, and lo and behold, there is a pizza delivery man with about 8 large pizzas delivering to some people at the hospital. How cruel!!!! :angry:

When I got into the doctor, he said that he didn't see any indication of any ulcerative jujenitivis (or whatever that name is......) or cancer. He did say that it was very difficult to see the bowel though because it was absolutely full of water. He also said he wanted to do another biopsy to check the villi, so that is booked for June 14/06. He also wants to start me on IV iron, but not until after the biopsy.

He said that our next course of action will be to try a stronger regiment of prednisone and for a longer period of time. But he did say that even if this works, usually it will only be for awhile, and it will come back again, back on prednisone, etc. etc. Basically, he said it will be a chronic, ongoing thing.

So, that's where we are now.......

Hugs!

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted

Well it's good you don't have cancer! and you're having your biopsy on my 16th birthday, hope it goes well!

jerseyangel Proficient
jerseyangel
Posted

I remembered that you mentioned you were going for this test--thanks for letting us know, I was wondering how it all went. I wish that there was more that could be done--hopefully the treatment will work for longer than they expect--maybe even enough time for them to think of something else. I really hope so. :)

SueC Explorer
SueC
Posted

Hi Karen,

Hopefully the prednisone will work for you. I hope they see lots of little villi standing on guard when your endoscopy is done. Is your tTg level still high?

Did you want to trip the pizza guy? :rolleyes:

Good luck with your endo. Let us know how it goes.

tiffjake Enthusiast
tiffjake
Posted

Hey Karen, maybe I am in the dark here, but why were you having the tests done? Are you still having problems after going gluten-free? I hope things get better for you!!! I am glad that the doc didn't find anything too serious!

mouse Enthusiast
mouse
Posted

Tiffany, Karen has a chronic D problem due to a disease that she has besides the Celiac. She has been gluten-free for a long time, but has been hoping they would solve the problem. It is really tough news for her. It is great she does not have Cancer as that can happen with the disease she has. Her villi have always been flat with every exam they do. I hope this next one shows some soldiers standing at attention. It has to be tough to raise four children with the exhaustion due to the D problem. She has a wonderful supportive husband and great kids. I always keep her in my prayers.

tiffjake Enthusiast
tiffjake
Posted
Tiffany, Karen has a chronic D problem due to a disease that she has besides the Celiac. She has been gluten-free for a long time, but has been hoping they would solve the problem. It is really tough news for her. It is great she does not have Cancer as that can happen with the disease she has. Her villi have always been flat with every exam they do. I hope this next one shows some soldiers standing at attention. It has to be tough to raise four children with the exhaustion due to the D problem. She has a wonderful supportive husband and great kids. I always keep her in my prayers.

Ah! I didn't know about the other disease! I see. Thanks for the info!

Karen, my prayers are with you! You are a mighty strong woman! -Tiff

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

Thanks guys. I don't feel strong right now, I feel like a broken shell of the person I used to be....

This too shall pass.......

Tomorrow is another day....... ;)

Hugs.

Karen

TCA Contributor
TCA
Posted

Karen - You're such a trooper. Know that my prayers are with you.

Tanya

Judyin Philly Enthusiast
Judyin Philly
Posted

HI Karen

Wrote you a long email.

Yes, tomorrow is another day. You know that so many of us on the forum will continue to pray for your healing and strength to deal with all you have going on.

we love you and care deeply for you Karen.

Love and hugs

Judy

debmidge Rising Star
debmidge
Posted

Karen, you have my prayers and kindest thoughts for your Dr. to find a resolution to your chronic D and get you back in good health.

I know that the vibrant Karen we all know and love will be back on track; so keep positive thinking going.

D.

nikki-uk Enthusiast
nikki-uk
Posted

Hey Karen,been thinking about you.

Well at least they didn't find anything sinister with the barium.

I'd imagine you're not looking forward to the Pred -but fingers crossed a higher/longer dose may kick start your stubborn little villi guys into growing back a little,and maybe lessen the D ?

Positive vibes coming your way :):)

Nikki x

jenvan Collaborator
jenvan
Posted
Thanks guys. I don't feel strong right now, I feel like a broken shell of the person I used to be....

This too shall pass.......

Tomorrow is another day....... ;)

Hugs.

Karen

Well, it is a real blessing they didn't find cancer or something like that! ...but I understand that knowing that doesn't 'make it all better' for you. Glad you're having the iron treatment done...I remember us talking about that a while back. So did you decide that the SCD wasn't for you? Here's to being frustrated and sad with you friend... Hang in there...

Carriefaith Enthusiast
Carriefaith
Posted

I'm sorry that he said that what you are goin through is chronic :( That is not fun news. But you can prove him wrong! Be strong :)

ravenwoodglass Mentor
ravenwoodglass
Posted
Well, had the upper GI series yesterday.

I ended up having to drink more of that barium stuff because when they took me back in to do more pictures, the stuff had already gone through me. The technician said I was what they call "rapid transit", LOL, "No Kidding Bub! More like Super Sonic!" LOL! :D<_<

Anyway, I had to stick around the hospital until 1 pm for the doctor appt to discuss the results. I get on the elevator to go outside, and lo and behold, there is a pizza delivery man with about 8 large pizzas delivering to some people at the hospital. How cruel!!!! :angry:

When I got into the doctor, he said that he didn't see any indication of any ulcerative jujenitivis (or whatever that name is......) or cancer. He did say that it was very difficult to see the bowel though because it was absolutely full of water. He also said he wanted to do another biopsy to check the villi, so that is booked for June 14/06. He also wants to start me on IV iron, but not until after the biopsy.

He said that our next course of action will be to try a stronger regiment of prednisone and for a longer period of time. But he did say that even if this works, usually it will only be for awhile, and it will come back again, back on prednisone, etc. etc. Basically, he said it will be a chronic, ongoing thing.

So, that's where we are now.......

Hugs!

Karen

Aw Karen you have been through so much and then to run into the pizza guy! Are they making sure the barium they are giving you is gluten-free? Not all are, we found that out the hard way. I hope the prednisone helps, it was one of the few things prediagnosis that did for me. I'm glad they didn't find anything awful but I hope they can give you some relief soon. ((((((((((Hugs)))))))))

bluejeangirl Contributor
bluejeangirl
Posted

Karen, Sorry to hear what the doctor said about being on Prednisone for so long. It would of been nice if the Doctor could of told you more though after going through all that. Don't get it why can't you see through the water,......anyway I don't know what I'm talking about either. I'll be praying for you in June. Keep strong. {{hugs}}

gail

Lisa Mentor
Lisa
Posted

Karen,

Sorry that I am so late responding. Have not been on the computer for several days, as it's been a little hectic here. I know that you are disappointed that no solution was found but your a trooper and I feel that there is one just around the corner. So keep the faith girl.

When you get down, just remember that you are the official God-Mother of our Celiac world. You pick us up when we're down, you cry with us when the tears just come, you make us laugh at ourselves and you have an incredible sence of justice, caring and faith. So cheers to you and that happy husband of yours.

Love ya, Lisa :):):)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Espresso Sea-Salt Brownies (Gluten-Free)

    2. Rejoicephd
      - Rejoicephd posted a topic in Related Issues & Disorders
      0

      Basic metabolic panel results - more flags

      Hey all Has anyone on here experienced any of the following on their basic metabolic panel results ? This is what mine is currently flagging : - low sodium - nearly too low potassium - nearly too low chloride - high CO2 - low anion gap This is now after being nearly gluten-free for over a year (although I admit I make...
    3. xxnonamexx
      - xxnonamexx posted a topic in Related Issues & Disorders
      0

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

      I know I haven't been tested but self diagnosed that by avoiding gluten the past 7 months I feel so much better. I have followed how to eat and avoid gluten and have been good about hidden gluten in products, how to prep gluten-free and flours to use to bake gluten-free and have been very successful. It has been a learning curve but once you get the hang...
    4. knitty kitty
      - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold. Our bodies have difficulty absorbing and utilizing it. Only 30% is absorbed and less can be utilized. There's some question as to how well multivitamins...
    5. Scatterbrain
      - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

      I am taking a multivitamin which is pretty bolstered with B’s. Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol. Started Creapure creatine monohydrate in June for athletic recovery and brain fog. I have been working with a Nutritionist along side my Dr. since February. My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,318
    • Most Online (within 30 mins)
      7,748
    acurn18
    Newest Member
    acurn18
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Basic metabolic panel results - more flags

      By Rejoicephd · Posted

      Hey all  Has anyone on here experienced any of the following on their basic metabolic panel results ? This is what mine is currently flagging : - low sodium  - nearly too low potassium - nearly too low chloride - high CO2  - low anion gap  This is now after being nearly gluten-free for over a year (although I admit I make mistakes sometimes and pay dearly for it). My TtG went down to undetectable. I was so sensitive to so many foods I am now avoiding meat dairy and don’t eat a lot of cooked food in general (raw veggies, white rice, avocados and boiled eggs are my usual go-to meal that doesn’t make me sick). But my abdomen still hurts, i have a range of other symptoms too (headaches that last for days before letting up, fatigue, joint pain, bladder pain). Anyway im hoping my urologist (that’s now the latest specialist I’ve seen on account of the bladder pain and cloudy urine after eating certain foods) will help me with this since he ordered this metabolic panel. But I’m bouncing around a lot between specialists and still not sure what’s wrong. Also went back to the GI doctor and she thought maybe the celiac is just not healed or I have something else going on in the colon and I should have that looked at too. I’m still anemic too BTW. And I’m taking sooo may vitamins daily. 
    • xxnonamexx
      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

      By xxnonamexx · Posted

      I know I haven't been tested but self diagnosed that by avoiding gluten the past 7 months I feel so much better. I have followed how to eat and avoid gluten and have been good about hidden gluten in products, how to prep gluten-free and flours to use to bake gluten-free and have been very successful. It has been a learning curve but once you get the hang of it and more aware you realize how many places are gluten-free and contamination free practices etc. One thing I have read is how soy is like gluten. How would one know if soy affects you? I have eaten gluten free hershey reeses that say gluten free etc some other snacks say gluten free but contain soy and I dont get sick or soy yogurt no issues. Is there adifference in soys?
    • knitty kitty
      Feel like I’m starting over

      By knitty kitty · Posted

      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      Feel like I’m starting over

      By Scatterbrain · Posted

      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      Feel like I’m starting over

      By knitty kitty · Posted

      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.