Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Not Sure If I Can Explain This


Warrior Woman

Recommended Posts

Warrior Woman Rookie

I have been gluten-free for three days. During the 'diagnoses' phases I went gluten-free for two weeks and had the same thing happen to me.

This is going to sound weird-

It feels like something is moving inside of me- as if I was with child (I was once but not now that is why I compare it to that) but the movement feelings are higher, were the rib cage comes together. And it almost feels like my intestines are turning inside out, or as if they are shedding. I warned you it was odd.

Did anyone ever feel like this?

TIA

Lorraine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Smunkeemom Enthusiast

do you have any pain with it or any other symptoms?

Lister Rising Star

i have been gluten free for about 3 weeks now and yes i feel it everyday i explained it as if something was randomly eating me at random spots of my body, does yours also come with wierd unexplaind noises like pops and gurgles that just dont make sense??? i too have no clue what it is but i did find a temporary cure for it but it involvs smoking a illegal substance that can be frownd apon. but it really does work to remove that feeling for a couple of hours atleast. Its whats been keeping going thru these past couple of days as the "movements" have become more frequint

ravenwoodglass Mentor
I have been gluten-free for three days. During the 'diagnoses' phases I went gluten-free for two weeks and had the same thing happen to me.

This is going to sound weird-

It feels like something is moving inside of me- as if I was with child (I was once but not now that is why I compare it to that) but the movement feelings are higher, were the rib cage comes together. And it almost feels like my intestines are turning inside out, or as if they are shedding. I warned you it was odd.

Did anyone ever feel like this?

TIA

Lorraine

Your not nuts IMHO. I used to get this also. I don't know what causes it but I do know that for me it has gone away. It felt like when I was carrying my son and he would move in such a way that it felt like he was kicking me in the stomach from the inside under my ribs. It wasn't painful. I just figured it was gas and that I was feeling the contractions in my intestines. Hopefully others will respond and we will know what causes this but I wouldn't worry too much if it doesn't hurt.

elonwy Enthusiast

I also get movement and gnawing sensations, and incredible noises. People can hear me gurgling from across the hall. On those frowned upon substances, which make my tummy feel so much better, be careful with rolling paper. Many roll your own papers are made from wheat, and zig zag gives me gluten belly. Rizla's are gluten-free, and do not give me bloat.

Just a thought.

Elonwy

ravenwoodglass Mentor
i too have no clue what it is but i did find a temporary cure for it but it involvs smoking a illegal substance that can be frownd apon. but it really does work to remove that feeling for a couple of hours atleast.

While I would never reccommend this for anyone :ph34r: if it wasn't for that substance I never would have survived pre-diagnosis. Now that I am gluten free I no longer need it. You have only been gluten-free for a short time, make sure you check non-food sources for gluten also and that gassy ikky feeling should go away without assistance.

Warrior Woman Rookie

thanks fo rthe replys-

I cant say that there are noises, but more of a movement inside of me, like carrying a child or alien ready to pop out (Although this one didnt come over the border)

There isnt pain per say except that it is uncomfortable sometimes really uncomfortable

And the last time I was gluten-free and went thru this, I went to yoga and when we were streching out, it was like my intestines were a big knot! and by the end of the class I was more loose in that area! How weird!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

This sounds like trapped gas to me. I got this a lot when I was first gluten-free and have had it since when eating something else that I am intolerant to.

Guhlia Rising Star

I got this A LOT when I was first getting sick with celiac (well, classical symptom sick anyway). It started about three weeks after my daughter was born and continued until I was so sick that I couldn't get out of bed. At that point it went away temporarily. I thought that it was just my uterus still having contractions as it felt exactly like end-stage pregnancy(I even had myself convinced that my daughter still had a twin inside me). Anyway, after going gluten free the feeling returned and my doctor told me that it was just excessive gas and intestinal contractions causing the feeling.

LKelly8 Rookie

It's called borborygmus. I once had an "attack" in the middle of class. Everyone was reading quietly, total silence, when all of a sudden this noise came out of my abdomen that sounded exactly like a creaking door opening - right out of a horror movie - I froze for a good ten seconds then fidgeted in my chair like it had made the noise. I don't think anybody bought it!

Here's a link. . .

Open Original Shared Link

Ursa Major Collaborator

Thanks Kelly, at least now we know what it is called.

About eight years ago (before I had a hysterectomy) I had this so often, that I went and had a pregnancy test done, because I totally felt I must be pregnant, even though I really knew I wasn't. I felt very embarrassed when the test came back negative. I now realize that it obviously was caused by celiac disease. Because now I only get it when glutened.

odcdinah Contributor

I have been gluten-free for 6 weeks, and still get these feelings, along with LOTS of noise and gas. You're not alone..

key Contributor

I have the same thing. I feel as if something is "crawling in my intestines"!! It doesn't pain, but it is uncomfortable and very annoying. It seems to be worse at bedtime. It isn't like normal gas passing or anything I have ever experienced. There is no audible noise with mine at all. Mine has been better the past two nights. I started taking digestive enzymes and citrucel twice a day. I think these two things are helping very much. I highly recommend the digestive enzymes. I have never taken them constistantly and now that I am my digestion is SO much better. Oh and I cut way back on my dairy and processed food consumption. I also quit taking the probiotics I was taking that had lactose and dairy in them and now I am taking a dairy free one.

I can relate and was very happy to see that others have experienced this.

Monica

chattykathy Newbie

I experienced it too before I was diagnosed. I could actually lie on my couch and watch my gut roll - lovely sight. Since being gluten free, that symptom has gone away, unless I get inadvertantly glutened.

odcdinah Contributor

Key, what sort of digstive enzymes are you taking? What type of probiotic? Thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    2. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    3. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    4. - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

    5. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,808
    • Most Online (within 30 mins)
      7,748

    mhendy123
    Newest Member
    mhendy123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.