Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Think I Might Have Celiac

Smunkeemom

Recommended Posts

Smunkeemom Enthusiast
Smunkeemom
Posted

i have diarrhea and constipation one or the other all the time -

brain fog depression - tired all the time rash gaining weight fast

my dad- daughter and her two daughters have it

just for info, that's my mom posting under my account up there ^ I was trying to help her register and for some reason the thing signed on under my name, guess I had posted from her house before

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Well, your symptoms sound just like mine before going gluten free. So, yes, in my opinion, there is a very good likelyhood that you have celiac disease, especially with so many people in your family having it. I say, definitely get tested!

Smunkeemom Enthusiast
Smunkeemom
Posted
  • Author

she had the blood test, and it was pos. but the doctor told us that since we weren't losing weight that we didn't have it. I am trying to convince her the doctor was very wrong

CarlaB Enthusiast
CarlaB
Posted

I would agree. Your symptoms sound very suspicious, and with the family history!

Lisa Mentor
Lisa
Posted

Hey Mom:

For me it is very typical after D to have constipation. Brain fog, lack of concentration, in lah-lah-land while driving, which is scarry for me. I would certrainly entertain testing. It would be important to know, so if you are celiac, you can begin to feel better and to ward off other very critical issues.

Glad that you posted and feel free to ask away.

Lisa

CarlaB Enthusiast
CarlaB
Posted

That's a common misconception!!!! Not all celiacs get skinny! There is another thread going on about how to lose weight. Even my doctor admitted learning from me about this disease ... I'm talking about my internist, not the GI who knows everything.

KaitiUSA Enthusiast
KaitiUSA
Posted

Some people gain instead of lose and when they gain usually doctors blow it off. Your symptoms sound like they could be celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted
she had the blood test, and it was pos. but the doctor told us that since we weren't losing weight that we didn't have it. I am trying to convince her the doctor was very wrong

If she had a positive blood test, then she has it! When will doctors realize that we all don't lose weight? As we speak, I would love to lose 20 lbs :D . But seriously, I would take the blood test as proof (not to mention the symptoms, which also point to Celiac), and go gluten-free. Especially with so much of this in your family ;)

Guest nini
Guest nini
Posted

hi mom, you have a positive blood test, you absolutely have Celiac. I did not lose weight before my dx either. I was extremely overweight and since going on the gluten-free diet three years ago, I have lost OVER 100 pounds! Yes you read that correctly! I was dx'ed by my positive blood test along with positive dietary response. I agree, when will these dr.s recognize that not all Celiac's are skinny before dx???!!!!!

wolfie Enthusiast
wolfie
Posted

It is starting to make me really angry that drs dismiss people if they aren't losing weight or having the "Classic" symptoms! The symptoms sound very suspect to me. If the bloodwork was positive, she has it.

On a side note here, I watch a little boy who is almost 2.5. He has had constipation issues from the time he was a baby and has been on a perscription laxative for over a year now. His Mom (my friend) finally requested a second opinion from a Pediactric GI and even though he is in the 95% for height and weight, they are running a Celiac panel on him just to rule it out. I wanted to run over and hug this dr!!! I had to beg our Ped to run the test on my 10 y/o b/c he doesn't have any weight loss issues. He does have stomach, anxiety and possible ADHD issues, though. Sorry to go off on a tangent, but I really wish more drs would look outside of the typical presentation.

penguin Community Regular
penguin
Posted

positive blood test = celiac

no question!!

I'm doing a gluten challenge after being gluten-free for 4 months because I want a biopsy, and I've gained 8 lbs in the past week! :o Not everybody gets skinny, and it is possible to have all of the classic symptoms EXCEPT wasting, or even no classic symptoms at all!

  • 2 weeks later...
Smunkeemom Enthusiast
Smunkeemom
Posted
  • Author

Okay, so her new doctor retested her blood (couldn't find the old results on her medical record) and she tested pos. on her IgA and her ttg and he said that meant she "didn't have it" and said all her symptoms were IBS...

I thought your if the ttg was pos. then you had it, isn't that the specific celiac one?

I asked him and he said that if she had celiac all would be pos. :unsure:

aikiducky Apprentice
aikiducky
Posted

My mouth just fell open when I read that a positive ttg wasn't enough for the doctor!!! AAAArgh!

Could she have a biopsy, positive ttg means there's a good chance of damage, it would be difficult to ignore THAT?

Pauliina

tarnalberry Community Regular
tarnalberry
Posted

I'm tired, so I'm going to be blunt:

her doctor is a moron - your body doesn't produce antibodies to something when it doesn't think it's a problem. she should find a new doctor, try the diet, and listen to her body.

Guhlia Rising Star
Guhlia
Posted

Ewwww.... I agree w/ Tarnalberry... No offense, but that doctor should be canned!!! You absolultely have Celiac w/ results like that. Starting the gluten free diet immediately will help prevent you from doing any further damage on your body. Good luck and please listen to the people on this board about your diagnosis. They know what they're talking about.

loraleena Contributor
loraleena
Posted

Her doctor is a complete and utter idiot! She absolutely should be put on a gluten free diet!!!

Smunkeemom Enthusiast
Smunkeemom
Posted
  • Author
Her doctor is a complete and utter idiot! She absolutely should be put on a gluten free diet!!!

I told her that, and she says "oh, but he went to medical school and took an oath and stuff"

I think she is in denial. I am going grocery shopping with her this weekend though, I will try to suggest gluten free foods, maybe if she see's all the food she can eat, then she will feel better about it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.