Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Megan's Gagging Isn't Any Better


TCA

Recommended Posts

Luvs to Scrap Apprentice

What great news :) ! Praying that Megan will be able to go home ASAP! Kendra


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 882
  • Created
  • Last Reply
VydorScope Proficient

MEGAN UPDATE

MONDAY, JULY 31, 2006 09:47 PM, CDT

Still no fevers! She had her pacing wires removed today, so the only thing she's attached to now is her heart and O2 monitors and the feeding tube (which she was attached to before surgery)!!! The nurse let Cole help with removing the pacing wires, which made him feel very important.

She had a really good day and seems to be feeling so much better than before surgery. One doctor who saw her when we were here a couple weeks ago just kept commenting on the difference. She couldn't believe it. She said it usually takes longer for kids to look good, so we're thankful for that.

A family that at Ronald McDonald House just had surgery today and isn't doing well and had to be put back on the heart lung machine tonight. His name is Will Ray. Please pray for him and his parents, Fred and Amy.

Thanks for everything!

Love to all - Jarod, Tanya, Cole, and Megan Hope

Guest Robbin
:) This is truly a miracle how fast she is recovering. The power of many praying people and her strong little spirit. I will certainly be praying for little Will and Fred and Amy. Thank you for the great news on Megan. Cole is so precious too. What a great little "big brother."
AndreaB Contributor

More great news for Megan! Will add Will to our prayer list.

Judyin Philly Enthusiast

what wonderful new...the best ever and cole helping..wow

One doctor who saw her when we were here a couple weeks ago just kept commenting on the difference. She couldn't believe it. She said it usually takes longer for kids to look good, so we're thankful for that.

Love and hugs

judy in philly

VydorScope Proficient

WOW!!!!

kristi (8/1/2006 10:23:14 AM): Guess what! Tanya just called about 45 minutes ago and said that they might be discharged today, or tomorrow at the latest!!!!

And then from the site...

TUESDAY, AUGUST 01, 2006 10:38 AM, CDT

Megan continues to do so well. We are so blessed. On doctor said we may even get to go home today, but probably by tomorrow at least. I'll let you know as we find out more.

Hugs!

TCA

WOW!!!!!

GFBetsy Rookie

I'm so glad! We keep you all in our prayers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

¡wow!

that's such good news!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

¡yay!

Cheri A Contributor

[WOW! That's great news!!

schuyler Apprentice

WHOOO HOOOO!!!!!!!

I will be saying lots of prayers for Will and his family.

I just found this on Megan's site:

Tanya asked me to do an update... they are going home today!!!! Praise God. She said it will most likely be later on before they are released but they are going home today.

Cotrena

key Contributor

Tanya and family,

So happy that Megan will go home so soon! That is wonderful she is feeling so much better. I am sure it is such a relief to have her playing again and smiling.

Will pray for the little boy Will that isn't doing well. I stayed in R. McDonald house when my son had surgeries. The greatest part is having other families that are going through the same thing you are and can totally relate and it makes you feel as if you are not alone.

Take care,

Monica

mouse Enthusiast

that is such GREAT news that Megan is going home today. I bet everyone will be glad to be back home - including Megan. Love, Hugs and Prayers.

DingoGirl Enthusiast

good news!!! hallelujah! :rolleyes:

AndreaB Contributor

Such great news and I'm sure a relief for all of you to be heading home. :P

evie Rookie
good news!!! hallelujah! :rolleyes:

Wonderful news!! You will all feel better in your home!! Megan has to be a strong girl to come through so fast, the Dr., am sure is confident she will be better at home. Prayers for her and the boy will. :) evie

jerseyangel Proficient

Yea! :D It'll be so good for you all to get home.

VydorScope Proficient

Sorry I have nto been home most of the day.. heres the last update on her site...

TUESDAY, AUGUST 01, 2006 12:03 PM, CDT

Tanya asked me to do an update... they are going home today!!!! Praise God. She said it will most likely be later on before they are released but they are going home today.

Cotrena

Judyin Philly Enthusiast

TANYA

HAVEN'T BEEN ON LINE MUCH BUT JUST SAW THIS AND SO HAPPY YOUR HOME. THE VERY BEST NEWS EVER! I HAD CK'D AND HEARD YOU MIGHT BE GETTING 'SPRUNG' WHAT A STRONG LITTLE ANGEL YOU HAVE ALONG WITH THE REST OF YOUR WONDERFUL FAMILY.

PRAYERS HAVE BEEN ANSWERED AND NOW IT'S JUST HEALING TIME...AT LEAST SHE WON'T BE LIFTED BY HER ARMS AT HOME...OIE

LOVE

JUDY IN PHILLY

Fiddle-Faddle Community Regular

Welcome home, Megan! Hang in there, baby Will and parents--we're all praying for you!

Guest Robbin
Welcome home, Megan! Hang in there, baby Will and parents--we're all praying for you!

Yes, :) wonderful news!! Amazing little girl coming home so soon! Baby Will-we will not forget you :)

Cheri A Contributor

:D YAY!! Our Megan is going home! Thank you Lord!!

Will still pray for baby Will!!

Nic Collaborator

I am so happy that Megan is coming home. It is so funny to have never met this family, yet even my family knows about them. My sister asked yesterday, "how is that baby doing?". :P

Canadian Karen Community Regular

Thank God our little Megan is hope safe and sound...... God Bless her! I am so overjoyed at her recovery!

Hugs.

Karen

nikki-uk Enthusiast

Oh great news!,I always think kids recover much quicker at home amongst familiar things.

Alot less stressful for Mum and Dad too!! :)

I am so happy that Megan is coming home. It is so funny to have never met this family, yet even my family knows about them. My sister asked yesterday, "how is that baby doing?". :P

My husband asks everday ''How's baby Megan today!''

:)

Daxin Explorer

Excellent news!!! Welcome home Megan!!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Rejoicephd's topic in Related Issues & Disorders
      1

      Basic metabolic panel results - more flags

    2. - trents replied to xxnonamexx's topic in Related Issues & Disorders
      1

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

    3. - Rejoicephd posted a topic in Related Issues & Disorders
      1

      Basic metabolic panel results - more flags

    4. - xxnonamexx posted a topic in Related Issues & Disorders
      1

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,319
    • Most Online (within 30 mins)
      7,748

    Mamadook07
    Newest Member
    Mamadook07
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I have many of those same CMP irregularities from time to time, with the exception that my potassium is always normal. What I can tell you is that it is normal for everything not to be normal when you get a CMP done. I used to get a CBC and CMP done annually and there were always some things out of spec. Docs don't get excited about it for the most part. It depends on the particular parameter (some are more important than others) and it depends on how far out of range it is. Docs also look for trends over time as opposed to isolated snapshots of this or that being out of spec at any given time. Our body chemistry is a dynamic entity. 
    • trents
      Not sure what you mean by "soy being like gluten". Soy does not cause a celiac reaction. However, soy is one of the foods that many celiacs don't tolerate well for other reasons. Eggs, corn and dairy are also on that list of foods that many of those with celiac disease seem to be sensitive to. But that doesn't mean that all celiacs are sensitive to any one of them or all of them. It just means it's common. You may not have a problem with soy at all. Celiac disease is not a food allergy. It is an autoimmune response to the ingestion of gluten that creates inflammation in the small bowel lining that, over time, damages that lining.
    • Rejoicephd
      Hey all  Has anyone on here experienced any of the following on their basic metabolic panel results ? This is what mine is currently flagging : - low sodium  - nearly too low potassium - nearly too low chloride - high CO2  - low anion gap  This is now after being nearly gluten-free for over a year (although I admit I make mistakes sometimes and pay dearly for it). My TtG went down to undetectable. I was so sensitive to so many foods I am now avoiding meat dairy and don’t eat a lot of cooked food in general (raw veggies, white rice, avocados and boiled eggs are my usual go-to meal that doesn’t make me sick). But my abdomen still hurts, i have a range of other symptoms too (headaches that last for days before letting up, fatigue, joint pain, bladder pain). Anyway im hoping my urologist (that’s now the latest specialist I’ve seen on account of the bladder pain and cloudy urine after eating certain foods) will help me with this since he ordered this metabolic panel. But I’m bouncing around a lot between specialists and still not sure what’s wrong. Also went back to the GI doctor and she thought maybe the celiac is just not healed or I have something else going on in the colon and I should have that looked at too. I’m still anemic too BTW. And I’m taking sooo may vitamins daily. 
    • xxnonamexx
      I know I haven't been tested but self diagnosed that by avoiding gluten the past 7 months I feel so much better. I have followed how to eat and avoid gluten and have been good about hidden gluten in products, how to prep gluten-free and flours to use to bake gluten-free and have been very successful. It has been a learning curve but once you get the hang of it and more aware you realize how many places are gluten-free and contamination free practices etc. One thing I have read is how soy is like gluten. How would one know if soy affects you? I have eaten gluten free hershey reeses that say gluten free etc some other snacks say gluten free but contain soy and I dont get sick or soy yogurt no issues. Is there adifference in soys?
    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.