Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Megan's Gagging Isn't Any Better

TCA

Recommended Posts

KayJay Enthusiast
KayJay
Posted

What great news! That is amazing I thought they said she would have to stay 6 weeks! Just amazing!!!

My dh ask about her all the time too :D We are just one big family in this small world :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 882
  • Created
  • Last Reply
Luvs to Scrap Apprentice
Luvs to Scrap
Posted

So glad you are home! Will continue to pray for smooth and quick recovery. :) Kendra

TCA Contributor
TCA
Posted
  • Author

Thanks everyone for the welcome home!!!! Meg is doing well, just fussy. Her incision site is itching and she's trying to scratch it. Just called the surgeon and he said benedryl cream would be ok to try and that seems to be helping. Things are busy around here, but I hope I can start joining in around here more now.

Each of you have been such a blessing over the past few months. I never imagined when I started this thread looking for answers what it would turn into. Thanks seems such a meager way to express my gratitude for each prayer and encouraging word. Just know that even if you are my "virtual friends", as my husband jokes, you are some of the best friends a person could ever have. May God bless each of you as he has our family.

Love,

Tanya

Nic Collaborator
Nic
Posted

Tanya,

I am glad everything went so well. I know I seem stuck on this but how is the gagging? If she is still doing it, it must be hard on her with here incision.

Nicole

Lisa Mentor
Lisa
Posted

Much love to you and your family.

Lisa

VydorScope Proficient
VydorScope
Posted

YAY!!!!!!!!!! :D:D:D:D:D:D

This calls for a new smilie likethis one!

Click here to see it!

EDIT: Fixed link :)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I couldn't access the smilie :( It said, "FORBIDDEN."

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Judyin Philly Enthusiast
Judyin Philly
Posted

:( I couldn't access the smile either but Vincent you 'ROCK'

THAT SMILE SAYS IT ALL.... :lol:

WELCOME BACK LISA.

THANKS FOR KEEPING US ALL INFORMED.

WE LOVE YOU ALL AND ESP OUR 'LITTLE MEGAN'

JUDY IN PHILLY

VydorScope Proficient
VydorScope
Posted

Sorry try this link instead..

CLICK ME!

MEGAN UPDATE

WEDNESDAY, AUGUST 02, 2006 01:18 PM, CDT

Sorry I haven't updated earlier, but it's been a whirlwind! We got home safely last night. Megan's been really fussy from being sore, but is doing great. I gave her a warm bath this morning that seemed to relax her, being careful of her incision, of course. She is doing so good, though. We are truly blessed beyond measure. She is gaining weight so rapidly now. She's well over 18 lbs. now! She's outgrown her clothes since being admitted to the hospital, but she still has plenty that she hadn't been able to wear yet! She's so pink.

Her gagging is back with a vengence. I spoke with her GI before leaving the hospital yesterday and he thinks it's just from recovering from surgery. He wants to try her on formula alone, so we're slowly transitioning her to that to see if that will help. After a week, she should be on straight formula, then we can start trying to feed by mouth again, but only 1 new food every 7 days since she has shown so many intolerances. According to how feeding goes, we can start backing off the feeding tube. Please pray for the GI issues to resolve as she heals. This is the next major hurtle she has to face.

Thank you so much for carrying us through this time with your prayers and constant support. It is amazing how many friends and dear family members we realize we have now. So many of you have written in the guestbook, sent e-mails, packages, cards, and gifts. It's the love behind each of those things that we treasure. Know that each of you have a special place in our hearts.

Love to all - Jarod, Tanya, Cole, and Megan Hope

DingoGirl Enthusiast
DingoGirl
Posted

Very good update - except for the gagging part. Oh I do pray this resolves itself soon....but good to be home, isn't it?

Vincent - excellent smiley :)

TCA Contributor
TCA
Posted
  • Author

Vincent - LOVE the smiley. I think it's actually a picture of me as we left the hospital yesterday!!!! ;)

As you read, the gagging is still bad. I still have hopes it will improve. Made a followup with the GI today for 8/23. I'm going to think positive and say that by then the gagging will be gone and we won't have to worry about it! I'm so excited to be able to try to start foods with her next week. She's starting to act like she wants to eat, so I'm very hopeful. If the gagging stops on Neocate alone, then that will indicate there is a food issue, even though the scope was negative. If it continues, I will do the sulfite free thing and put her on breast milk alone for a while. Tried to at the hospital, but it was hopeless in that environment. I was just glad to be able to stay gluten, egg, and milk free.

Canadian Karen Community Regular
Canadian Karen
Posted
My husband asks everday ''How's baby Megan today!''

:)

Mine too! :lol:

Karen

Cheri A Contributor
Cheri A
Posted

Continuing to pray for Megan's healing and the gagging issue.

VydorScope Proficient
VydorScope
Posted

UPDATE!

THURSDAY, AUGUST 03, 2006 07:09 PM, CDT

Just wanted to let you all know that Megan had another great day. She's only needed pain medication once today. Her gagging has been a little better too. She has had a lot of problem with bile building up in her stomach and that seems a lot better today. Hopefully the gagging being worse was just a side effect of surgery causing digestion to slow. I see slight improvement and am overjoyed at that! I'm sure she will continue to improve.

mouse Enthusiast
mouse
Posted

Thanks Tanya for the great update. Still praying for the continued improvement.

jerseyangel Proficient
jerseyangel
Posted

I think about Megan every day--so happy to see that she's continuing to improve! :) Tanya, thanks for continuing to keep us updated--I know you're busy ;)

schuyler Apprentice
schuyler
Posted

Glad Meg's doing better! I hope her gagging improves soon.

key Contributor
key
Posted

So glad you are home again! Praying Megan's gagging continues to get better. Hope you are getting some rest.

Monica

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Just checking in on you, and adding my thoughts and prayers to everyone else's...

Judyin Philly Enthusiast
Judyin Philly
Posted

I'm just ck'n in too to see if any news on Megan.

HOpe all is progressing well esp with the gagging..

love

judy

Canadian Karen Community Regular
Canadian Karen
Posted

Also just checking in on "Our Little Meg"........ The updates sound wonderful!

Hugs.

Karen

Guest Robbin
Guest Robbin
Posted
:) Great news! So glad you are home and I hope you are able to rest, Tanya. How is little Cole now that sister is home? He sure is a little trouper too. Megan is always in my prayers, as all of you are. Thank you for the updates.
VydorScope Proficient
VydorScope
Posted

MEGAN UPDATE

FRIDAY, AUGUST 04, 2006 09:16 PM, CDT

Megan in improving each day. Her gagging seems to be getting back to normal. Not that that's great, but at least it's improving!!! It cooled off a little here today and we got her outside some this afternoon, which she loved. Jarod had his chainsaw out cutting some trees and she happily watched Daddy labor away. From a distance, of course. She only took a 5 min. nap all day long. She's just so afraid she will miss something. She was out by 7 pm. That's a big change from sleeping 6-8 hrs. during the day before surgery. She pulled the steristrips off her chest tube scars today, so hopefully they've healed enough for that! Her chest scar is so clean. It healed even better this time than last time. An unexpected improvement is that her eczema is better with the improved blood flow. Who'd thought that would make a difference? I'm still praying hard that her GI issues will resolve on their own. We'd appreciate your prayers for the same thing! We know you people get results! ; )

Hope you all have a great weekend!

Judyin Philly Enthusiast
Judyin Philly
Posted
MEGAN UPDATE

Thanks Vincent-so happy Tanya

This was the sweetest and most encouraging post so far...

Prayers will continue for you all

love and hugs

judy

mouse Enthusiast
mouse
Posted

The news from you Tanya, is getting better everyday. Of course we will all continue to pray. Can't desert our little Megan. Prayers and many Hugs for continued good news.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.