Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Something Is Not Right


Guest BERNESES

Recommended Posts

Guest BERNESES

Thanks everyone... getting a little frustrated as I "did" the test on Monday and still haven't gotten the results. Ugh! Still feeling oogy but hanging in there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 69
  • Created
  • Last Reply
Guest BERNESES

Well... it's C Diff- shocker after what happened in the bathroom this morning. :P

They gave me Flagyl 500 mg 3 times a day for 10 days. Let's hope the cure isn't worse than the disease. And the flagyl BETTER be gluten-free.

oceangirl Collaborator
It is very hazy, hot and humid in Orono and this weekend I had what I thought was allergy-induced fever, nausea, headache, fatigue and all that wonderful stuff. Turns out that there's a nasty bug going around.

Antibiotics and I are not very good friends.

Garlic and lavender oil!

Garlic and lavender oil!

Of course, not together and if your son isn't doing better on those...

Anyway, glad to see another Maineuh!

:)

Miles2go,

Hi!!! I just saw your post-thank you. I graduated from UMO in 1980! I love Orono! Nice to hear from another Mainer! What a great state we have, eh? Take good care.

lisa

Guest BERNESES

Hey you Mainers- stop hijacking my thread :P .

Actually, I'm totally kidding. I LOVE Maine and made several trips up to Orono when I was an undergrad at UNH. Close friend graduated from there in '87. Fun school!!!!!!!!!!!!!!

penguin Community Regular
Well... it's C Diff- shocker after what happened in the bathroom this morning. :P

They gave me Flagyl 500 mg 3 times a day for 10 days. Let's hope the cure isn't worse than the disease. And the flagyl BETTER be gluten-free.

Well, that blows (probably literally :ph34r: ). Hope it's not too bad for you!

Guest BERNESES
Well, that blows (probably literally :ph34r: ). Hope it's not too bad for you!

Dude- You KILL me. Actually, you have no idea how bad it blows. :P Let's just say Old Faithful.

oceangirl Collaborator
Dude- You KILL me. Actually, you have no idea how bad it blows. :P Let's just say Old Faithful.

Berneses-

Sorry! And hope you're feeling MUCH better soon!

lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lymetoo Contributor

I hear ya loud and clear. I'm not feeling so hot myself. I would continue taking probiotics, but make sure they are gluten free. I've had trouble with Primal Defense, and I don't think they are gluten-free AT ALL.

Check into PB8 and Theralac. Check them to make sure they are OK. I just got dxd, so I haven't checked those yet.

PB8 can be found at www.vitacost.com for about 40% off. Theralac is only at www.theralac.com Sorry if this sounds like an advertisement. My goal is to help you!

Here is some info on systemic yeast that may help as well.

Candida diet and elimination:

Open Original Shared Link

Open Original Shared Link

"Successful control and elminiation of a Candida Albicans overgrowth requires a multifaceted program as described below. Failure to follow ALL the steps simultaneously will result in slow progress and will lengthen healing time significantly. The program should be tailored to the individual and must balance the need to eliminate the Candida and deprive it of its food source while insuring proper nutrition for the individual."

Five Steps to Candida Elimination:

1. You must starve it into submission by eliminating its food source.

2. You must kill it with anti-fungal herbs and supplements. [e.g....garlic, onion, caprylic acid, Pau D'Arco capsules or tea, clove, grapefruit seed extract, olive leaf extract, oil of oregano, tea tree oil, Echinacea, Goldenseal, black walnut, MSM, barberry root, uva ursi, neem leaf, biotin]

3. You must reestablish the proper balance and quantity of probiotic bacteria in the digestive tract. [...multi-strain lactobacillus acidophilus and bifidus capsules with FOS should be taken between meals to maximize repopulation of the digestive tract by beneficial bacteria.]

4. You must reestablish proper levels of all B vitamins (yeast free) and utilize other immune enhancing supplements to boost immune system function. [e.g ... B complex vitamins (yeast free), biotin, beta 1-3 glucan, colostrum, maitake mushroom, vitamins A, C, E, zinc and selenium]

5. You must cleanse and heal the digestive tract to promote proper elimination of toxins and Candida and assimilation of nutrients. [e.g...chlorophyll, MSM, omega 3 fatty acids found in flax seed and salmon oils, GLA found in borage, evening primrose and black currant oils. Pantothenic acid, digestive enzymes between meals]

Feel better soon!! :)

StrongerToday Enthusiast
Dude- You KILL me. Actually, you have no idea how bad it blows. :P Let's just say Old Faithful.

As my dr. once asked me when trying to describe my D "is your a$$ like a fountain" :lol::lol:

DingoGirl Enthusiast
Dude- You KILL me. Actually, you have no idea how bad it blows. :P Let's just say Old Faithful.

OMG Bev, it is C. Diff! I guess I feel a mixture of relief and pain for you - - and yes, I DO happen to know how it blows...like a fire hydrant, as I recall....you poor thing! I do hope you feel better soon....the Flagyl is very powerful stuff....keep a watch for other symptoms caused by THAT (like you don't have enough to worry about)....

Hopefully you'll be feeling better veyr soon, but, it IS good to know that it's not something you're eating, at least...

hugs!

Guest BERNESES

OMG- You guys are soooooooooooo awesome and funny! Lyme too- Thank you for all that info. It's all good to know. Does your user name mean you have Lyme's disease too? Ugh!

Thanks for cracking me up and giving me great advice! B

Rachel--24 Collaborator

Beverly,

That sucks but I'm glad you found out. The Flagyl is gluten free. I took the generic Metronidazole. It was the worst 2 weeks ever. I couldnt wait for it to be over. I never actually retested to make sure if it was gone or not after the antibiotics but you reminded me to do this. I'm in the process of retesting now. Good luck with the Flagyl!

jerseyangel Proficient

Hi Bev--I am one of the few that took the metronidazole and had no problem with it. It was years ago, and I remember the doctor telling me just not to drink any alcohol while I was on it--it would make me vomit. I hope your experience will be as uneventful as mine was! :)

Guest BERNESES

Thanks for your replies. So far so good. Still feel poopy but no more so that this a.m. Just want this thing outta me!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Lymetoo Contributor

Yes, I have Lyme too. Ugh. I'm mostly over it, but it will always be there, causing trouble when I least expect it. :o

I'm glad you liked the info on yeast. I've dealt with it alot.

As for flagyl. Not my favorite. Took months and months of it for Lyme. It works on "cysts" which the Lyme bacteria create. Hard to explain and i'm sure you'd rather not hear it!! ;)

Hope tomorrow is a better day!

Guest BERNESES

Well... today seems aa little better. I slept MUCH better last night which always helps. I am just drinking a ton, taking my probiotics, eating very bland and unprocessed. I feel better but I still have D which is OK as I'm getting the toxin out.

Lymetoo- That stinks. Lyme disease is horrible. Glad it's mostly over for you. It's pretty prevalent in the Northeast where I live because we have such a large deer population. My sister-in-law's sister had it and was on IV antibiotics for a LONG time. Very sick. She's all better now and getting ready to have her first child. :D

jerseyangel Proficient

My husband had Lyme Disease last month. He was due to leave on a trip, and I noticed a round rash on his arm with a red bite mark in the center. I told him he should get it checked out before he left--he then told me he had been having a stiff neck, and headaches(!) Long story short, it was caught early, and 3 weeks of Doxycycline cleared it up. Although the first week or so on the meds, he was absolutely exhausted all the time. He was lucky, one of his cousin's daughters who lives in Mass. has Lyme, and has been on IV antibiotics for a long time now--she's having a rough time.

Bev--good to hear things are going better! :)

Judyin Philly Enthusiast

BEV, WOW I TURN MY BACK FOR 5 DAYS AND C-DIFF APPEARS :ph34r::o:blink::o:blink:

i'M SO VERY SORRY BUT GLAD YOU FOUND THE REASON.

HOW IS THE FAGEL (?) DOING WITH YOU??????

ARE YOU ABLE TO TOLLERATE IT?

GOSH, YOU NEED A BREAK TOO.

HOW IS HUBBY DOING??

HOW LONG DO YOU HAVE TO BE ON IT? GLAD PATTI CAN TELL OF A GOOD EXPERIECE ON IT.

LET'S HOPE IT 'RUNS IT COURSE' AND IS 'OUTA THERE ASAP!!!! ;)

KEEP IN TOUCH OK.

HUGS

JUDY

Guest BERNESES

You know, honestly, I was expecting much worse but the Flagyl seems to have kicked in and the D has stopped. I'm starting to feel better, still tired but able to eat more. Only problem is I'm going from D to C which is bad because I need to get this stuff out of me and I'm getting a yeast infection. :ph34r:

I'm on it for 10 days. I think I have 6 days left. I'll tell you though- these things are horse pills and they taste like cement (well- I've never actually tasted cement but this is what I imagine :P ).

I think I lost like 10 pounds in 10 days (the hard way).

Hubby is doing MUCH better. starting to relax a bit and not worry that every time he has a twinge in his body that he's having another stroke. He's angry that it happened to him which I think is normal but now I think he's starting to move on.

Things WILL get better. :huh::D

amber-rose Contributor

I'm new to this Celiac's disease. I've probably had it for half my life, but I actually just got diagnosed with Celiacs 5 months ago. I'm am 14 almost 15.

I changed my diet completely, but was still having problems. I decided to take a look at the vitamins I was taking, 2 out of the 3 vitamins I was taking contained gluten!! I was suprised, so I had to find a different brand that didn't contain gluten. Also my family and I share the same butter and mayo (they don't have Celiac's), just the crumbs in the butter and mayo made me have problems. Even just gum. Hope this helped! :)

-amber

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,602
    • Most Online (within 30 mins)
      7,748

    Victor bowden
    Newest Member
    Victor bowden
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.