Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going To Orlando, Fl!


Guhlia

Recommended Posts

Guhlia Rising Star

Okay, so my friend calls me on Sunday and tells me that she and her boyfriend are going to be in Orlando, FL this weekend. They begged me to come join them, offered up their spare bed in the hotel room and everything. I'm very scared of flying, and have certainly never flown alone. I bought my plane tickets this morning while my two-year-old was throwing a tantrum. Now I'm scared out of my mind. My husband has never been left alone with our daughter and I've only ever travelled gluten free ONCE before so I'm certainly not an expert. Someone please calm me down!!! I'm freaking. (did I mention that I'm a little bit of a flake?)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beaglemania Rookie

Calm down. I know there's a couple of people who have gone to Orlando before and I know somebody lives in Orlando too, I believe.

Guhlia Rising Star

Don't get me wrong, I LOVE Orlando. It's my favorite place to travel. I'm just freaking out cuz it's my first time travelling alone.

samking72 Rookie

YEAHHH! I live in Orlando!! There's plenty of places to eat down here, and a great health food store in Winter Park! I drive 40 minutes to go there. As far as flying, you'll be fine. I fly Orlando-NY almost every 2 months to visit family. These guys know what they're doing ;) I don't want to freak you out by saying this but it usually works... if anything is going to go wrong during a flight it will happen within the first minute and a half. After that- smooth sailing!! Well, the nice weather is waiting for you! Have a great flight and i hope you enjoy your stay here!

Guhlia Rising Star

samking -- do you know which places can do the safest gluten free meals? I'm thinking that their hotel room will probably be in the i-drive area and they'll likely want to do touristy food (as long as there's a bar on site, i'm sure they'll make do). any clue if bahama breeze can accomodate a gluten free meal? that was my favorite restaurant down there pre-diagnosis. We usually go down once a year. We won't have a rental car or anything, so we'll probably have to stay relatively close to that area. Any help would be GREATLY appreciated.

Also, do they search your person when entering theme parks or is it just your bags? Like, could I get away with stashing a Lara bar in my pocket?

samking72 Rookie
samking -- do you know which places can do the safest gluten free meals? I'm thinking that their hotel room will probably be in the i-drive area and they'll likely want to do touristy food (as long as there's a bar on site, i'm sure they'll make do). any clue if bahama breeze can accomodate a gluten free meal? that was my favorite restaurant down there pre-diagnosis. We usually go down once a year. We won't have a rental car or anything, so we'll probably have to stay relatively close to that area. Any help would be GREATLY appreciated.

Also, do they search your person when entering theme parks or is it just your bags? Like, could I get away with stashing a Lara bar in my pocket?

Disney will search your bags and I have brought food in the parks before. I think it's just Animal Kingdom that you can't bring outside food in. You may want to put it in your pocket just in case because they have heightend security a bit over the past few months.

Outback, Carrabba's Italian Grill, Bucca De Beppo, Don Pablo's is a good bet when it comes to eating out. I've never had a problem at any of them and they all have decent gluten-free menus. Not sure about Bahama Breeze. You might want to call them and check. The Bee Line Diner on I-drive doesn't have a menu but they are very accomodating there. Great staff/manager/chef. Shula's steakhouse is great too. Again, no menu but great meals there too. That's on Epcot Resorts Blvd. Have a great time!!

Guhlia Rising Star

Thanks so much for all the great info! Any place very close to Orlando (we have no car) that carries gluten free beer? I'm dying to try some, no one carries it in PA.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dionnek Enthusiast

Do a search on Disney World here and you'll find great information on food in the parks. I think the website www.allearsnet.com is a great one for celiac info. I've heard wonderful things about Disney and how they have gluten-free food in the parks (and I think they will let you bring in some of your own - but not a cooler - for medical reasons - check on this thoough).

Samking, what is the name of the health food store you go to in Winter Park? My sister lives in Lake Mary (near WP), and I visit a lot, so I think I'll have her check this place out and stock up on some food for me :)

samking72 Rookie

The food store is Whole Foods Market an Aloma Ave / Fairbanks near Rollins College.

I'm not sure about the beer, i don't drink (mostly because of age) I'll keep an eye out though for ya :)

floridanative Community Regular

If there is any way possible for you to get your group to Seasons 52 for dinner, I highly recommend it. The gluten free fare is listed only on the servers pda's but it's worth that little hassle. You have to choose a couple of different thing that would appear gluten free and the server looks it up in the pda for you. They have the best wine selection in Orlando. I can't wait until they open here next month! Have a great trip and no matter what the airline says, take plenty of your own food for both flights so you don't starve.

Guhlia Rising Star

I have no clue if they'd be receptive to going anywhere outside of the touristy area. Where is Seasons 52 located? I leave early Friday morning. Luckily the flight is only 2.5 hours, so I probably won't need much in the way of snacks. I have a bag packed full though just in case.

Guhlia Rising Star

Well, I made it regardless of the recent events. :-) Boy was I nervous though. We ended up going to MGM Studios (which from my recollection was pretty lame) and it was absolutely amazing. I guess they added new stuff since I was there a couple years ago because I had a really good time. I had excellent meals both at Planet Hollywood in Downtown Disney and at the 50's PrimeTime Cafe. The chef at the Prime Time Cafe actually came out and spoke to me. He went over the entire menu with me. It was wonderful, and not too expensive. All in all, we had an absolute blast. I'm so glad I went. Thanks again to everyone for the ideas and the support.

samking72 Rookie

OOO I'm so glad you had a great time!! At least the weather held out for you! We could use the rain though, those brush fires are starting up again. MGM has gotten better. Thank god for that! I used to hate that place too! Did you catch the Stunt Show? And the Rockin' Roller Coaster? I love Aerosmith and rollercoasters so you can't go wrong there! I'm going to their concert in September in NY and can't wait. I've seen them 5 times now but there is not such thing as too much Steven Tyler! Lol! Well, hope you come back soon!

  • 1 year later...
njbeachbum Explorer

so i am in orlando for a conference for work from sunday thru thursday.... was excited to see that so many places on the disney properties are so accommodating for gluten free diners....

anyway, i went to shula's steak house at the WDW Dolphin hotel.........wow, great meal and they were very understanding of the gluten free deal. the server even came out after talking to the chef and said that they had some gluten free bread in the freezer that they could bring out for me before the meal! great first meal in orlando :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.