Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did You Gain Weight Back?

Guest ~jules~

By Guest ~jules~
in Related Issues & Disorders

Recommended Posts

Guest ~jules~
Guest ~jules~
Posted

When all this started, in one summer I went from a size 9 in jeans, to a size 3. Now, I am wondering have any of you gained any weight back since your loss, and diagnosis? I could stand to gain a few pounds but I'm not looking for anything drastic..Just curious how it happened for others...Julie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfp Enthusiast
gfp
Posted
When all this started, in one summer I went from a size 9 in jeans, to a size 3. Now, I am wondering have any of you gained any weight back since your loss, and diagnosis? I could stand to gain a few pounds but I'm not looking for anything drastic..Just curious how it happened for others...Julie

Gained it back and then some.... and then some more..... and more.

Don't know American sizes but I was a 26" waist and 44" chest and went from that to a 36" waist in about a year...

and about 128 lbs to 190lbs. (male 5'10") in about a year.

The moral is keep tabs on it.... I was just so enthusiastic about being able to eat without being ill I carried on eating what I had before. When I was a kid 14 or so I actually had a special plate (a serving plate) and my mother eventually gave in and gave me two plates for dinner but I was still the 2nd smallest in my class (regardless of school??) and in the bottom 5% for weight. When I was at uni (putting 4" on my chest I used to count my calories ... and I wouldn't gain anything under 9000 a day so I was probably still eating 7000 a day when my villi healed and man did the weight go on fast.

It took a lot of hard work to get down to a 30" waist and in doing so I lost 2-4" of muscle of my chest. (which took a lot of effort to put there in the 1st place) ...

Now whatever I do I cannot get below a 30" waist... which is kinda OK.. but Ive been down to 2% bodyfat (by caliper, not immersion) and still my waist never goes below 30"... having said that my bladder seems to hold a lot more

I would be interested in peoples opinion of this...

Is it possible at 25-26 that I hadn't completely developed internal organs due to undiagnosed celiac or that they were being held in?

If I relax on exersize or diet for a short time my weight shoots back up....

Daxin Explorer
Daxin
Posted

I am only now (4 months in) gaining back SMALL amounts of weight. I lost almost 40 lbs before my dx. It may take more time, and I am usually patient.

I guess we'll see. I hope you begin to gain some back and feel better.

CarlaB Enthusiast
CarlaB
Posted

I'm 5'8" and weighed 136 when I got sick. I dropped 15 pounds, got scared about it and started eating tons of food, about 3 times as much as my 6'2" husband. It was not unusual for me to eat out at a place like Outback, then come home and make myself a second meal ... I still eat much more for my size than I probably would under normal circumstances ... and I now weigh a little under 130. I lift weights, not machines, the free weights as heavy as I can and still get the reps and form right ... I think that helps keep me healthy looking instead of just skinny.

jerseyangel Proficient
jerseyangel
Posted

I've always run about 15-20 lbs over what I would like. Two years ago, when I got very sick, one of the things that particularly worried me was that I lost 15 pounds in a short time--while still eating normally. Normal for me then was a lot of carbs--especially baked things.

When I went back to the doctor for my 2 month follow-up after the biopsy, I had already gained back 10 lbs! The doctor was not surprised in the least. I've gained back a few more, which I'm now in the process of trying to lose gluten-free!

One thing that I'm noticing is that since I've been eating primarily natural foods (very few processed), my weight is slowly going down, but my clothes are fitting better. Yesterday, I tried on a couple pair of jeans--my best barometer!--and they fit so nicely. Last spring, they had been getting a little tight.

Guest ~jules~
Guest ~jules~
Posted

I also work out. I run 3 to 4 times a week, and do light resistence training. I agree that instead of looking like the walking stick I became, I actually defined my muscles, so it wasn't that bad. I also didn't know what was going on with me, so I kept working out. I am glad that I did the whole time I was sick because I truly believe that it helped me with stamina. There were days though where there was no way in the world I was going running! I am starting to feel better now, and I am hoping that I gain about 5 lbs, because I am a bit too thin I think. Besides everyone keeps telling me all the time! Ugh don't you ever get sick of that! I think its incredibly rude to comment on someones weight, thin, or chunky, unless asked. :angry: It just amazed me the weight I dropped, I have been the same size since I was 14 years old, then all the sudden poof! I was a skeleton, it really scared me. :unsure:

CarlaB Enthusiast
CarlaB
Posted

I found that I had to reduce cardio a little in the beginning, but I continued on with weights. If you tried to increase your weight workout and decrease your running till you gained weight back, you may get it back faster. I'm not saying cut it out entirely, but I used to do 40 minutes, and just cut down a bit from there.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest ~jules~
Guest ~jules~
Posted

Lol, thats funny I cut back from 45 to 30 just now. After I was dx, I took the whole week off though and rested. I just got started again because I'm feeling better. Thanks for the advice! :D Julie

CarlaB Enthusiast
CarlaB
Posted

Don't get discouraged if you have to take a week off here and there. I was doing cardio and weights regularly, then about 3 weeks ago, had to cut out cardio because I've had NO energy, but continued doing weights for another week. The past two weeks, I haven't been able to do either. It seems that there are ups and downs in the healing process.

Carriefaith Enthusiast
Carriefaith
Posted

I gained most of my weight back within 6 months on the gluten-free diet.

Rikki Tikki Explorer
Rikki Tikki
Posted

My experience is that I was so ill when finally diagnosed, I am 5' 7" and had dropped from about 135 to 115 and looked awful. I went gluten-free and still didn't really put on any weight. Then about 7 months ago I quit smoking and am now up to 132 and looking for it to slow down. Mostly because none of my clothes are fitting! But, yes I did get really tired of people commenting on how thin I was, it was like I knew but people kept mentioning it :angry::angry::angry:

I have been walking between 3 and 4 miles a day but still putting on weight. Before I never exercised and didn't gain a pound. Any ideas on how to firm things up without actually losing any weight?

CarlaB Enthusiast
CarlaB
Posted
Any ideas on how to firm things up without actually losing any weight?

Weight lifting. You can get a personal trainer for a session or two to get you started.

jerseyangel Proficient
jerseyangel
Posted
Any ideas on how to firm things up without actually losing any weight?

Pilates is also very good. :)

CarlaB Enthusiast
CarlaB
Posted
Pilates is also very good. :)

Yea, I mix that in on "core" day.

Kaycee Collaborator
Kaycee
Posted

We are all different. I would love to loose a bit of weight. Are there any takers?

But on the positive side, I have not gained any since going gluten free, and that makes me happy.

Cathy

Guest ~jules~
Guest ~jules~
Posted

I'll second the weight lifting, and you don't have to join a gym to do so. Just go to your local sports equip. store and start with some 5 and 8 lb free weights. After awhile you can increase the weight if you want more bulk, I have been using those two sizes for a long time now, I like being toned, not buff! lol.. For my legs I do lunges and squats, and some legs lifts, this all works for me....

eleep Enthusiast
eleep
Posted

I had to cut out cardio for a while as well. What helped quite a bit was substituting more Ashtanga yoga than usual -- although I stuck with doing it at home because I wanted to stick to the pace that was best for my body and not have to worry about keeping up with a class.

eleep

KaitiUSA Enthusiast
KaitiUSA
Posted

I was able to gain it back but it took a while

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748
    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      A little about me and my celiac disease

      By trents · Posted

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Gluten Free Coffee

      By Peace lily · Posted

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.