Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fear

cowrdlyon

Recommended Posts

cowrdlyon Rookie
cowrdlyon
Posted

I was diagnosed 3 weeks ago with Celiac Disease thru blood tests. It's been a challange to change my eating habits and diet but my wife has been incredibly helpful and supportive. I have to have an Endoscopy and a Colonoscopy and I'm absolutely terrified!! I can't quite decide if I'm more afraid of the procedures themselves or the possible outcomes. Has anyone else been thru this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mle-ii Explorer
mle-ii
Posted

Honestly I was terrified about the procedure and a bit about the outcome. Turns out the prepwork was the most terifying part in the end. (Ha ha, pun intended ;) ) The outcome was not quite what I wanted as it turned out to be a rare disease (Lymphocytic Colitis) of which we know very little. But it did turn out for the positive. I found out that gluten can be a trigger and thus after removing gluten I got a lot better.

jerseyangel Proficient
jerseyangel
Posted

Hi--welcome to the board! :)

I had both tests done on the same day last year. I was also very nervous and afraid of the tests themselves, and of the outcome--I have a family history of colon cancer, so that was on my mind.

Turns out, there's really nothing to worry about regarding the tests--the prep for the colo is by far the worst part. I was completely out for the procedures, and I don't remember anything after the IV went in. I woke up feeling fine (but thirsty), and was able to leave shortly afterward.

Good luck with everything--don't worry too much, it'll be fine ;)

jenvan Collaborator
jenvan
Posted

Hi! I've had both and they are not bad... The worst parts are being hungry b/c you can't eat ;) and just the *annoying* prep for the colonoscopy...but no need to be scared, although I understand being so! These procedures pretty much go without a hitch for the vast majority of folks. Good luck and hope its over soon so you don't have to think about it anymore! :) Think of the peace of mind having both can give--that you will know exactly the state of things in there and can find any other issues...and also have a starting point to track your celiac with.

Guest ~jules~
Guest ~jules~
Posted

The liquid diet is the worse thing, oh and the IV depending on how you feel about needles. I don't remember anything, and nothing felt weird afterward....

sspitzer5 Apprentice
sspitzer5
Posted
I was diagnosed 3 weeks ago with Celiac Disease thru blood tests. It's been a challange to change my eating habits and diet but my wife has been incredibly helpful and supportive. I have to have an Endoscopy and a Colonoscopy and I'm absolutely terrified!! I can't quite decide if I'm more afraid of the procedures themselves or the possible outcomes. Has anyone else been thru this?

I'm having both of these done next week. I'm not as terrified about the procedure itself, but I am concerned about being able to drink all the icky stuff. I'm not good at getting myself to drink stuff that tastes bad. :( I guess I am a little concerned about the outcome. Weird as it sounds, I might actually be glad if they find something since at least I'll have a more definitive answer on a few symptoms and can start making forward progress.

S

Kat-Kat Newbie
Kat-Kat
Posted

I was 16 when they were done one me. To make it light my DR. looks at me and says, now you can tell everyone you have seen the LIGht ALL THE WAY THROUGH. I did not think it was as bad as a spinal tap. So think of it as an answer I hope you are more than 16

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lindalee Enthusiast
lindalee
Posted

I haven't had one so let us know how it is. Hope yours turns out well. :)

Guest dreams25
Guest dreams25
Posted

Hey don't be scared both of the procedures are ok the liquid before colonoscopy is the worst part i had a gastrocopy done and a biopsy taken, and at least you will know.

I think half the battle with this disease is the not knowing, and wondering why you feel so sick.

I had a pacemaker put in 2 years ago and that was much worse than either of these..

Be brave it will be ok

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748
    Nina J
    Newest Member
    Nina J
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.