Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can I Ask For A Prayer Too?


TinkerbellSwt

Recommended Posts

TinkerbellSwt Collaborator

If anyone can say a prayer for my son I would greatly appreciate it. Tomorrow we head back to CHOP to see his cardiologist. He has a dialted aorta and we are hoping that he is growing into it. If he isnt he either will get put on medication, he will get a beta blocker, or if its too bad he will have to have the surgery.

My poor baby has gone thru so much already. I am praying that he doesnt need medication or surgery.

Thank you in advance to all of you who can include him in your prayers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouse Enthusiast

Of course I will put your son into my daily prayers. Good Luck with the doctor appt.

jenvan Collaborator

Stephanie--

I will pray. That's a lot for a little guy to handle...

jerseyangel Proficient

I'll say a prayer for your son--sending good thoughts and a hug your way :)

jennyj Collaborator

Your son and family will be in my prayers. I believe in prayer.

TCA Contributor

You, him, and the rest of your family will be in my prayers. I really do understand. Feel free to PM me if I can help in ANY way. My daughter just had her 2nd open heart surgery, so I'm here if you have any questions or anything.

brizzo Contributor

my prayers are with you and your family! May God's blessing be upon you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judyin Philly Enthusiast

You got it Stephanie.

judy

BamBam Community Regular
If anyone can say a prayer for my son I would greatly appreciate it. Tomorrow we head back to CHOP to see his cardiologist. He has a dialted aorta and we are hoping that he is growing into it. If he isnt he either will get put on medication, he will get a beta blocker, or if its too bad he will have to have the surgery.

My poor baby has gone thru so much already. I am praying that he doesnt need medication or surgery.

Thank you in advance to all of you who can include him in your prayers.

I will put him on our church prayer network, there are dozens of people praying every evening for the intentions that come through. I will also includ him in my prayers also.

Bernadette

Green12 Enthusiast
If anyone can say a prayer for my son I would greatly appreciate it. Tomorrow we head back to CHOP to see his cardiologist. He has a dialted aorta and we are hoping that he is growing into it. If he isnt he either will get put on medication, he will get a beta blocker, or if its too bad he will have to have the surgery.

My poor baby has gone thru so much already. I am praying that he doesnt need medication or surgery.

Thank you in advance to all of you who can include him in your prayers.

Stephanie, you and your son will definitely be in my thoughts :) I am hoping the appointment goes well tomorrow, please keep us posted.

lindalee Enthusiast

Stephanie, I will keep you all in my prayers. LL

evie Rookie

[stephanie; I am sorry you are all going tru such a rough time, include my prayers for you, son and the Dr. tomorrow. Hope all works out smoothly/ not too much more anxiety. I will pm/ you if you like. :) 'God is good' evie

Guest Robbin

:) I will be happy to pray for you and your son. The little guy has had enough, that is for sure. Little Megan is living proof of the power of prayer-bless her.

Please, everyone pray for our evie too . God bless her too.

Rachel--24 Collaborator

Stephanie,

Of course....I'll be praying for that adorable little boy of yours.

Fiddle-Faddle Community Regular

Prayer said!

If it helps any, we were told this year that our son (who had open-heart surgery at 9 years ago) that he now has a dilated aorta and mitral valve prolapse. This was told to us by the doctor who replaced the cardiologist who had taken care of him since he was 7 weeks old.

We went back to the old cardiologist (who had moved 2 hours away), who disagreed with the new cardiologist. He said that since DS had had open-heart surgery through the aorta, it was expected that it appear slightly dilated, but that even so, he wouldn't call it a dilated aorta. He also went over measurements and definitions and explained in great detail why he didn't think DS had mitral valve prolapse, either.

Perhaps your cardiologist is being ultra-cautious? It might not hurt to get a second opinion. Our DS's cardiologist is in Danville,PA--pm me if you'd like his name--we've always thought he was wonderful. Good luck!

:) I will be happy to pray for you and your son. The little guy has had enough, that is for sure. Little Megan is living proof of the power of prayer-bless her.

Please, everyone pray for our evie too . God bless her too.

COuld you update me on evie? I'm a little out of the loop, I'm afraid...

tiredofdoctors Enthusiast

The power of prayer is an amazing thing . . . consider me on the prayer list -- may your family be blessed with the healing of your son.

TinkerbellSwt Collaborator

OK.. we are back from the doctors. Took a long time. The cardiologist said he is fine. The dialated aorta is still there, but on the Z scale ( um not quite sure what that is ) Colin is at a 3. A dangerous level is a 6 or more. He has been hanging on a 3 for a while now.

He had a rough time with the ultrasound. He was great in the beginning. Just watching the tech and seeing the screen, watching his heart beat. Then all of a sudden he started to cry out, such a heart wrenching cry, I almost started to cry. I just wanted to pick him up and comfort him. I am sure all you mothers out there know how I felt. Even though there is no pain in the procedure. He was scared and it ripped me to shreds.

But its all over. We dont have to go back to the cardiologist for 6 months this time! The first time was 3 months, the second 4 months, now 6!! moving right along!

Fiddle- I dont know how you did it with your child. I give you such great credit for going thru what you did.

I know how a sick child can make you feel and its a tough thing to go thru.

Thank you to everyone who said a prayer for Colin. Obviously they all helped!!! :)

Fiddle-Faddle Community Regular

You're doing pretty much the same things I did--go to the doctor, get nervous, fall apart when the baby cries, etc.

Did you ever find out why he cried?

TinkerbellSwt Collaborator

No, he just got upset. He didnt like being held there I imagine. When he was just a baby, 3 months early, he was a lot more cooperative with all their procedures. Now that he is getting older he realizes what is going on around him. And he just plain old doesnt like it!!!

Judyin Philly Enthusiast

Now that he is getting older he realizes what is going on around him. And he just plain old doesnt like it!!!

HI Setef...smart kid i'd say. glad the apt is over and it went well esp with the Chillies.

judy

Lymetoo Contributor

Will do!!

evie Rookie
OK.. we are back from the doctors. Took a long time. The cardiologist said he is fine. The dialated aorta is still there, but on the Z scale ( um not quite sure what that is ) Colin is at a 3. A dangerous level is a 6 or more. He has been hanging on a 3 for a while now.

He had a rough time with the ultrasound. He was great in the beginning. Just watching the tech and seeing the screen, watching his heart beat. Then all of a sudden he started to cry out, such a heart wrenching cry, I almost started to cry. I just wanted to pick him up and comfort him. I am sure all you mothers out there know how I felt. Even though there is no pain in the procedure. He was scared and it ripped me to shreds.

But its all over. We dont have to go back to the cardiologist for 6 months this time! The first time was 3 months, the second 4 months, now 6!! moving right along!

Fiddle- I dont know how you did it with your child. I give you such great credit for going thru what you did.

I know how a sick child can make you feel and its a tough thing to go thru.

Thank you to everyone who said a prayer for Colin. Obviously they all helped!!! :)

So glad your appt went as well as did. Colin just did not like the looks of that place, old enoigh now to notice

things like that. Did you know we have a way here of sending out prayers that really help?? :o Hope you are OK too!! evie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.