Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is The Sky Falling?


Mtndog

Recommended Posts

Mtndog Collaborator

I haven't been on in awhile and my account got deleted. But I'm baccckkk!

I just need to vent here. I just can't believe some of the things that people I know and care about are going through right now. We found this week that my good friend and old neighbor has such a rare form of blood cancer that there is NO name for it????????????WTF?????????????? It has spread to his lungs, stomach, colon and liver but since it's this unknown type of blood cancer that they can't even stage him and they have no idea what his prognosis is.

Then tonight, one of my friends in graduate school, who I had emailed for support because I'm having my exam defense on Monday and I thought I was stressed out, let me know that her baby (she's 4 months pregnant) has severe heart valve problems so they are seeing a specialist at Children's Hospital on Monday.

what is going on? I keep thinking things have just got to calm down for awhile and they never do.

Sad.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Sorry you've got so much stress right now, that you're friend's not doing well, and about your other friend's baby. Wow, sure seems that when it rains, it pours, doesn't it?

Mtndog Collaborator

hi carla- It's me! beverly. good to see your smiling face. how have YOU been feeling?

jerseyangel Proficient

Bev--I'm so sorry to hear of all this. It just dosen't seem fair sometimes....

elye Community Regular

Ah, Beverley, it really does pour for you...I always think of you being such a comfort to others, and boy, you are the one who needs it the most! I'm thinking of you....

{{{{{{{{{{{{{hugs}}}}}}}}}}}}}}}}}}}}

Lisa Mentor

Hey B:

Good to hear from you. Lord knows, when it rains, it pours sometime. And it take a strong person to work things out. As we get older, unfortunatly, we will see more of bad things happening to good people. Who was it that said "life is not for sissies".

I hope that everything will settle down for you and hoping for strengh for you in helping your friends during a terrible time in their lives.

xxoo - Lisa :):)

CarlaB Enthusiast
hi carla- It's me! beverly. good to see your smiling face. how have YOU been feeling?

I knew who you were!!! :D Even without the picture!

Thanks for asking about me ... I've been taking my chinese herbs, seeing the acupuncturist, eating five meals a day featuring protein and veggies, avoiding caffeine, sugar, and alcohol, getting lots of rest, and I'm finally feeling better. I'm not 100%, doc says it'll take a year to get to where I should be, but I feel much, much better than I did. I'm still spending a lot of time around here ... it's just too boring to get all the rest I'm supposed to be getting!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mtndog Collaborator

Thanks everyone- I always think of that book "When Bad Things happen to Good People". have any of you read it? It really is wonderful.

Carla- I'm glad you're feeling better- that's good. see, there IS good news!

Judyin Philly Enthusiast
As we get older, unfortunatly, we will see more of bad things happening to good people. Who was it that said "life is not for sissies". xxoo - Lisa :):)

I so agree ...guess as we age, our friends do too and thus... :ph34r::unsure: we all start falling apart ;) and so do they.

I'm so sorry about your friends and your tool. gosh you've had a hard streak..Your still in my prayers.

how is your hubby doing? and you belly button? ;)

Carla B..glad your finding some answers and enjoy that HOT TUB that is my dream..

love to you both.

judy

DingoGirl Enthusiast

aw Bev...... :( You really do need a time of just....good things and peace. Your friends...what they need is miracles.

Nice to see you and I truly hope things calm down for you soon.

mouse Enthusiast

Hi Beverly. I will pray for you to have the strength to help you through your friends illness' and also strength to help them as much as you can. As you know, life can be much more then difficult at times. Many Hugs for you.

tiredofdoctors Enthusiast

Hey Bev -- I'm sorry you're having such a crappy time. How was your doctor's appointment? (Had to throw that in quickly, sorry.) It's really hard to know why such horrible things happen. I SURE wish I had the answers. All I know is that the Big Guy and I are going to have a REALLY long talk when I get there . . . . He has some 'splainin to do . . . . .

Please know that you are always in my thoughts and prayers, but will be EXTRA in the next few days.

Love & Hugs,

Lynne

Mtndog Collaborator

Oh it's so good to SEE my peeps here! It's been so long. elye- YOU guys are the ones that are comforting!

Lynne- I can just hear you now when you get to the Pearly Gates (A VERY VERY VERY LONG time from now) "Hey Big Guy, you got some 'splainin to do" (in your best Ricky Ricardo voice twinged with a Southern accent). How the heck would that sound?????????????? :ph34r:

My belly button is fine but the darn surgeon cancelled my appt on friday for emergency surgery so now I can't get in to see him until NEXT Friday. Apparently, someone up there thinks that I need to walk around longer with this thing sticking out. it doesn't hurt anymore though, so that's good.

DingoGirl- How are you?????? I saw some tazorac cream in my in-laws bathroom and thought of you. Ouch!

Hugs to all, B

mouse Enthusiast

Beverly, I am sorry to get off topic. But, your photo is great. You are certainly beautiful and such a nice smile.

Mtndog Collaborator

Hi Sweetie!!!!!!!!!!! Aww shucks, thanks for the compliments. I've been trying to get that photo up here for so long because I was so HAPPY when it was taken. We were out on Orcas Island in Puget Sound and my hubby had just taken me out for a romantic dinner of gluten-free seafood and wine. It was a lovely night!

Judyin Philly Enthusiast
I've been trying to get that photo up here for so long because I was so HAPPY when it was taken. We were out on Orcas Island in Puget Sound and my hubby had just taken me out for a romantic dinner of gluten-free seafood and wine. It was a lovely night!

LOVE THE NEW PICTURE TOO.

THIS ROMANTIC DINNER SURE AGREE'S WITH YOU.

HOPE YOUR DOING BETTER WITH THE BELLY BUTTON..AT LEAST DOESN'T HURT..HOPE YOU CAN GET IN SOON.

SO YOU HAD TO GO BACK IN AND START FROM SCRATCH...BUMMER .... :ph34r: WISH SCOTT COULD HAVE JUST PUT THE OLD INFO AND POST HISTORY BACK UP.

HAVE A GREAT DAY...MISSED HEARING FROM YOU

LOVE

JUDY

CarlaB Enthusiast

So, how are you feeling? Have you found a new place to live yet?

I love the new pic!

Judy, we got a sauna, not a hot tub ... so I'm not living your dream! I do love it though.

Mtndog Collaborator
So, how are you feeling? Have you found a new place to live yet?

I love the new pic!

Judy, we got a sauna, not a hot tub ... so I'm not living your dream! I do love it though.

Oh my gosh! I'd take the sauna too! They really are good for you.

I'm feeling better with a few blips here and there- I legumed myself to pieces the other night when I ate 4 Reese's pb cups. I was stressed out, they were here and I thought "oh maaybe it was just the apartment." Wrong! I was in screeching joint pain the next day and LEARNED my lesson. I've realized that I don't "truly" have FMS- but my legume intolerance sure does a good job of mimicking it. :ph34r:

The persistent nausea, D and all that has totally cleared up. it's so strange- we went back yesterday to try and finish panicking and after 3 hours I felt nauseous and my hubby broke out in a cold sweat- I had forgotten ALL about that symptoms of hiss. He never has them anywhere else. So we had to ditch.

He's back up there today with his brother and our downstairs neighbor doing more packing. I had to beg out because I have to defend my PhD Qualifying Exam tomorrow (the one I took back in June). YIKES! :ph34r:

It's for the best though because yesterday when I walked in, I found that our landlord has started patching up the celilings (where I suspect the problem lies) while our stuff was still in there. i cannot express HOW ANGRY I am aabout it. We are paid through sept 30th and he never even asked to enter the apartment, never mind do work. There were paint chips all over the kitchen.

But we did find a place to live. It's aa 3 bedroom house with a big back yard for less than we were paying in NH. I'm seeing visions of puppiesrunning about!

nikki-uk Enthusiast

Bev,I'm so sorry you are having such a rotten time.

Seems there's alot of hard times going on with our members lately :(

BTW-luuurve the new photo-looking good!!

:):)

Edit:Glad you guys have found a new place!(Puppies!!!!)

CarlaB Enthusiast

That's really funny/strange about the apt. making both of you sick! That's great news about the house, about the FMS being legume intolerance, and that you don't have to help move :P . See, you have some good news thrown in there, too!!

Yea, we got the sauna for the health benefits. We live in a 90 year old house and the master brm. is a finished attic. Adam's closet opened into the unfinished part of the attic where there were windows, so we had just finished that room and a new closet for him, which left his old closet for the sauna. It fits perfectly! This morning I put jojoba oil on my hair and got a sauna and hot oil treatment all in one! I'm really loving it. It's also very relaxing.

DingoGirl Enthusiast

Yes, Bev, awesome photo....and a new place....and PUPPIES!!! Yes, some little Bernese puppies....we need new dogs on the board here, the Dingos do get tired of chasing after everybody....

SO glad you found a new place! I think I"ve written about my House of Terror on this board before...had to move into parents' for three months and every time I'd go back home would have major D....so crazy....but I think the house was haunted and that was the problem...the new girl who bought it sold it after a year, the next-door-neighbor told me that no one lived there longer than a year of year-and-a-half :ph34r: SCARY

BTW what is wrong with your belly button? seems everyone knows but me!

Mtndog Collaborator

I have a herniated belly button- YUCK!!!!!!!!!!!

Yes- I agree...more dogs... I was at the house we're renting today doing some cleaning and I sat in the baackyard dreaming of a big fluffy one bounding through the snow this winter!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

WAIT- HOUSE OF TERROR? i haven't heard about it? Do tell what you mean!

nikki-uk Enthusiast
WAIT- HOUSE OF TERROR? i haven't heard about it? Do tell what you mean!

Yeah-come on Susan-DETAILS!!!!!

:o

AndreaB Contributor

Beverly,

Wow! There is a lot going on for you. I guess I have my answer from the R2 thread.

Good luck with your test tomorrow.

I'm so glad you are out of that apartment. Sounds absolutely awful. Be sure to keep us posted on how your doing AND when you get those pups. :P

DingoGirl Enthusiast

oh you guys....House of Terror is an awful, awful story...don't want to take over this thread....actually would require more like a book to tell what happened and how it changed my life - no, changed ME forever - and not in good ways.

(edited - I posted about it and then TOOK IT OFF!!! it's Bev's thread!!) :)

Yes -Bev - puppies, bounding through the snow!! that's what you need!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    3. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,842
    • Most Online (within 30 mins)
      7,748

    aetherwax
    Newest Member
    aetherwax
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.