Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Gluten Free Help Hair Loss?

danikali

By danikali
in Related Issues & Disorders

Recommended Posts

danikali Enthusiast
danikali
Posted

Wow! First I want to say I don't think I have posted here for like 4 or 5 months?! Crazy considering I used to live on here, all day long every single day of my life before and right after being diagnosed? Anyone remember me? hahah

Anyway, I have a question for my fiance. He has been loosing his hair this past year.....not bald, but you can def. see a difference in it. Anyway, he also has had, and for a while might I had, much of the celiac symptoms. But of course he won't get tested for ANYTHING unless he is dying, so I convinced him to try gluten free for at least 2 months. So to my surprise, he actually IS doing it! Anyway, he's always had the 'D' problems, and always has some kind of weird rash on his, uhem.....backside, hahaha.......and many muscle pains throughout his whole body, the list goes on. Been to doctors, but they never say anything. He used to think he was lactose, but we all know how that goes.......anyway, I was just wondering if anyone has ever heard of going gluten free and it reversing hair loss.?

It's been 2 weeks and his hair iiisss looking a lot better, but he also is taking vitamans now and using conditioner because I told him dry hair breaks easily and he was only using shampoo. Anyway, if you have any thought, I'd like to know!

Good to be back to my celiac family, too!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi Dani :)

Of course I remember you! Welcome back :)

I know that if a person isn't absorbing nutrients, it's possible it could affect his hair. I lost quite a bit of hair when I was anemic.

I think the vitamins are a good idea for him--and it's great that he's on the diet! Let us know how he does :)

ravenwoodglass Mentor
ravenwoodglass
Posted
Wow! First I want to say I don't think I have posted here for like 4 or 5 months?! Crazy considering I used to live on here, all day long every single day of my life before and right after being diagnosed? Anyone remember me? hahah

Anyway, I have a question for my fiance. He has been loosing his hair this past year.....not bald, but you can def. see a difference in it. Anyway, he also has had, and for a while might I had, much of the celiac symptoms. But of course he won't get tested for ANYTHING unless he is dying, so I convinced him to try gluten free for at least 2 months. So to my surprise, he actually IS doing it! Anyway, he's always had the 'D' problems, and always has some kind of weird rash on his, uhem.....backside, hahaha.......and many muscle pains throughout his whole body, the list goes on. Been to doctors, but they never say anything. He used to think he was lactose, but we all know how that goes.......anyway, I was just wondering if anyone has ever heard of going gluten free and it reversing hair loss.?

It's been 2 weeks and his hair iiisss looking a lot better, but he also is taking vitamans now and using conditioner because I told him dry hair breaks easily and he was only using shampoo. Anyway, if you have any thought, I'd like to know!

Good to be back to my celiac family, too!

It has reversed it for me. The bad news is that whenever I get glutened again that the hair loss returns for a couple weeks then stops again. I had to also check my shampoos and conditioners and such but it has helped. I take a strong vitamin specifically for hair and skin, gluten-free of course. If his loss is from gluten it will probablly grow back but it does take a long time. If his hair loss comes from male pattern baldness though I don't think it will make a difference.

Matilda Enthusiast
Matilda
Posted

...

danikali Enthusiast
danikali
Posted
  • Author

Wow! I'm so happy you guys remember me! And Matilda, yes, you're right about how I got diagnosed! You've got a good memory!

Anyway, his hair is looking A LOT better. But I was just thinking, and this is the reason that he is try to change bad habits (just eating healthier for one)........my theory is that we all have a specific gene for 'bad' things. For example, some people have the gene for obesity, some for celiac disease (yeay! ha), and some for hair loss.....etc. etc. Well, I think it ALL comes down to what we put in our bodies, and nutrients and everything. The person who is obese wouldn't be AS big if they ate right, even though their cousin, or even parent, doesn't have to watch it at all and they are rail thin (I've seen this), and people with Celiac Disease can't eat gluten, (and from what I've learned, need to eat completely healthier ALL AROUND, not to be sick), and for someone with the hair loss gene, well, they wouldn't be completely bald if they ate the right, healthy foods......it might not be as thick as the pantene pro-V models, but it would not dissappear. I don't know, that's my theory. I've been so into health ever since this whole thing happened. (2 and 1/2 years ago exactly-probably longer, but more serious in the past couple years). I watch Discovery Health any chance I get, I read any health article I can get my hand on, I was even thinking about going to get my doctorate in Naturopathic medicine......anyway, thanks for your replies.

Oh, since I brought up Discovery Health chanel, I wanted to bring this up. Probably wrong thread, but oh well. There was this little girl who had 'something' wrong with her. She couldn't gain weight and grow no matter what the doctors tried to figure out. (they still don't know til this day, or at least the end of the program). Well, they didn't bring up any testing for celiac disease, but that's besides the point right now. You'll NEVER GUESS WHAT THEY WERE HAVING THIS GIRL EAT TO GAIN WEIGHT!!!!! Go ahead, guess!

100% JUNK FOOD!!!!!!!!!!!!! FRENCH FRIES, CANDY, CAKE, HAMBURGERS, CHIPS, ANYTHING AND EVERYTHING PROCESSED, HIGH CALORIC AND UNNNNNNNHEALTHY! Can you believe this?!?!!? I was practically crying for this girl while I was on the couch.....my fiance was like, what is wrong with you?! I was like THEY ARE SO STUPID!!!! Okay, I'm not going to assume she had celiac disease, but COME ON! If you want to give the girl high calorie foods, AT LEAST GIVE HER HEALTHY ONES!!!!! Here is this little unhealthy, not growing, body not working right, girl............and they are shoving chemicals and man made junk in her mouth!!!!!! Actually, I was crying!!!!!!!! I could cry now! This is what really made me think seriously about getting my Phd. in Alternative medicine. How could things like this happen!?!?!

Okay, way of subject, I could go on forever, but isn't that just the most insane thing you ever heard?!?!!?!!?!?!!?

I'll be back soon to chat with you guys! I miss my Celiac home!!!!! You guys really are like family to me. It's sounds weird, but it's true. You are like my sisters and brothers (okay, mostly sisters) on here. More like my twins! (Or whatever insane number we would all be! haha)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

      Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
    2. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    3. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    4. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    5. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,418
    • Most Online (within 30 mins)
      7,748
    kristitullos219
    Newest Member
    kristitullos219
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.