Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Development-nothing To Do With celiac disease

debmidge

Recommended Posts

debmidge Rising Star
debmidge
Posted

I am opening up this topic as these are our two choices as to

what Mike may have (yes, he belongs to the "Ailment of the Month" club - each month a new and exciting disease! Only $29.99 to join!, Each new month you get a new condition to deal with! The fun part is you never know what it could be and you find such enjoyment discovering the medical specialists in your area. Who needs vacations when you can be a member of "Ailment of the Month club"! Exciting medical procedures, vists to hospitals and delicious new prescriptions to take! You'll be the envy of all your friends..so be the first in your group to join "Ailment of the Month" club!)....

Ok, sarcasm over....but what I want to talk about is:

1) anyone have these conditions? (I realize it's a "man's disease" but please wives, if you know somethingp please chime in. As a wife, I usually am the one who ends up listening to the doctor and I then filter the info to my husband at home while he's muttering and swearing under his breath over the new dilema).

2) how did you handle the diagnosis?

3) what meds did you get? which ones are gluten free? Does Proscar really take 6 mos to start working?

4) did you have any surgergies or procedures to alieviate the Benign enlarged prost.?

5) how are you doing now?

I apologize for opening up a serious thread here, but I am really scared to the point I can't eat. I am going to make appointment for urologist for Mike (he went to GP and GP just did a urine test and brushed us off - told him to see urologist, which is for the best, but had I known we would have went to urologist first. GP didn't even do a PSA nor a physical exam, if you know what I mean :huh::ph34r::o

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


spunky Contributor
spunky
Posted

I don't really know much about it but my dad keeps his under control by taking the herb, saw palmetto. He's done this for about 10 years now.

Hope things work out and he improves soon.

TriticusToxicum Explorer
TriticusToxicum
Posted

I don't have any answers for you, but I'm sure somebody on here has some insight. Here's a little "bump" to keep this where people will see it.

I hope you find the answers you're seeking.

CarlaB Enthusiast
CarlaB
Posted

You're definately going to want to get a PSA. My dad had prostate cancer last year and had his prostate removed. Fortunately, it was all in the prostate and no further treatment was necessary. They can tell so much from the PSA, I definately think he should have it done, it will also settle your own mind a bit. Dad did tell me waaayyyy TMI!!! He says he's starting to feel like, um, activity is returning.

Edit -- don't worry, he'll be fine!

jerseyangel Proficient
jerseyangel
Posted

Deb--I wanted to offer support--and say that the PSA is vital. My husband has been getting one yearly, along with a prostate exam for a while now--they draw blood anyway during his physical every year. Glad you're getting him into a urologist.

My dad had prostate cancer about 11 years ago. He had the prostate removed, and although the operation and recoperation was a little rough on him at that age (69 then), he's fine today.

I'll be thinking about you guys--please let us know :)

CarlaB Enthusiast
CarlaB
Posted
Deb--I wanted to offer support--and say that the PSA is vital. My husband has been getting one yearly, along with a prostate exam for a while now--they draw blood anyway during his physical every year. Glad you're getting him into a urologist.

My dad had prostate cancer about 11 years ago. He had the prostate removed, and although the operation and recoperation was a little rough on him at that age (69 then), he's fine today.

I'll be thinking about you guys--please let us know :)

My dad was 69 for his, too. It was a tough couple weeks for him afterward, but he did fine after that.

Rachel--24 Collaborator
Rachel--24
Posted

Debbie,

I dont know anything about this so I cant tell you anything useful but just wanted to say how sorry I am for all that you and Mike have had to deal with. Stay strong and I'll be keeping both of you in my prayers.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiredofdoctors Enthusiast
tiredofdoctors
Posted

Debbie ---

And yet, ANOTHER condition to deal with. You are in my thoughts and prayers. I don't see how you do it, my friend . . . . .

Benign Prostate Hypertrophy is pretty common in men -- moreso if they've had a vasectomy, for some reason. As far as treatment, don't know much about that. I agree a PSA is an absolute -- regardless of his age.

My father was diagnosed with prostate cancer 13 years ago. They told him he had little more than 6 months to live . . . . he's 72 and will working. He did the radiation treatment (direct radiation, not the implants), takes Lupron shots once a month and I believe takes Eulexa (?) every day.

Oddly, he told my cousin, who was 39 at the time, to make sure that beginning at age 50, make sure he got a PSA done every year. My cousin got freaked out, insisted that his doctor do a PSA -- ended up with Prostate Cancer. He had his prostate removed, don't know if he had any other treatment (really didn't feel comfortable asking -- he's my cousin), but he's fine, as well.

debmidge Rising Star
debmidge
Posted
  • Author

Mike's last PSA was done during Jan 05 and it was a low normal number....he skipped getting one in 2006; so he's due.

I don't know - if this turns serious prostrate probem - if he is strong enough for the harsh chemo/laser or radioactive treatments. He's very frail (he's only 56 years old).

My current quest it to find out if meds like Proscar are gluten free and what brand of saw palmetto is gluten-free; info like that.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.