Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone See An Allergist For Intolerances?


Guest AutumnE

Recommended Posts

Guest AutumnE

Enterolab mentioned three dr's in my area that are very familiar and recognize enterolab results.

First one is a really nice allergist, I saw her dad for years for my allergy problems.

Second one is a pediatrician about a half hour away, will be 2 hours away when we move. Not accepting of our insurance so basically out of the picture.

Third one is a specialist md in intolerances and allergies, holistic approach, but not covered and very expensive which we cant afford right now.

Basically my only option is the first one. Has anyone seen an allergist for possible intolerances or do they do just allergies?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGluGirl Contributor
Enterolab mentioned three dr's in my area that are very familiar and recognize enterolab results.

First one is a really nice allergist, I saw her dad for years for my allergy problems.

Second one is a pediatrician about a half hour away, will be 2 hours away when we move. Not accepting of our insurance so basically out of the picture.

Third one is a specialist md in intolerances and allergies, holistic approach, but not covered and very expensive which we cant afford right now.

Basically my only option is the first one. Has anyone seen an allergist for possible intolerances or do they do just allergies?

Dear AutumnE,

As far as I know, most Allergists only handle allergies. They can test for food allergies, but skin tests only check for Immunoglubulin E. Just because someone does not have a skin reaction, does not mean that they are not allergic or sensitive to something. Insurance is a pain in the tuchas about this. The good doctors like holistic physicians are not always covered by them. These people are usually the ones that know about sensitivities and allergies more.

Sincerely,

NoGluGirl

ravenwoodglass Mentor

Most allergists do not deal with intolerances, however there is the rare bird out there who does. I was diagnosed by an allergist through an elimination diet. It took quite a bit of looking and calling but I was fortunate and found one. He did the typical skin tests then formulated a nutrient complete starting point for the elimination diet and I called weekly with my reactions. Wheat was the second thing I tested and when I called him with the results of the wheat trial this very wonderful man said "I thought so" and referred me to a GI for confirmation of the celiac. I then continued with the elimination diet for a couple more months to check for other intolerances. I would be dead by now if not for this man and I send him a card or two a year to thank him. If your allergist will help you with an elimination diet I would go to the allergist.

jerseyangel Proficient

Hi,

I sought the help of an allergist when I started getting symptoms again after several months on the gluten-free diet. I did call around to the allergists in my area that were within my insurance. Some I spoke to did not deal in food allergies at all.

But, the one I did choose to see was wonderful. He tested me for a slew of foods via skin scratch. Then, he advised me to follow an elimination diet to figure out what foods I was intolerant to.

I asked him about blood testing for intolerances, but he said they tend to produce a lot of false positives because once we eat a particular food, we create antibodies to it. He said that most people end up doing an elimination diet anyway.

I find the elimination was well worth the time--as long as I avoid the foods I'm sensitive to, I feel well most of the time.

Helena Contributor

Allergists don't generally deal with intolerances, but it is good to get checked out to make sure that the "intolerance" isn't an allergy . . . My allergist put me on an elimination diet . . he sort of supervised it, but I didn't find him to be of much help during the diet. (He is helpful about other things.) For one thing, the diet is what clued me in to the fact that oats were causing problems for me. (I was already diagnosed with a wheat allergy.) Perhaps we could have caught the celiac disease earlier.

Anyhow, I do think you should go . . . but don't expect too too much. The most helpful resource I've found is: _Dealing with Food Allergies_ by Janice Vickerstaff Joneja, PhD, RDN. she provides a detailed guide to elimination diets (and mentioned a lot of stuff that my allergist didn't----like my allergist had me cut out corn, but didn't tell me that table salt has corn in it (in the form of dextrose). Dr. Joneja explains that you need to be on sea salt during the diet.) Also, she explains a whole range of food intolerances as well as allergies.

kbtoyssni Contributor

I've just been arguing with my insurance over this one. I want to get tested for casein intolerance. They won't pay for something like enterolab and say I have to go to an allergist but it's not an allergy so I can't find an allergist who will do the testing... They're getting another call from me on Monday. I might get the food allergy testing done anyway and do enterolab on my own.

  • 3 weeks later...
Guest AutumnE

Thanks everyone :)

My daughter is getting tested on the 13th. Im hopeful we can find out what has been causing her to have infrequent rashes on her back.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mandyann Newbie

My MD seems to think a trip to an allergist is the next step for me. We discussed the whole allergy vs. intolerance subject but she still thinks it's a worthwhile visit. My appt's in two weeks, I'll keep you posted if it gets me anywhere.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,721
    • Most Online (within 30 mins)
      7,748

    Orchids
    Newest Member
    Orchids
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Yaya
      This is difficult for me to deal with.  B complex is what stands between me and migraines.  Whenever I stop B for just a few days, I get a migraine.  All my adult life I would get a violent migraine for 3 days like clockwork until a doctor told me to try B complex and it worked.  The only time I get a migraine is when I've run out of B.  This has worked for me for over 15 years.  I am soon to be 79.   My cardiologist has me stop all vitamins for about 3 days and I always have a migraine when I go in for the bloodwork.   D level is nearly at optimal.  I don't take A, I get enough from food.   What a dilemma!
    • Scott Adams
      I think the best approach is to lean how to read product labels, especially the allergen warnings, and these lists might be helpful:      
    • Scott Adams
      It looks like you are referring to this product: https://shop.kingarthurbaking.com/items/gluten-free-bread-flour Their site says: "Made with gluten-free wheat starch to give baked goods incredible taste and texture, it’s ideal for classic yeasted recipes like artisan boules, bagels, cinnamon rolls, and burger buns", and it is true that Codex quality wheat starch is gluten-free, and does make better baked goods. However, it also contains very low levels of gluten (under 20ppm), and some celiacs do react to this level, so if you are super sensitive it's best to avoid it. They also make this very similar product, which doesn't include any wheat ingredient, and is certified gluten-free: https://shop.kingarthurbaking.com/items/gluten-free-bread-flour Although labeling products in the USA as "gluten-free" that contain such wheat starch is relatively new, it has been offered in Europe for decades. You can read more about studies on it here: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • DebJ14
      Our Functional Medicine doctor has always ordered the Spectracell Test for Micronutrient Deficiencies.  It tests the intracellular levels of the nutrients, not blood levels.  When high dose, targeted supplementation did not resolve the deficiencies after retesting at 6 months and then a year, he ordered genetic tests.  I have a genetic inability to process Vitamin D, B12 and antioxidants, so I am on high doses of those for life.  The rest of the initial deficiencies resolved within 6 months to a year and a good multi vitamin is sufficient to address those.  My husband has historically had high homocysteine levels and his low folate, B 12 and B6  levels are because of his MTHFR gene mutation.  Always good to get to the root cause!
    • trents
      Welcome to the forum, @Idnam! Ranitidine and Famotidine are not proton pump inhibitors. They are H2 blockers. It is true that histamine intolerance is common in the celiac population. We often don't produce enough of a histamine regulator called DAO (diamine oxidase). Not sure, but this may be due to damage to the gut lining by celiac inflammation. You might also want to research MCAS (Mast Cell Activation Syndrome) as it is often goes hand in glove with histamine intolerance and is actually the root cause. Or, at least that is my understanding. By the way, you can purchase DAO capsules but there is not clear evidence they work.
×
×
  • Create New...