Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone See An Allergist For Intolerances?


Guest AutumnE

Recommended Posts

Guest AutumnE

Enterolab mentioned three dr's in my area that are very familiar and recognize enterolab results.

First one is a really nice allergist, I saw her dad for years for my allergy problems.

Second one is a pediatrician about a half hour away, will be 2 hours away when we move. Not accepting of our insurance so basically out of the picture.

Third one is a specialist md in intolerances and allergies, holistic approach, but not covered and very expensive which we cant afford right now.

Basically my only option is the first one. Has anyone seen an allergist for possible intolerances or do they do just allergies?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGluGirl Contributor
Enterolab mentioned three dr's in my area that are very familiar and recognize enterolab results.

First one is a really nice allergist, I saw her dad for years for my allergy problems.

Second one is a pediatrician about a half hour away, will be 2 hours away when we move. Not accepting of our insurance so basically out of the picture.

Third one is a specialist md in intolerances and allergies, holistic approach, but not covered and very expensive which we cant afford right now.

Basically my only option is the first one. Has anyone seen an allergist for possible intolerances or do they do just allergies?

Dear AutumnE,

As far as I know, most Allergists only handle allergies. They can test for food allergies, but skin tests only check for Immunoglubulin E. Just because someone does not have a skin reaction, does not mean that they are not allergic or sensitive to something. Insurance is a pain in the tuchas about this. The good doctors like holistic physicians are not always covered by them. These people are usually the ones that know about sensitivities and allergies more.

Sincerely,

NoGluGirl

ravenwoodglass Mentor

Most allergists do not deal with intolerances, however there is the rare bird out there who does. I was diagnosed by an allergist through an elimination diet. It took quite a bit of looking and calling but I was fortunate and found one. He did the typical skin tests then formulated a nutrient complete starting point for the elimination diet and I called weekly with my reactions. Wheat was the second thing I tested and when I called him with the results of the wheat trial this very wonderful man said "I thought so" and referred me to a GI for confirmation of the celiac. I then continued with the elimination diet for a couple more months to check for other intolerances. I would be dead by now if not for this man and I send him a card or two a year to thank him. If your allergist will help you with an elimination diet I would go to the allergist.

jerseyangel Proficient

Hi,

I sought the help of an allergist when I started getting symptoms again after several months on the gluten-free diet. I did call around to the allergists in my area that were within my insurance. Some I spoke to did not deal in food allergies at all.

But, the one I did choose to see was wonderful. He tested me for a slew of foods via skin scratch. Then, he advised me to follow an elimination diet to figure out what foods I was intolerant to.

I asked him about blood testing for intolerances, but he said they tend to produce a lot of false positives because once we eat a particular food, we create antibodies to it. He said that most people end up doing an elimination diet anyway.

I find the elimination was well worth the time--as long as I avoid the foods I'm sensitive to, I feel well most of the time.

Helena Contributor

Allergists don't generally deal with intolerances, but it is good to get checked out to make sure that the "intolerance" isn't an allergy . . . My allergist put me on an elimination diet . . he sort of supervised it, but I didn't find him to be of much help during the diet. (He is helpful about other things.) For one thing, the diet is what clued me in to the fact that oats were causing problems for me. (I was already diagnosed with a wheat allergy.) Perhaps we could have caught the celiac disease earlier.

Anyhow, I do think you should go . . . but don't expect too too much. The most helpful resource I've found is: _Dealing with Food Allergies_ by Janice Vickerstaff Joneja, PhD, RDN. she provides a detailed guide to elimination diets (and mentioned a lot of stuff that my allergist didn't----like my allergist had me cut out corn, but didn't tell me that table salt has corn in it (in the form of dextrose). Dr. Joneja explains that you need to be on sea salt during the diet.) Also, she explains a whole range of food intolerances as well as allergies.

kbtoyssni Contributor

I've just been arguing with my insurance over this one. I want to get tested for casein intolerance. They won't pay for something like enterolab and say I have to go to an allergist but it's not an allergy so I can't find an allergist who will do the testing... They're getting another call from me on Monday. I might get the food allergy testing done anyway and do enterolab on my own.

  • 3 weeks later...
Guest AutumnE

Thanks everyone :)

My daughter is getting tested on the 13th. Im hopeful we can find out what has been causing her to have infrequent rashes on her back.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mandyann Newbie

My MD seems to think a trip to an allergist is the next step for me. We discussed the whole allergy vs. intolerance subject but she still thinks it's a worthwhile visit. My appt's in two weeks, I'll keep you posted if it gets me anywhere.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748

    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.