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Recommend A Doctor In You State

Guest celiacbuzzroom

By Guest celiacbuzzroom
in Doctors

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loraleena Contributor
loraleena
Posted

Dr. Peter Park - general practitioner

Wilmington, Vermont (Deerfield Valley Health Center)

He is willing to test me for anything I want and lets me call the shots. Is willing to work with any other doc I see (either western or natural medicine).

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FinsUp Rookie
FinsUp
Posted

A second vote for Dr. Stefano Guandalini for pedi GI in the Chicago area. I would assume you could also find a good grown-up GI at the University of Chicago. Check their website at www.celiacdisease.net.

In the western suburbs of Chicago (Naperville), I would recommend Dr. Stephen Holland for grown ups. His website www.napervillegi.com has a lot of good information.

Our pediatrician, Dr. Linda Hamilton of Pediatric Health Assoc. in Naperville, did not hesitate to test our son for celiac disease. His only symptom was "failure to thrive". He did not have any diarrhea, stomach pain, stomach distention, or other "obvious" symptoms. She has been very supportive since his positive diagnosis via biopsy by Dr. Guandalini.

mcoop911 Newbie
mcoop911
Posted
Dr. Gale Cookingham- Allergist and she has celiac disease herself and was tested and suppourtive of enterolab. Flint, michigan office on fridays and port huron office monday through thursday.

AutumnE,

I live in Grand Rapids, MI and wonderful if you feel she is worth the drive? I'm not sure of any of the allergists in my area.

Thanks,

Melissa

penguin Community Regular
penguin
Posted

Another vote for Craig Lubin in Austin

DingoGirl Enthusiast
DingoGirl
Posted

Dr. Pau. Hanchett, Fresno, California....I LOVE him, had never heard of Celiac until he mentioned it and said he'd test me for it.

And another thing, I told him months ago that if he had any new bewildered Celiac patients that needed support, they could call me. I got my second one just today, and we're meeting for coffee later this week. :)

Guest AutumnE
Guest AutumnE
Posted

Melissa, She is lovely and well educated. Her and her husband both work there along with her dad. Dr Gail cookingham (the one with celiac) is there on fridays. Dr. Beane her husband is on mondays and saturdays. She doesnt do biopsy like an average GI. But she could help with dietary problems, intolerances, or allergies since it generally goes along with celiac disease in alot of cases.

Both of them are good at working with children also. But I dont recommend the dad (Dr Cory Cookingham) as he is very old, kinda grouchy, not patient, and Im not sure if he is familiar with enterolab. She did have to miss my sister's appt a few weeks ago so dr beane her husband saw her. She was glutened and it takes her approximately three days to recover enough to work.

4260 South Linden Road,

Flint, Michigan (MI)

810-733-3200

Toll free is 800-962-6751

Her regular office is in clarkston which is listed below. When I originally called to set up an appointment they said she didnt work there (error with a new medical assistant) because she wasnt a regular dr but she is there on fridays. Enterolab sent out her name with the genetic testing.

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Nantzie Collaborator
Nantzie
Posted
Great topic! I was just thinking I need to find a new doc, because of recurring kidney pain.

Does anyone have a suggestion for Portland, OR?

Thanks for any help you can give.

Josh.

If you post this as a new topic you'll have more of a chance of most people seeing it. A lot of people wouldn't necessarily visit this topic, and stories of bad or rude doctors in your area can be valuable as well.

Nancy

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Amanda L Rookie
Amanda L
Posted

Dr. Ziad Younis in Memphis, TN.

Corinnedawn Newbie
Corinnedawn
Posted

Dr. Bradley Borsari

Fullerton, California (Southern California)

Can’t say enough about him!

After listening to my symptoms, he suspected celiac right away (I had never heard of it). Blood test and referral to a specialist for endoscopy = celiac diagnosis.

Very patient, younger doctor who knows his medicine!

  • 2 weeks later...
mouse Enthusiast
mouse
Posted

Dr. Leff

6553 E. Baywood Ave.

Mesa, AZ 85206

480-324-0999

Gastroenterologist

Tests all of his IBS patients for Celiac; believes that it is not necessary to do the endo, if the blood test is positive. Believes a positive diatary response is an answer in itself. Also believes that Celiac and gluten intolerance are the same thing. Also puts some patients without Celiac on the gluten-free diet if he thinks they will benefit from the diet.

A compasionette, caring doctor. *****

Robina Contributor
Robina
Posted

Dr. Doherty (naturopathic doctor) here in NH who also suffers from celiac's herself and specializes in the disease:

Open Original Shared Link

grannynanny Rookie
grannynanny
Posted

Didn't see anybody mention Dr. Fassano at the Univ of Maryland Medical Center in Baltimore. He is one of the best known celiac experts in the country and is usually quoted or featured in any articles you see in the popular press. He is a pediatric gastro (?) and only does the celiac clinic on Fridays, but I made an appointment with him for this Friday, months ago!

  • 1 year later...
April in KC Apprentice
April in KC
Posted

Old thread, but a positive shout for Dr. Craig Friesen in Kansas City, MO (Missouri), a pediatric GI. He made the connection between my son's reported proprioception / sensory problems and the possibility of vitamin E deficiency. Sure enough, he tested low, and we are about to begin supplementation. My son also has very small muscles (was suspected of possibly having a myopathy) - I have done some reading and it looks like vitamin E deficiency can sometimes cause symptoms like this.

debmidge Rising Star
debmidge
Posted
After listening to my symptoms, he suspected celiac right away (I had never heard of it). Blood test and referral to a specialist for endoscopy = celiac diagnosis.

Very patient, younger doctor who knows his medicine!

I want to say same as above about:

Pavan Sachan, MD (gastro)

NJ - affiliated with Trinitas Hospital

Offices in Union, Union County

Linden, Union County

Center for Digestive Diseases

My gastro, Steven Fiske, MD of West Orange NJ, knows about celiac as well. Affiliated with St. Barnabas Medical Center

JennyC Enthusiast
JennyC
Posted

Wow this is a great thread, and still very valuable. I finally found an outstanding pediatric gastro for my son. I was so happy I was almost overwhelmed. I was beginning to think I would never find a ped. gastro. for my son, and those from Portland know it does not get much better than Doernbecher's.

Dr. Terry

Doernbecher Childrens Hospital

3181 Sw Sam Jackson Park Rd

Portland, OR 97239

She was outstanding! She listened to my son's history for 30 minutes and accepted his previous blood work and dietary response to the gluten free diet as diagnosis, provided his tTG was going down. I am happy to report he went from 21 (<7 is normal) to 4.3 in eight months.

mamabear Explorer
mamabear
Posted

Dr. Anca Pop in Memphis, TN. Unbelievably thorough, kind and compassionate.

loraleena Contributor
loraleena
Posted

Dr. Peter Park in Wilmington, VT. (half hour west of Brattleboro).

Deerfield Valley Health Center

He is a regular MD. Open to natural alternatives. Willing to let me research and will test or try anything I suggest. Willing to correspond with other docs both holistic and traditional.

celiac-mommy Collaborator
celiac-mommy
Posted

For us, we had 2 local saviors--(in Portland, OR)

Dr. Kelvin Snyder, Sunset Pediatrics

Dr. William Marshall, peds GI, Emanuel Hospital

For the adults out there in PDX, I see a GREAT internal medicine Dr who happens to specialize in nutrition and Celiac Disease (and I don't have celiac disease). Her name is Char Glenn at the Nob Hill Internal Medicine Clinic.

I'm glad Jenny finally found a great Dr at OHSU. I did my internship there and my best friend works at Doernbechers. I have a love/hate relationship with that hospital. I learned a lot there, they do a lot of great things there, but I was somewhat butchered during a surgery there when I was 8 and have had to learn to live with some difficult respiratory abnormalities since then. Working at a hospital, I know things happen no matter where, it just sucks when it happens personally!!

TanKatLuvr Newbie
TanKatLuvr
Posted

CENTRAL FLORIDA

Dr. Henry Levine

1817 N. Mills Avenue

Orlando, FL 407-896-1726

After being blown off by my GP, my internist ('if you had celiac disease, you would be underweight, not overweight' AND that rash is foliculitis, not DH"), and my allergist not having a clue until I begged him for some type of gluten/celiac testing and coming back elevated...........I found a great GI doc on my very first try (after lots of research on docs).

I saw him today and he was wonderful, open-minded and actually listened. Base on my bloodwork, symptoms and the chronic DH rash that won't go away (he recognized immediately) he is almost 100% sure that I have celiac disease.

I am having two more tests and he scheduled a biopsy ahead of time. I also found out that I am newly Diabetic...what a shock!!! I also have Hashimoto's disease which seems to have quite a bit of crossover of patients into gluten sensitivity.

What a caring man. He told me I was NOT crazy and that he would get me feeling better very soon. He was very supportive of the dietician I told him I was going to be working with too.

Rebecca

tiffjake Enthusiast
tiffjake
Posted

I haven't seen her personally, but she works with the local support group:

Dr. Iqbal in Longmont, CO

jarrett5292 Newbie
jarrett5292
Posted

In wisconsin there is a Celiac Disease Clinic!

I live in IL. and they still take us in WI.

It is off the Children's Hospital of Wisconsin in Milwaukee!

Dr. Grzegrz Telega MD

frec Contributor
frec
Posted

Dr. Noel Peterson, naturopath

560 First Street

Lake Oswego, OR 97034

503 636 2734

very intelligent and up on all the research, listens well

  • 4 weeks later...
NoSugarShell Explorer
NoSugarShell
Posted

Any recommedations for a pediactric gastro in the Dallas-Fort Worth Area?

Jodi Mills Apprentice
Jodi Mills
Posted

any suggestions for insurance-less person in NC, or Utah, since I will be moving there shortly?? I know I need to get insurance, it is just not affordable right now, and i def need to get in to see the DR. to see what all is going on with me..

zenmama Newbie
zenmama
Posted

Children's Pediatric Gastroenterology, PC

Knoxville, Tn affiliated with East Tennessee Childrens Hospital

Our ARNP Teresa Renner in London , KY referred us and is very understanding and easy to work with about Celiac.

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  • Recent Activity

    1. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Seeking advice on potential gluten challenge

      Thanks so much!
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      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
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      Seeking advice on potential gluten challenge

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      Seeking advice on potential gluten challenge

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    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      Have I got coeliac disease

      By trents · Posted

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
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