Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Sound Familiar?

jerseyangel

By jerseyangel
in Coping with Celiac Disease

Recommended Posts

jerseyangel Proficient
jerseyangel
Posted

I was glutened a week ago today. Not much out of the ordinary--D, nausea, all the usual symptoms that came and went pretty much by this weekend.

Sunday at 1AM, I was awakened by a very sharp pain in the lower abdomen--on the left side, a couple inches in from my hipbone. It was an intense pain, that came in waves along with gas :ph34r: . I actually couldn't move during one of these, so my husband brought me 2 Extra Strength Bufferin, and I sort of layed there in the same position until they kicked in.

The asprin dulled the pain enough so I could sleep, and yesterday I felt out of it and sore there--it was even sore to the touch.

Today, it's almost gone--but I can still tell that something happened there. Does this ring a bell with anyone? I don't think it had to do with the glutening, but I also have no idea what would have brought it on.

Thanks--you all are the best medical detectives in the business! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gamecreature Rookie
Gamecreature
Posted

I've experienced it, but I couldn't tell you what it is. I had the pain in my right side and lower right abdomen but nothing came up in my doctor's tests, aside from an indication that the lymph nodes were swollen. Since then the abdominal pains have come and gone on a fairly regular basis, but I have no idea what's going on.

HawkFire Explorer
HawkFire
Posted

Yes, I had that pain. Went to my gyn afraid it was endometriosis, but she said I should evaluate my diet to see if there was gluten getting in somewhere. I found my chapstick and lipstick had gluten. I stopped using them and the pain went away. My doctor is a dream compared to most. She believes gluten can trigger many pains we do not attribute to gluten. Her theory is that it causes an inflamation that cannot be predicted. I recently ate gluten on accident. My first real gluten experience in years. I felt that pain return immediately. It lasted three days. I did not have this pain prior to my diagnosis. I had stomach aches, small stature, iron def. malnutrition.

lindalee Enthusiast
lindalee
Posted
I was glutened a week ago today. Not much out of the ordinary--D, nausea, all the usual symptoms that came and went pretty much by this weekend.

Sunday at 1AM, I was awakened by a very sharp pain in the lower abdomen--on the left side, a couple inches in from my hipbone. It was an intense pain, that came in waves along with gas :ph34r: . I actually couldn't move during one of these, so my husband brought me 2 Extra Strength Bufferin, and I sort of layed there in the same position until they kicked in.

The asprin dulled the pain enough so I could sleep, and yesterday I felt out of it and sore there--it was even sore to the touch.

Today, it's almost gone--but I can still tell that something happened there. Does this ring a bell with anyone? I don't think it had to do with the glutening, but I also have no idea what would have brought it on.

Thanks--you all are the best medical detectives in the business! :D

Hi Patti,

Sorry you are not feeling well. From what I underdstand, pain on one side could be the kidneys. Did you feel like your kidneys were strained? Sometimes the back hurts where inflamation is and or could be digestion issues. Can you remember what you ate?

Ursa Major Collaborator
Ursa Major
Posted

Patti, that sounds familiar, I get something similar to that at times when I eat something wrong. It's your bowels complaining about the poison they have to deal with, I think. :blink:

statedrone Newbie
statedrone
Posted
Sunday at 1AM, I was awakened by a very sharp pain in the lower abdomen--on the left side, a couple inches in from my hipbone. It was an intense pain, that came in waves along with gas :ph34r: . I actually couldn't move during one of these, so my husband brought me 2 Extra Strength Bufferin, and I sort of layed there in the same position until they kicked in.

I get those pains often. I have had them on and off for 6 years. I had it so bad once I passed out at work. Dr. thought it was gyno problem ( had some things that were presenting as that) and had a hysto. Dr. thought pain would go away but it didn't. Then when I was diagnosed with celiac disease, and went gluten free the pain subsided quite a bit. I spoke with the specialist about the pain and he told me this:

Gas builds up in the intestines (especially so with celiacs) the gas gets blocked at the intestines where they bend, the gas has a hard time making it past the bend and it can build up. Thus leading to the pain. He told me to lay either in the fetal position with a pillow between my legs or on my back with pillows under my legs and massage around the area where there is pain. That really does seem to help.

Gamecreature Rookie
Gamecreature
Posted
I get those pains often. I have had them on and off for 6 years. I had it so bad once I passed out at work. Dr. thought it was gyno problem ( had some things that were presenting as that) and had a hysto. Dr. thought pain would go away but it didn't. Then when I was diagnosed with celiac disease, and went gluten free the pain subsided quite a bit. I spoke with the specialist about the pain and he told me this:

Gas builds up in the intestines (especially so with celiacs) the gas gets blocked at the intestines where they bend, the gas has a hard time making it past the bend and it can build up. Thus leading to the pain. He told me to lay either in the fetal position with a pillow between my legs or on my back with pillows under my legs and massage around the area where there is pain. That really does seem to help.

Finally something that makes sense! Thanks for passing that on to us. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted
  • Author
Gas builds up in the intestines (especially so with celiacs) the gas gets blocked at the intestines where they bend, the gas has a hard time making it past the bend and it can build up. Thus leading to the pain. He told me to lay either in the fetal position with a pillow between my legs or on my back with pillows under my legs and massage around the area where there is pain. That really does seem to help.

Statedrone--

First of all, welcome!! I've not seen you post before--and thank you so much for your insight. This makes sense--I also have gyn issues that I thought could be contributing to the pain, but an ultrasound showed nothing in that area. Plus, the gas is what made me think it must be intestinal.

I will make note of your suggestions and try them if the need arises.

Gamecreture, Lee, Ursula and Hawkfire--thank you all for letting me know that you've also had this. It was a little scary...

lonewolf Collaborator
lonewolf
Posted

Patti - I've had the same thing and I think it's gas too. I assume "tuttle position" when this happens, to relieve the gas pressure/pain. Start on your hands and knees, then drop down so you're on your shoulders and knees ( with head turned to side) and your bottom sticking up. You'll want to do this when no one is at home or you'll be the butt (pardon the pun) of jokes for a long time.

Guest ~jules~
Guest ~jules~
Posted

I've also had this happen many times, I think its gas too....

jerseyangel Proficient
jerseyangel
Posted
  • Author

Wow! I guess I didn't realize gas could be that painful! Thanks everybody :D

SchnauzerMom Rookie
SchnauzerMom
Posted

I get pain like that whenever I eat or drink anything that has High Fructose Corn Syrup in it.

happygirl Collaborator
happygirl
Posted

Patti, I just read your post. Ugh, that had to hurt.

I don't know if it is the gas issue, but my mom just told me that she has had that for years now...and solves it by what others on here have described. It sounds very familiar to your pain-but, like I said, don't know if that's it or not. I couldn't believe how bad she said it hurt when she was telling me.

Laura

Judyin Philly Enthusiast
Judyin Philly
Posted

HI PATTI

I'm so sorry i missed this thread. :(

Must have been one of the days i wasn't on line.

I so agree with the 'trapped gas' theory.

also agree that 'you've got the best medical detectives' on board here.

The trapped gas seems so minor but I do believe it can cause REALLY SEVERE PAIN.

I wanted to post as I remember when I needed some help about a similar issue with gas but with belching and a couple of people suggested special ways to lay or 'assume the turtle position'

all really work for me and the gentle massage with finger tips pushing down out out toward legs helps me.

a heating pad too seems to help my pain, as long as it's on the left side.

sorry I wasn't there to help you with your issue as you sure have been there when i needed help.

How long did it take to totally go away..personal question..did you have belching or the passing of gas with it.?

Hope your all over this now.

hugs :)

Judy

plantime Contributor
plantime
Posted

Yep, had that, and it does HURT!!! I assume the position that Lone Wolf described, and massage my entire abdomen. It helps it pass quicker.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.