Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is My Mother Wrong Or Right?


Mal

Recommended Posts

Mal Explorer

I've been Celiac for about a month now and learned a tremendous amount from this website, and my mother said 2 me yesterday that I can only get glutened via my gut......but isn't that wrong? What about shampoo and lipstick and even touching gluten. Is she right and I'm wrong, someone help...I'm very confused.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Shampoo and lipstick can get in your mouth, as can hand lotion. The only body care product I don't worry about is nail polish because I only use it on my toes! Anything else can get in your mouth ... either when you use it, or, for example, when you touch your hair, then eat finger food like potato chips.

So, you're both right, it does the damage via the gut; however, body care products can get in your mouth.

Guest cassidy

The issue with shampoo and lipstick is getting it in your mouth. Someone posted a while ago how surprisingly often shampoo gets in your mouth. If you use lotion with gluten and put your hands in your mouth, that can get you as well. Even licking envelopes can be bad if there is glue in the gluten.

Some people are very sensitive to using gluten on their skin (usually those with dh) and even smelling it.

So, technically I don't know if what your mouth absorbs goes into your gut, but either way, you should avoid products that contain gluten.

lovegrov Collaborator

Touching gluten certainly isn't a problem for me as long as I wash and don't put it in my mouth. And I had DH.

richard

Guest nini

some people like my daughter break out in hives from just touching gluten. Me, I can touch it as long as I wash my hands really well before I eat after handling any gluten. I don't wear makeup or use any personal care products with it though because I don't want to kiss or hug my daughter and have her break out in hives.

Rusla Enthusiast

As for nail polish even that I check for gluten. If even a minute amount of it flakes off into something I am eating and it has gluten in it I am sick. For me a minute amount of crumbs that may get on my hand then if I eat something I am sick. It takes such a small amount to make me very ill and have my DH break out.

Ursa Major Collaborator

When I was still using shampoo with wheat germ oil, my scalp was covered in a rash and excruciatingly itchy. I don't know if it was DH or not, but it doesn't really matter. When I switched to gluten-free shampoo and conditioner (Dove), that problem slowly went away. My head rarely gets that itchy now.

So, whether the shampoo got into my mouth or not I don't know, but the gluten in it was affecting my skin.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TinkerbellSwt Collaborator

I seem not to have a problem with my hair care products that contain wheat. I am a hair twirler too. I just wash my hands alot, especially before a meal. I dont wear lipstick that contains gluten, as I am sure I will ingest that. I know I probably shouldnt be using the shampoo, in fact Carla gave me a good one to try. As soon as I have the money to go and buy it (its on the expensive side) I will be trying it.

So ... please dont go by my example. I am by no means saying I dont get gluten in my system because of my hair care products.. I personally wouldnt recommend it to anyone.. I say this as though I dont use the stuff... :ph34r:

Guest cassidy
As for nail polish even that I check for gluten. If even a minute amount of it flakes off into something I am eating and it has gluten in it I am sick. For me a minute amount of crumbs that may get on my hand then if I eat something I am sick. It takes such a small amount to make me very ill and have my DH break out.

I never thought of that. I usually just paint my toes so I would hope there is no way for my toe nail polish to get into my food. If I ever paint my fingers I will remember to check that. Talk about hidden gluten!

zansu Rookie
I usually just paint my toes so I would hope there is no way for my toe nail polish to get into my food.

:lol::P:lol:

2kids4me Contributor

mY daughter gets a deep red rash followed by excema if she touches wheat flour - found that out when the class did school project and made paper mache masks.

She came home from school and her hands were red, she had blotches anywhere she had scratched herself with her glutened hands.

You can't get villous atrophy from coming into contact with it - but it can make you sick - skin reaction or systemic symptoms. Varies with each individual.

Sandy

darlindeb25 Collaborator

I too break out in hives if wheat is on my skin. It is a well known fact that inhaling gluten can make us sick--although, they aren't sure if in inhaling it, it may be that the person is a mouth breather and the air particles are getting in their mouth and swallowed--I do know that most gluten intolerant can not work in bakeries.

Ursula, as I was reading your post about your itchy head from a shampoo with wheat germ, a light came on in my mind. I had purchsed VO5 shampoo for a very good price. It is strawberries and cream and smells so wonderful--I even thought I checked the ingredients and I did, I do not believe there is gluten in it, yet just now, I reread the ingredients and there is the culprit for me: soybean extract! I quit using it a few weeks ago because my head started itching. Because the cooler season is upon us, I also thought maybe it was from the temps, yet the itching stopped after I went back to my Pantene. Now I realize, the VO5 was the problem. Sometimes the simpliest answer is so close and yet so hard to see. Thank you.

moomama18 Newbie

My daughter kept reacting even after we had eliminated all gluten from her diet. I read an article about shampoos/lotions so I decided to switch her shampoo and voie laz (sp?). She was a happy camper, started napping for the first time in her life and stopped having gluten poops. This past summer she reacted to suntan lotion as well. So, I would definitely be careful with shampoos/lotions/skin care products.

CarlaB Enthusiast
in fact Carla gave me a good one to try. As soon as I have the money to go and buy it (its on the expensive side) I will be trying it.

I just went to buy Alterna Caviar today ... they added wheat and oats to it. :(:angry: I bought Kenra instead ... don't know if I like it yet.

It's a good thing I've learned my lesson that you need to read the ingredients EVERY time you purchase a product!! They change formulas/recipes all the time!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.