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Just Wanted To Say Thanks To Everyone For Being So Great!

Sweetfudge

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Sweetfudge Community Regular
Sweetfudge
Posted

So I've spent some time on another forum (which will remain nameless), and I've shared some personal problems...all I ever seem to get from the people there are criticisms. They just have no regard for how their words make me feel. I'm just happy that I have you all to vent to and help me through my problems in a constructive way! You all rock! ;)

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Canadian Karen Community Regular
Canadian Karen
Posted

Rant away here, you're safe! It's quite therapeutic, eh? ;)

Hugs.

Karen

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Glad you found all of us here, I felt the same way when I first came here. I thought I was the only person in the whole world with this condition. That I was going to wallow in my own self pity for the rest of my life.... boy was I wrong. I dont even think celiac anymore. Its just my way of life now.. it becomes so natural, its like I was never any other way.

The people here are great. Always supportive, no matter what.

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Mean people suck!

Our peeps are the greatest!

jerseyangel Proficient
jerseyangel
Posted

Stick with us, Sweetfudge--you're safe here :)

Ursa Major Collaborator
Ursa Major
Posted

You're so right about other forums. I've been a member of many forums, for fibromyalgia, Asperger Syndrome (three of those), Tourette Syndrome, and this is the first one where I've really felt safe.

It seemed on other forums, the nice people (or defenseless ones, like me) get bullied until they leave. Here, any bullies that start treating others badly, are made to leave instead. It's a great place to be.

Jestgar Rising Star
Jestgar
Posted

I think that ever being so miserably depressed while eating gluten, how could I possibly find anyone else's comments or experiences something to grouch about?? :D

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Sweetfudge Community Regular
Sweetfudge
Posted
  • Author
I think that ever being so miserably depressed while eating gluten, how could I possibly find anyone else's comments or experiences something to grouch about?? :D

lol!

thanks all! :)

Guest nini
Guest nini
Posted

this is a really great site! Thanks to Scott for creating it, and thanks to all the wonderful friends I've met here!

luvs2eat Collaborator
luvs2eat
Posted

I agree... I've learned so much here and know I can ask anything and get experienced and tolerant answers!!

happygirl Collaborator
happygirl
Posted

just as happy as you are to have us, we are happy to have you part of our family!!!

taweavmo3 Enthusiast
taweavmo3
Posted

Yep...had a bad experience too on another celiac forum, and now this is the only place I post. The people here are absolutely awesome, I learn something new everyday. Thanks, ya'll!

floridanative Community Regular
floridanative
Posted

I also agree as this type of forum goes, celiac.com can't be beat. Only very few negative people told me some things that thank goodness turned out not to be true. I ignored them and plunged on learing this new way of life. Now I find I don't have time for this board as much so I love listserv since I it's quick and you may be able to help someone and if not you just don't reply. But when you really need help with a product or anything really, someone on this board is likely to be able to, and take the time to help you. Some of the boards out there are so fanatical they are scary. I got some really bad medical advice from several people on such a board. When their advice about exactly what type of supplement to take turned out to be wrong, I left and never looked back.

Though it's been said before - special thanks to Nisla and Patti as they let me know I would be okay when I was so scared in the very beginning. Happy Holidays guys!

Lisa Mentor
Lisa
Posted

Oh yes, it was not so long ago when I was panicked, struggling and clueless about Celiac Disease. This was my first experience on a message board, as many of you remember. Kaitie, celiac3270, Karen, Lynne, Patti, Judy, Mouse, Rachel, richard, Shirley, as well as others, walked me through this maze, and with their help, I found my way out. Many have become dear friends.

I truely could not have become healthy without ALL of you and I give you my thanks. :)

PS: That's about as sappy as I get, so enjoy it. :P

Lisa

grantschoep Contributor
grantschoep
Posted

Agreed to the idea "this site is great".

I've been on many other sites. Gluten related and ones that are not. So many of the replies to questions are of the following.

1. You didn't say where you were from. You must say where your from.

2. "Search.... this question has been asked 100 times..."

3. Or simple one off "me too" or "ya that". Yes in away this post is one of those, but it contains more letters that "yea that"

Ahh... I just had to rant.

Lisa Mentor
Lisa
Posted

This is such a great post, I just wanted to bump it up a bit.

Kaycee Collaborator
Kaycee
Posted

This place is awesome, I have had experiences elsewhere where I was belittled and made to feel I was making everything up. I felt I had to keep on defending myself.

But here I can just say as much or as little as I want without getting the third degree. It is very therapeutic to just sit and type, it makes me feel better.

The best part, as far as my family is concerned, as I have become a bit obssessed with coeliac, is that I don't bore them to tears with it.

Cathy

jesscarmel Enthusiast
jesscarmel
Posted
Agreed to the idea "this site is great".

I've been on many other sites. Gluten related and ones that are not. So many of the replies to questions are of the following.

1. You didn't say where you were from. You must say where your from.

2. "Search.... this question has been asked 100 times..."

3. Or simple one off "me too" or "ya that". Yes in away this post is one of those, but it contains more letters that "yea that"

Ahh... I just had to rant.

i had the same experience and laughed when i read the thing about "say where you are from" i also hated how you HAD to say "eating out is risky" everytime you mentioned a restaurant!! lol

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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