Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thanks Tarnalberry, Canadiankaren, Judyinphilly, Richard, Penguin, Rachel-24, Carlab, Nantzie, Mtndog, Dingogirl, Ursula, Victor, Gpf, Guhlia....


tiffjake

Recommended Posts

tiffjake Enthusiast

(I can't remember everyone that I have chatted with over the last year, but thank you all so much for your advice and your help. I do remember those listed above, but I KNOW that I am forgetting some people.....)

I have been gluten free for a year now and I just want to thank Scott and all of the wonderful board members who answered my silly questions and helped me when I was having a hard time. I really appreciate this site, and thank you all very much from the bottom of my heart!!!! Have a WONDERFUL Christmas!! ~TiffJake


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judyin Philly Enthusiast

back at ya sweetie...it's been a fun year getting to know you too.

Thanks for the nice thoughts.

comeS on a good day TOO!..gloomy, foggy, rainny here in Philly, but I see 'YOUR SUNSHINE'

YOU HAVE A TERRIFIC HOLIDAY TOO.

JUDY

jkmunchkin Rising Star

No thanks necessary; that's what we're here for - to help each other!! Congrats on being gluten free 1 year!!!!!

Now go have some gluten free cake to celebrate!!!!

xoxo

Guhlia Rising Star

So glad you've made it through the first year. It gets so much easier after that first anniversary. :) So... Now you've made my day and I'm going to walk around with a goofy smile all day. Thanks.

Oh, and have a wonderful (gluten free) holiday!

marciab Enthusiast

Hope you don't mind me jumping in and thanking them too. This board has been invaluable to me and I'm always recommending it to others ... :rolleyes:

Have a very Merry Christmas and a healthy and happy NEW YEAR !!!! Marcia

tarnalberry Community Regular

Thank you for being a part of the board too! While I personally just love to see that little kitty in your avatar the most, I also love the help and advice you give to everyone. And that includes the questions you ask, because I sure know that I learn from answering questions as well as asking them. :)

Nooner Newbie
Hope you don't mind me jumping in and thanking them too. This board has been invaluable to me and I'm always recommending it to others ... :rolleyes:

Have a very Merry Christmas and a healthy and happy NEW YEAR !!!! Marcia

Ditto, everyone! You've all helped make this much more bearable!

Happy Holidays!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Merry Christmas everyone! It's been a year now for me, too. :)

Nantzie Collaborator

Thanks Tiffany. Equal thanks to you, to all those you listed and to everyone here. Everyone makes this such a warm, welcoming place.

:D

Nancy

jerseyangel Proficient

Hi Tiff :D

Thank you for the lovely sentiment, and a big congratulations on getting through the first year!

I have learned a lot from you, too. Your knowledge of all things pharmacy has been so helpful.

I hope that you are having a nice holiday season--I was just thinking about you and your husband. I pray that he is well, and that possibly (?) he is able to be home for Christmas.

Take care, and don't be a stranger--I've missed you :D

Lisa Mentor

Tiffany,

Thanks for the thanks. Everytime someone posts, we all learn. It really does take a village. Happy Anniversary! :)

Lisa

Ursa Major Collaborator

I could have pretty much said the same thing, because I've learned so much this past year. We all learn from each other, it would have been so overwhelming without all you guys, and I would never have figured out all my food intolerances, and the adrenal and thyroid problems without this board.

I hope you all have a great Christmas.

Ursula

2Boys4Me Enthusiast

Well thank YOU Tiffany. It's nice to be included in that group of very helpful people. I was just thinking last week that I hadn't seen any posts from you lately.

I'm glad you've passed your anniversary. It's a good feeling. I remember when we passed Ty's one year. It seems like so long ago.

I hope you have a happy holiday and I hope your husband can come home soon (if he hasn't already).

Canadian Karen Community Regular

Back at ya! You are a wonderful addition to the group! That's what it's all about - taking care of each other.....

Hugs.

Karen

Rachel--24 Collaborator

Tiffany,

Congrats on your first year of being gluten-free! :)

Thanks for the kind words....I agree with everyone else in that YOU are also very helpful to members of this board. I know that you have helped me in the past with your pharmacuetical knowledge. :D

Its great that we can all help each other out in different ways...through our experiences, knowledge, questions, etc.

I know that I've learned TONS this past year....thanks to everyone here. :)

Hope you are doing well....have a very merry Xmas and a happy New Year!

Creative-Soul Newbie
Tiffany,

Congrats on your first year of being gluten-free! :)

I second that; congratulations! We alll understand what a major deal this is - I've just passed my first year as well. You beat me to the punch by starting this thread...I was thinking of it but wasn't sure what to say! :P

I could have pretty much said the same thing, because I've learned so much this past year. We all learn from each other, it would have been so overwhelming without all you guys, and I would never have figured out all my food intolerances, and the adrenal and thyroid problems without this board.

I hope you all have a great Christmas.

Ursula

We do learn from each other, and I am so grateful for you all and for this site. Practically everything I know about this condition and what to expect / be mindful of has come from all of you who have taken the time to share your experiences here. I would've gone crazy with all of the upheavals my body's been going through - especially with all these ' new' food allergies and intolerances - if you hadn't clued me in! Thank you all for being so warm and generous, especially at times where you weren't exactly feeling at your best yourselves. Have a wonderful Chrismas, everyone!

Naj.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    2. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    3. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.