Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Suuuuuuuch An Idiot!

emcmaster

By emcmaster
in Coping with Celiac Disease

Recommended Posts

emcmaster Collaborator
emcmaster
Posted

Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

I seriously think I got glutened EVERY DAY this past week. Every day. I thought I was being careful, but realizing that the huge bag of Doritos I ate was not gluten-free (um, DUH) brought about a huge smack in the face. Sadly, the doritos were probably one of the lesser glutenings.

I've been doing ok with my reactions to gluten, given that it happens so sparingly. The "suffering" time has been about 20% of the time it used to be.

But not this time. It's been 3 days and I'm still just as sick.

GRR. The only person I have to blame is myself. :angry:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rusla Enthusiast
Rusla
Posted

Even when you are dilligent it happens to be so hard on yourself. I was extremely dilligent and I still got it.

codetalker Contributor
codetalker
Posted

Welcome to the club!

darlindeb25 Collaborator
darlindeb25
Posted

Like they always say--when you fall off the horse, get right back on! It happens, don't beat yourself up!!!

Guest cassidy
Guest cassidy
Posted

I've done that as well. You can't be perfect on the diet especially when there are so many foods to avoid. I often thought about eating something bad after I've been accidently glutened because I wondered if it would make the recovery alot worse, or just a little worse. I've never done it because I don't think I could enjoy something that I knew was bad. Being pregnant now I really don't get that sick when I'm glutened and if I thought it wouldn't affect the baby I would eat a big old pizza, but fear would never let me do that.

Hope you feel better and the combination of glutenings doesn't make it that much worse.

gadgetgirl Newbie
gadgetgirl
Posted
Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

Welcome to the club! I'm right there with you - my reward for my sloppy eating over the past week has been the first head cold that I've had in almost 2 years despite being constantly exposed to bugs. And to top it off, I've completely lost my voice and have a job where I interact with heariing impaired individuals on a daily basis. Duh!!!!

Like one of the others said, I've gotten back on the horse and am eating clean and have even started to chase sugar back out of my diet - it had snuck back in when I went gluten-free.

Hope you feel better soon!

jerseyangel Proficient
jerseyangel
Posted

Hi Elizabeth,

I have to add my "don't be so hard on yourself"! It really does happen to all of us at one time or another.

You will get back to feeling well again--hopefully very soon :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


emcmaster Collaborator
emcmaster
Posted
  • Author

Thanks everyone! I appreciate the words of comfort!

I can't believe I used to feel this sick almost all the time - I feel like death warmed over. Bleh!

marciab Enthusiast
marciab
Posted

Blame it on the gluten ... It can do so many things to us, why not ??

I'm beating myself up right now over the same thing. It is just so hard to find replacements for everything ... And who really wants to believe that cross contamination can do as much harm as the real thing.

I'll stop beating myself up if you will ... marcia :blink:

SchnauzerMom Rookie
SchnauzerMom
Posted

Count me in. I messed up at a Christmas dinner at my sister-in-law's. The meat and veggies were fine but then I had dessert. Chocolate pie, I thought I could just not eat the crust and I would be alright. Wrong! I'm getting over it finally.

ajay Newbie
ajay
Posted

I visited my family for the holidays and we went out to dinner for Christmas, which is the worst day to ever go to a restaurant if you have any special concerns. Most of the food is pre-prepared and the staff is usually the least experienced, because the senior staff is on vacation. I was as careful as possible under the circumstances..and currently covered with little red spots nonetheless. And crampy and sick. Bleah.

At least we all know what to do for New Year's Resolutions!

:P

emcmaster Collaborator
emcmaster
Posted
  • Author

Thanks so much for the support!

I'm still feeling pretty bad. It got better on Friday and yesterday to where I thought the symptoms were finally going away. But then I woke up this morning in a lot of pain, really really bloated. (Guess that means I'll be wearing pajama pants at our New Year's Eve party <_< ).

I used to be dairy and fat intolerant, until early November. Does anyone know at what point I should start cutting that out again if I don't feel better soon? I'm so paranoid that those intolerances will come back...

happygirl Collaborator
happygirl
Posted

Elizabeth,

I'm sorry to hear about your rough spell. It definitely is frustrating, but you have been around on this board long enough to know that we have ALL been glutened before :(.

Get back on the gluten free horse, and we'll resolve to make 2007 even MORE gluten free :)

Laura

emcmaster Collaborator
emcmaster
Posted
  • Author

Thanks, Laura. Hope you're feeling better - how are your tests going to determine what else you have?

happygirl Collaborator
happygirl
Posted

Elizabeth,

You are sweet to ask, esp considering your recent glutening :). I will PM you if that is ok :)

Laura

lilmama Apprentice
lilmama
Posted
Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

I seriously think I got glutened EVERY DAY this past week. Every day. I thought I was being careful, but realizing that the huge bag of Doritos I ate was not gluten-free (um, DUH) brought about a huge smack in the face. Sadly, the doritos were probably one of the lesser glutenings.

I've been doing ok with my reactions to gluten, given that it happens so sparingly. The "suffering" time has been about 20% of the time it used to be.

But not this time. It's been 3 days and I'm still just as sick.

GRR. The only person I have to blame is myself. :angry:

I did the exact same ting tis week. Sat down and munched on Doritos then the light bulb went off that I just ate the wrong thing. I paid dearly for it. It had been a sucky 2 wks and every turn I was glutening myself. I'm glad the holiday is over and that everyone is finally getting well in my house.

plantime Contributor
plantime
Posted
Count me in. I messed up at a Christmas dinner at my sister-in-law's. The meat and veggies were fine but then I had dessert. Chocolate pie, I thought I could just not eat the crust and I would be alright. Wrong! I'm getting over it finally.

I did the same thing with lemon meringue at my neighbor's on Christmas Day. Although I did learn that I am not as sensitive as I was before. I guess the 9 months since the last glutening allowed a lot of healing. For which I am truly thanking God!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748
    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.