Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Immediate Family Members Should Be Tested!

VegasCeliacBuckeye

Recommended Posts

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

She had the blood test and she tested positive for Celiac (at least the gene) . She just had the EGD tests done and is awaiting those...

I don't know whether to feel bad or relieved for her...

At least now she will want to join me for the Holiday meals and not the family...

Bronco

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kaycee Collaborator
Kaycee
Posted

Bronco, it is good that your mother got tested. And I can understand your mixed feelings, I think we all can understand them.

All I want is my immediate family to get tested (not all of them have) so that they know either way whether they have the disease or not. If they all got tested, I would be able to rest a little easier for them. It is not because I want someone to share the disease with, I just want them to be a bit more responsible about their own health, and to do their own worrying and not leave it up to me.

Cathy

jayhawkmom Enthusiast
jayhawkmom
Posted

Good for your mom!!!

Since my daughter was the first one DX - I was the next one to be tested. Now, I'm practically begging MY first degree family members to be tested, but they all think I'm nuts. =(

I wish they'd wake up and stop ignoring the health issues that have plagued them their entire lives. Their lives could be so much better if they'd just stop consuming gluten!!!

Lisa Mentor
Lisa
Posted

Chris

Of anyone, what is the exact name of the gene test. I would like to have my girls tested and hopefully they will agree.

Thanks, Lisa

taweavmo3 Enthusiast
taweavmo3
Posted

That's great your mom got tested.....kind of bittersweet that she is positive though. At least now she can take control of her health and prevent any further complications.

I wish my family would get tested, but no one will. Even my brother who has been really sick since he was a child refuses to believe he may have it. It's driven us apart somewhat. Last time he came over, he had a few beers and immediately was in the bathroom for the rest of the night. I try to hold my tongue most of the time about how skinny he looks, but when he got sick all over my bathroom, I felt like that gave me the right to say something! It did not go well, he really thinks he's fine.

Hope everyone else has a family who takes celiac a bit more seriously!

Gentleheart Enthusiast
Gentleheart
Posted

Sorry, it's been posted before, but I have forgotten. Would someone please clarify exactly what constitutes a "first degree relative" or a second or third, etc.? And also the likelihood for them genetically having celiac/gluten intolerance (either your observed personal opinion or statistics). Thanks!

Grandparents = ?

Parents = ?

Siblings = ?

Children = ?

Cousins, Aunts, Uncles = ?

TestyTommy Rookie
TestyTommy
Posted

My understanding is that a first degree relative is a parent, sibling or child of yours.

And if you have the celiac gene, it had to come from somewhere. That means either your mom or dad is carrying it.

Any advice on how to convince family members to get tested? Like some of you, my mom and sister absolutely refuse to get tested. My sister just tells me that she doesn't want to give up eating cookies and muffins! It's kinda ticking me off. . . . .

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted
  • Author

My mom is a nurse, so she kinda accepted it when I brought it up. She is also a logical and reasonable person.

My brothers will be tougher. I can see my eldest brother getting his kids tested before he will. He is the kind of guy that loves Guiness, Pasta, French Bread, etc.

My other brother might be easier, but he will still go kicking and screaming.

Bronc

Gentleheart Enthusiast
Gentleheart
Posted
My understanding is that a first degree relative is a parent, sibling or child of yours.

And if you have the celiac gene, it had to come from somewhere. That means either your mom or dad is carrying it.

Any advice on how to convince family members to get tested? Like some of you, my mom and sister absolutely refuse to get tested. My sister just tells me that she doesn't want to give up eating cookies and muffins! It's kinda ticking me off. . . . .

My family won't be tested either. In our case it would require Enterolab type testing and money is an issue there. But the main reason is that they honestly don't want to know. I'm afraid it will have to wait until they get sick enough to be out of choices. Another sad reason is that they honestly think this is all a bunch of hooey.

chrissy Collaborator
chrissy
Posted

lisa, through prothethius lab, our ped gi ordered celiagene and celiaplus.

happygirl Collaborator
happygirl
Posted

Lisa: Your doc should know what the "name" of the panel is, depending on which lab they use. All they need to know is that they want to be tested for the presence of "Celiac genes" which are HLA-DQ2 and HLA-DQ8.

Like Chrissy mentioned above, many use "Prometheus" as their lab of choice for that type of testing.

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted
  • Author

Well,

Mom just got back the test results from the endoscopy. She has Celiac! She alsso has elevated IGA and IG levels.

I told her "welcome to the club" and if she has any questions, I am here.

Once she gets her new computer, she will be coming on this site.

BB

p.s. No, you cannot ask her any potentially embarrassing questions about me - LOL

:)

Lisa Mentor
Lisa
Posted

thank you crissy and laura...

In my notebook.

Lisa

mouse Enthusiast
mouse
Posted

What do you mean, in that I cannot ask her any embarassing questions about you? I just started a list. You mean I have to throw it away - that sucks big time.

Guest AutumnE
Guest AutumnE
Posted

Im sorry your mom has it too. Me, my daughter, my sister, my bil, my niece and nephew all have it.

My parents have the gene at least if not the antibody due to me and my sister both having a double gene, they didnt get tested themselves but obviously we get it from somewhere ;)

My husband still needs some coaxing to get tested even though he basically eats gluten free anyways.

Unfortunately not everyone sticks to their diet faithfully but I hope they come around soon. My mom, dad, and bil dont stick to it at all, I would call them more gluten lite than gluten free. It helps tremendously with holidays though since everybody makes gluten free dishes.

jerseyangel Proficient
jerseyangel
Posted
What do you mean, in that I cannot ask her any embarassing questions about you? I just started a list. You mean I have to throw it away - that sucks big time.

So-o- funny! :D

Well Bronco, I'm sorry that your mom is positive, but as we all know, it's best that she know so she can heal and be as healthy as she can. :)

I look forward to meeting her on the board!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748
    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.