Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Excessive Sweating When Glutened

Mballerina

By Mballerina
in Related Issues & Disorders

Recommended Posts

Mballerina Explorer
Mballerina
Posted

Does anyone have extensive sweating at night and wake up completely drenched in sweat when they are glutened? I wake up absolutly drenched and have a hard time sleeping cuz i am so hot.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pamelaD Apprentice
pamelaD
Posted

Night sweats can be a symptom of an autoimmune reaction/inflamation, so it makes sense that you have them as part of a gluten reaction.

I have lupus and have night sweats related to that autoimmune disease off and on for years. I also had terrible night sweats just before I got my gall bladder removed (turns out it was inflamed).

If you have night sweats, but don't think you were 'glutened', I would be sure to mention it to your doctor, as they can be a symptom of many things....

Good Luck,

Pam

  • 5 months later...
ianm Apprentice
ianm
Posted

I used to have night sweats where I would be drenched in sweat and all of the blankets would be soaked also. This seems to have gone away once I went gluten-free.

Ian

flagbabyds Collaborator
flagbabyds
Posted

I would have night sweats when i was sick because I was scared of throwing up in my sleep, and when you are nervous about that i get all sweaty, also when I am reallyu sick, I am always sweaty

kvogt Rookie
kvogt
Posted

My calves used to sweat like mad at night. Nowhere else. When I was a teen, I had "growing pains" in my calves. The aching would keep me up for hours and was really painful.

cdford Contributor
cdford
Posted

Yes! It took me a while to figure out that it was gluten and not just "my age" if you know what I mean. Usually the other symptoms clue me in when it is gluten. It also smells something fierce when I have been glutened.

  • 10 months later...
Silver-naki Rookie
Silver-naki
Posted
Night sweats can be a symptom of an autoimmune reaction/inflamation, so it makes sense that you have them as part of a gluten reaction.

I have lupus and have night sweats related to that autoimmune disease off and on for years. I also had terrible night sweats just before I got my gall bladder removed (turns out it was inflamed).

If you have night sweats, but don't think you were 'glutened', I would be sure to mention it to your doctor, as they can be a symptom of many things....

Good Luck,

Pam

PAM...

This was a great Post here, & very informative! I have the "night-sweats" really bad as well, but have attributed it to MENOPAUSE. I noticed only a slight change since I went "gluten-free," but am still wondering if maybe some of mine might be related to an autoimmune reaction/inflamation too? I have an Aunt who has Lupus, and Lordy, I'm sure this stuff runs in the Family!!! When my tests results came back, I was told I had alot of antibodies in my system, so your post here was most interesting! I still have my Gall Bladder tho....... many of my Family members have had theirs removed.

This is a very interesting subject to think about, and thanks for Posting! Regards! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nikki-uk Enthusiast
nikki-uk
Posted
Does anyone have extensive sweating at night and wake up completely drenched in sweat when they are glutened? I wake up absolutly drenched and have a hard time sleeping cuz i am so hot.

This is my husbands only symptom to being glutened.

Before being dx he suffered from them really bad!

jerseyangel Proficient
jerseyangel
Posted

I am currently getting night sweats regularly, but I think they are due to menopause. However, I have had night sweats since my early 30's when I was sick that I now attribute to the Celiac. The interesting thing is, the night sweats that I get when sick are worse than the ones I get now from the menopause. I can tell the difference because the ones caused by the hormones come about every 2 hours and wake me up, but are more mild.

MACE Rookie
MACE
Posted

I ALSO HAVE THAT PROBLEM. WOULD HAPPEN ALOT DURING THE NIGHT. NOW THAT ON THE DIET DOES NOT HAPPEN UNLESS I MAKE A MISTAKE IN WHAT I EAT. I HAD BEEN TOLD IT WAS DUE TO NOT TAKING HORMONES WHICH I WOULD NOT TAKE. STILL NOT TAKING THEM SO I AM SURE NOW IT WAS FROM THE GLUTEN.

ebrbetty Rising Star
ebrbetty
Posted

so happy to see this post, monday night I was up all night with terrible stomach pain and sweating like crazy, it was like the heat would start at my toes and slowly work its way up, this went on all night with the pain. I can't think of any gluten I ate, but I must have been glutened, it happened twice before. I also have discord lupus.

  • 1 month later...
amybeth Enthusiast
amybeth
Posted

Thanks so much for posting this! I have been waking up in the night drenched -- something I never noticed before diagnosis......haven't thought to link it to being "glutened".......I will definitely investigate.

Lisa Mentor
Lisa
Posted

I had bad night sweats when I was 35 (early met.) at 51 I do not now. I do perspire when I am eating. Not spicey stuff, just regular gluten free foods, especially at lunch. Don't know what's going on there :unsure:

Guest Robbin
Guest Robbin
Posted

Lisa Baker--I get that too when I eat anything anymore!! I put up a post on that. I don't understand it but it just started since going gluten-free. I also get hot burning hands as I posted before. Weird, worrisome and confusing :blink: ! Robbin

Lisa Mentor
Lisa
Posted

Robbin - never had this before gluten free. I don't know why, but it just happens.

Since gluten free, my hands shake. When I drink water out of a bottle, I can see the water vibrate. Don't know about that either.

If anyone can explain, please post. :)

Guest Robbin
Guest Robbin
Posted
Robbin - never had this before gluten free. I don't know why, but it just happens.

Since gluten free, my hands shake. When I drink water out of a bottle, I can see the water vibrate. Don't know about that either.

If anyone can explain, please post. :)

Mine started since going gluten-free too. Maybe we are all "detoxifying"? I just hope it goes away on its own soon, because I am sooooo sick of being sick and going to the dr. Has anyone had it and it went away? How long did it take? :blink:

Linda352 Rookie
Linda352
Posted

Yes, I also have noticed that my night sweats are a little less since I've been eating gluten-free but I think I will also have to give up my nightly glass of wine with dinner as I know when I was dieting last summer and had to give up these favorite treats I did sleep a lot better and didn't have any problems with this terrible discomfort. Beginning tonight I am giving up my wine for a week to see if this doesn't help.....sigh....

Linda/NJ

  • 8 months later...
dragonmom Apprentice
dragonmom
Posted

What a shock= I thought that my sweating was due to my advanced age and being a female........good to know that I can also attribute it to Celiac.. :)

  • 2 weeks later...
Rebecca47 Contributor
Rebecca47
Posted

Again Wow!! I have really bad night sweats also. wake up totally wet feels like a river. I thought I was going thru menopause tested and I am not in menopause and ny doctor is how testing for other things. Thyroid and c couple other things 24 hr calcium, vit D should have results tomorrow

Rebecca

Lisa Mentor
Lisa
Posted

Some of this may be glutened related, many other may be "change" related issues. My peri-med symptoms lasted a good 10 years until the big "P" was gone and done with.

But......I still have strange perspiring when I am eating foods. I have not narrowed it down to anything specific and don't know even whether it is gluten related. I have no other "gluttened" symptoms to accompany the perspiring.

If anyone finds a connection, please let me know. :)

  • 2 weeks later...
nikki8 Explorer
nikki8
Posted

I was just about to post a question about this when I saw this thread. I have had night sweats the past 3 or 4 nights. I've only been gluten-free for a little over 2 weeks now and I'm wondering if it's a detox thing. As far as I know (and I'm still learning) I have not gluten-ed myself. I have not had night sweats for a few years until now and was wondering what was going on. Good to see that I'm not the only one.

Nikki

  • 1 month later...
coveowner Newbie
coveowner
Posted
Robbin - never had this before gluten free. I don't know why, but it just happens.

Since gluten free, my hands shake. When I drink water out of a bottle, I can see the water vibrate. Don't know about that either.

If anyone can explain, please post. :)

My hands shake when my thyroid becomes more hyper and I need to adjust my meds. You might want to get tested.

coveowner Newbie
coveowner
Posted
Robbin - never had this before gluten free. I don't know why, but it just happens.

Since gluten free, my hands shake. When I drink water out of a bottle, I can see the water vibrate. Don't know about that either.

If anyone can explain, please post. :)

My hands shake when my thyroid becomes more hyper and I need to adjust my meds. You might want to get tested.

Lisa Mentor
Lisa
Posted

I did some research on this after I posted this thread. Frey's Syndrome appears to be what I was describing. I have forgotten alot now, but it has to do with the glands re-routing themselves to the face. Perhaps when I was pre-diagnosed and had a highly dry mouth, things got re-wired.

I do have questions about thyroid, but my bloodwork did not indicate an issue. It's always something. :(

Time for another doctor!

Mtndog Collaborator
Mtndog
Posted
Does anyone have extensive sweating at night and wake up completely drenched in sweat when they are glutened? I wake up absolutly drenched and have a hard time sleeping cuz i am so hot.

Yes- used to have them all the time before going gluten-free. Now I only have them when I am glutened.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Gluten free nuts

      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to...
    2. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies...
    3. Scott Adams
      - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted...
    4. Wheatwacked
      - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      Have you had your 25(OH)D vitamin D blood level checked? Vitamin D deficiency occurs in 40 - 60% of western societies. It is even more common in Celiac Disease because of malabsorption syndrome. Appropriate intake of vitamin D or skin production from sun, increases the absorbtion rate of Calcium.and phosphorus, two minerals crucial to...
    5. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Some backup to my statement about gluten and milk. Some background. When my son was born in 1976 he was colicky from the beginning. When he transitioned to formula it got really bad. That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,387
    • Most Online (within 30 mins)
      7,748
    LizzieE
    Newest Member
    LizzieE
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Gluten free nuts

      By Aretaeus Cappadocia · Posted

      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      Shingles - Could It Be Related to Gluten/ Celiac

      By trents · Posted

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.