Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Example Of A Little Bit Of Knowlege Being Dangerous

mamatide

By mamatide
in Publications & Publicity

Recommended Posts

mamatide Enthusiast
mamatide
Posted

Cityline, a daily Canadian talk show, did a brief segment on what it means to be gluten-free this morning and stated:

1. that something can be done to wheat to remove the gluten

2. that organic wheat is ok

3. that spelt is a good substitute

4. that oats are a substitute

5 that gluten can be removed from the diet and then slowly reintroduced

and should be kept at a minimum thereafter.

The also suggested that going gluten free can be a solution for hot flashes (that would

be nice if it's true - let me know!)

Only a minor suggestion of Celiac disease (just mentioned the name, not

what it was).

I emailed them as I was listening to (and cringing at) the segment. I gave them some links (what is gluten, what is celiac disease, what is spelt) and a few of the more stunning statistics (1 in 133, 10 years to diagnose).

I only hope they haven't done harm with what they've said. I told them they need to correct this.

<sigh>

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hathor Contributor
hathor
Posted

Amazing. I'm glad you emailed.

I've been gluten-free for a month. My hot flashes haven't improved. (But I didn't go on this diet for that anyway. It would be a nice fringe benefit, though. Did they say how long this was supposed to take? :lol: )

Daxin Explorer
Daxin
Posted

THey usually appear more organized than that. I hope the information you directed them too allows for an on air correction. Let us know how it turns out.

Felidae Enthusiast
Felidae
Posted

I watched the show this morning too. Cityline is usually really good and I'm a big fan of the show. I'm leaning towards blaming the guest, Rose Reisman since I think she is very ill-informed. Most cooks/chefs that I have heard talk about celiac are better informed than her. Or if they don't know enough about the topic they don't go into it in detail. Even when Rachel Ray talks about ingredients being gluten-free, she just leaves it that.

mamatide Enthusiast
mamatide
Posted
  • Author
I watched the show this morning too. Cityline is usually really good and I'm a big fan of the show. I'm leaning towards blaming the guest, Rose Reisman since I think she is very ill-informed. Most cooks/chefs that I have heard talk about celiac are better informed than her. Or if they don't know enough about the topic they don't go into it in detail. Even when Rachel Ray talks about ingredients being gluten-free, she just leaves it that.

I emailed Rose Reisman too. Here's the correction she posted on her website:

Open Original Shared Link

blueeyedmanda Community Regular
blueeyedmanda
Posted

Is this show seen in the US too? Either way I am glad you emailed them to get the correct information out. Giving the wrong information can hurt people who are just starting out or still in the testing phases. Good Job :):):)

tarnalberry Community Regular
tarnalberry
Posted

the correction continues to support the use of spelt, and the idea that some celiacs can tolerate some levels of gluten. it's still a VERY misleading, and in some places just plain wrong, correction. HORRID!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lorka150 Collaborator
lorka150
Posted

stupid canadians ;)

i should march on up there...

SillyBoo Newbie
SillyBoo
Posted

For a couple of months pre-diagnosis, I was having hot flashes at least a couple of times every day. Within 2 weeks of going gluten-free (October 2006), they dwindled to only one or two a week, and then almost completely disappeared for the past month and a half. I can only assume it's related to eliminating gluten. Definitely a nice side effect!

ArtGirl Enthusiast
ArtGirl
Posted
For a couple of months pre-diagnosis, I was having hot flashes at least a couple of times every day. Within 2 weeks of going gluten-free (October 2006), they dwindled to only one or two a week, and then almost completely disappeared for the past month and a half. I can only assume it's related to eliminating gluten. Definitely a nice side effect!

If only I should be so fortunate. :( I did read somewhere that gluten can affect the hormones which is why going gluten-free is helpful for this. Apparently gluten is not causing mine so no relief going gluten-free. I'm 60 and still have the darn things! It's been over 15 years for me.

Felidae Enthusiast
Felidae
Posted
stupid canadians ;)

i should march on up there...

I thought Rose Reisman was an American. LOL

It really doesn't matter, except that her information is very wrong. She really shouldn't pretend to know things that she has not thoroughly informed herself on.

elye Community Regular
elye
Posted

Sad, but true...we can be rather dumb up here. Lookit all the WHEAT we grow! :lol:

  • 2 weeks later...
Nic Collaborator
Nic
Posted

Could it be that going gluten free will help hot flashes if the hot flashes were caused by gluten symptoms and not the hot flashes that are caused by normal hormone changes such as menapause? I have heard from a few people here that they had hot flashes prior to going gluten free.

Nicole

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748
    Chels22
    Newest Member
    Chels22
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...