Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Strange My Life Has Become!

GeoffCJ

By GeoffCJ
in Coping with Celiac Disease

Recommended Posts

GeoffCJ Enthusiast
GeoffCJ
Posted

I'm 31.

I have a disease.

It requires me to be VERY careful about what I eat. I have a hard time with it.

When I do a good job, the clearest, most immediate symptom of my doing a good job over the week is in the restroom.

Thus, when I do a good job, and it "shows" I'm quite proud of myself.

Meaning I derive satisfaction from my BMs.

Such an odd part of my life.

Only you guys could understand.

:P

Geoff

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nantzie Collaborator
Nantzie
Posted

:lol::lol::lol:

I totally relate.

:D

Nancy

ravenwoodglass Mentor
ravenwoodglass
Posted

Know what you mean. When I went gluten-free and I saw my first solid after 15 years of constant D I felt like telling the world. Thank goodness for friends and family my world is very small. :)

confused Community Regular
confused
Posted
Know what you mean. When I went gluten-free and I saw my first solid after 15 years of constant D I felt like telling the world. Thank goodness for friends and family my world is very small. :)

I can so relate to you, Yesterday my hubby came home and i was like honey i went to the bathroom by myself and it was great, he was like i am so proud of you. I had been taking an laxative for one day, but that was on monday lol

paula

blueeyedmanda Community Regular
blueeyedmanda
Posted

I understand completly. I feel that way too. You are right though, only we would be able to relate. All our nonceliac friends would look at us as if we were crazy.

johnsoniu Apprentice
johnsoniu
Posted

How refreshing to know that I'm not insane for gauging my life by the quality of my BM's. That's why I'm so happy to have found this forum, because you all ARE the only people who would understand.

Jo.R Contributor
Jo.R
Posted

LOL. After I had kid, I had said to a friend I never thought I would enter a life where BM's would be normal conversation topics with other mothers. Now I'm the one who is excites when I "make good poopy". :ph34r: And this has become normal conversation with my hubby and mom. Who knew.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

We're a bunch of freaks, aren't we? :lol::lol::lol:

L.A. Contributor
L.A.
Posted

Pooh freaks! All of us! :P

confused Community Regular
confused
Posted
Pooh freaks! All of us! :P

lmao

but at least there is alot of us pooh freaks.

I have even come in the habit of asking everone if their pooh floats or sinks, well family members and close friends lol

paula

L.A. Contributor
L.A.
Posted
lmao

but at least there is alot of us pooh freaks.

I have even come in the habit of asking everone if their pooh floats or sinks, well family members and close friends lol

paula

It gets even better when your hubby stops asking if the puppy went and instead asks if I did! :blink:

Jestgar Rising Star
Jestgar
Posted

I was once asked in a job interview what I was most proud of. Now I think I have a good answer.... :ph34r: , at least for the jobs I don't really want :lol:

plantime Contributor
plantime
Posted

Ah, yes! Pooh freaks! I thought I was the only person in the world that looked in the toilet after pooping to check the color, consistency, and amount. So glad to know that I am not alone!

johnsoniu Apprentice
johnsoniu
Posted

My 9 year old daughter's blood panels came back positive, so we have to take her to Riley's Children's Hospital in Indianapolis next month for the endoscopy. Last night my wife was filling out their patient questionaire and pops in the kitchen complaing about "they want to know what her poop likes like".

I then proceeded to give her the short course in color, consistency, floatability, etc.

She just smiled and said, " Huh!, I guess you do know jack squat(not exact word) after all." B)

Pooh freak.. and Proud of it!

Nantzie Collaborator
Nantzie
Posted
My 9 year old daughter's blood panels came back positive, so we have to take her to Riley's Children's Hospital in Indianapolis next month for the endoscopy. Last night my wife was filling out their patient questionaire and pops in the kitchen complaing about "they want to know what her poop likes like".

I then proceeded to give her the short course in color, consistency, floatability, etc.

She just smiled and said, " Huh!, I guess you do know jack squat(not exact word) after all." B)

Pooh freak.. and Proud of it!

LOL!!!

:lol:

Nancy

Canadian Karen Community Regular
Canadian Karen
Posted
We're a bunch of freaks, aren't we? :lol::lol::lol:

Naw, if we were freaks, we would have had a "Best Looking Poop Contest" where we submit digital photos to be voted on! No baby contests in the celiac world, we have poop contests instead!!!!! :lol:

Hugs.

Karen

angelbender Newbie
angelbender
Posted

Ooooh this is just too bad! I am at the library and trying not to laugh too loudly at "potty humour" and hope that no one looks over my shoulder to see what I'm giggling about. Funny, but neither of my gastro docs (or even my GP whom I saw first) even asked me any of the all important, uh, quality questions.....or even how often a day I was "going".....and I am now happy to report to everyone that I have logs these days! Applause please? I'm so excited and only you folks could understand. Plus I can actually eat before going anywhere in my car.....amazing! :P

jerseyangel Proficient
jerseyangel
Posted

What a classy condition this is :lol:

The first question out of my gastro's mouth is always "how are your bowels?" Every time...

:D Pooh freaks :D

Jo.R Contributor
Jo.R
Posted

Eating before a car ride, now that's big. I know rest stop or gas station between Seattle and Portland, and from Portland to Boise. Now I don't care.

Once we were stuck in the passes, that was ugly. Complete standstill and no toliet..

angelbender Newbie
angelbender
Posted

Ah, I still need to know where all of the restrooms are.....just in case....I can still have an, uh, sense of urgency that others don't have but even the timing of that has improved and I can wait longer than say 15 seconds. People used to think that I was nuts when I would rate where the best restrooms were.... they just didn't know why it was such a big deal.

I have even considered becoming an inventor and devising a unit that we Celiacs could just attach to our bum or something....you know, just in case.....not very practical but kind of funny to think about when things have gotten bad. I guess the market for this type of product would be rather limited tho. Ah, so much for my get rich scheme, lol :P

Debbie65 Apprentice
Debbie65
Posted

This thread makes me smile. As a life long celiac -ok -I was in denial for a couple of years(so it was 20 who

Canadian Karen Community Regular
Canadian Karen
Posted
This thread makes me smile. As a life long celiac -ok -I was in denial for a couple of years(so it was 20 who
Debbie65 Apprentice
Debbie65
Posted
Can I relate? LOL! You don't know the half of it!!!!!! <_<

Let's just say that certain positions are not an option for us, for fear of an accident! :o

How's that for TMI?????? LMAO!

If you know me, you know that this is mild compared to some stuff I put on here!

:lol::lol::lol:

Imagine having a husband who is here for a month and away for a month.

He has this romantic image of the one he left at home waiting.

I

Debbie65 Apprentice
Debbie65
Posted

I didn

PeggyV Apprentice
PeggyV
Posted

It is nice to know I am not the only one...I thought I was strange! Well I probubly am, but at least I am not the only one....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,606
    • Most Online (within 30 mins)
      7,748
    TGreen
    Newest Member
    TGreen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.