Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Strange My Life Has Become!


GeoffCJ

Recommended Posts

GeoffCJ Enthusiast

I'm 31.

I have a disease.

It requires me to be VERY careful about what I eat. I have a hard time with it.

When I do a good job, the clearest, most immediate symptom of my doing a good job over the week is in the restroom.

Thus, when I do a good job, and it "shows" I'm quite proud of myself.

Meaning I derive satisfaction from my BMs.

Such an odd part of my life.

Only you guys could understand.

:P

Geoff


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

:lol::lol::lol:

I totally relate.

:D

Nancy

ravenwoodglass Mentor

Know what you mean. When I went gluten-free and I saw my first solid after 15 years of constant D I felt like telling the world. Thank goodness for friends and family my world is very small. :)

confused Community Regular
Know what you mean. When I went gluten-free and I saw my first solid after 15 years of constant D I felt like telling the world. Thank goodness for friends and family my world is very small. :)

I can so relate to you, Yesterday my hubby came home and i was like honey i went to the bathroom by myself and it was great, he was like i am so proud of you. I had been taking an laxative for one day, but that was on monday lol

paula

blueeyedmanda Community Regular

I understand completly. I feel that way too. You are right though, only we would be able to relate. All our nonceliac friends would look at us as if we were crazy.

johnsoniu Apprentice

How refreshing to know that I'm not insane for gauging my life by the quality of my BM's. That's why I'm so happy to have found this forum, because you all ARE the only people who would understand.

Jo.R Contributor

LOL. After I had kid, I had said to a friend I never thought I would enter a life where BM's would be normal conversation topics with other mothers. Now I'm the one who is excites when I "make good poopy". :ph34r: And this has become normal conversation with my hubby and mom. Who knew.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

We're a bunch of freaks, aren't we? :lol::lol::lol:

L.A. Contributor

Pooh freaks! All of us! :P

confused Community Regular
Pooh freaks! All of us! :P

lmao

but at least there is alot of us pooh freaks.

I have even come in the habit of asking everone if their pooh floats or sinks, well family members and close friends lol

paula

L.A. Contributor
lmao

but at least there is alot of us pooh freaks.

I have even come in the habit of asking everone if their pooh floats or sinks, well family members and close friends lol

paula

It gets even better when your hubby stops asking if the puppy went and instead asks if I did! :blink:

Jestgar Rising Star

I was once asked in a job interview what I was most proud of. Now I think I have a good answer.... :ph34r: , at least for the jobs I don't really want :lol:

plantime Contributor

Ah, yes! Pooh freaks! I thought I was the only person in the world that looked in the toilet after pooping to check the color, consistency, and amount. So glad to know that I am not alone!

johnsoniu Apprentice

My 9 year old daughter's blood panels came back positive, so we have to take her to Riley's Children's Hospital in Indianapolis next month for the endoscopy. Last night my wife was filling out their patient questionaire and pops in the kitchen complaing about "they want to know what her poop likes like".

I then proceeded to give her the short course in color, consistency, floatability, etc.

She just smiled and said, " Huh!, I guess you do know jack squat(not exact word) after all." B)

Pooh freak.. and Proud of it!

Nantzie Collaborator
My 9 year old daughter's blood panels came back positive, so we have to take her to Riley's Children's Hospital in Indianapolis next month for the endoscopy. Last night my wife was filling out their patient questionaire and pops in the kitchen complaing about "they want to know what her poop likes like".

I then proceeded to give her the short course in color, consistency, floatability, etc.

She just smiled and said, " Huh!, I guess you do know jack squat(not exact word) after all." B)

Pooh freak.. and Proud of it!

LOL!!!

:lol:

Nancy

Canadian Karen Community Regular
We're a bunch of freaks, aren't we? :lol::lol::lol:

Naw, if we were freaks, we would have had a "Best Looking Poop Contest" where we submit digital photos to be voted on! No baby contests in the celiac world, we have poop contests instead!!!!! :lol:

Hugs.

Karen

angelbender Newbie

Ooooh this is just too bad! I am at the library and trying not to laugh too loudly at "potty humour" and hope that no one looks over my shoulder to see what I'm giggling about. Funny, but neither of my gastro docs (or even my GP whom I saw first) even asked me any of the all important, uh, quality questions.....or even how often a day I was "going".....and I am now happy to report to everyone that I have logs these days! Applause please? I'm so excited and only you folks could understand. Plus I can actually eat before going anywhere in my car.....amazing! :P

jerseyangel Proficient

What a classy condition this is :lol:

The first question out of my gastro's mouth is always "how are your bowels?" Every time...

:D Pooh freaks :D

Jo.R Contributor

Eating before a car ride, now that's big. I know rest stop or gas station between Seattle and Portland, and from Portland to Boise. Now I don't care.

Once we were stuck in the passes, that was ugly. Complete standstill and no toliet..

angelbender Newbie

Ah, I still need to know where all of the restrooms are.....just in case....I can still have an, uh, sense of urgency that others don't have but even the timing of that has improved and I can wait longer than say 15 seconds. People used to think that I was nuts when I would rate where the best restrooms were.... they just didn't know why it was such a big deal.

I have even considered becoming an inventor and devising a unit that we Celiacs could just attach to our bum or something....you know, just in case.....not very practical but kind of funny to think about when things have gotten bad. I guess the market for this type of product would be rather limited tho. Ah, so much for my get rich scheme, lol :P

Debbie65 Apprentice

This thread makes me smile. As a life long celiac -ok -I was in denial for a couple of years(so it was 20 who

Canadian Karen Community Regular
This thread makes me smile. As a life long celiac -ok -I was in denial for a couple of years(so it was 20 who
Debbie65 Apprentice
Can I relate? LOL! You don't know the half of it!!!!!! <_<

Let's just say that certain positions are not an option for us, for fear of an accident! :o

How's that for TMI?????? LMAO!

If you know me, you know that this is mild compared to some stuff I put on here!

:lol::lol::lol:

Imagine having a husband who is here for a month and away for a month.

He has this romantic image of the one he left at home waiting.

I

Debbie65 Apprentice

I didn

PeggyV Apprentice

It is nice to know I am not the only one...I thought I was strange! Well I probubly am, but at least I am not the only one....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.