Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help And Advice Please....really Sick

Annnettem

By Annnettem
in Coping with Celiac Disease

Recommended Posts

tarnalberry Community Regular
tarnalberry
Posted

Please, please both miles2go and ursa, don't assume I'm taking anyone's side or saying anything with anyone else. I'm not. I'm trying to correct a common misconception that came up coincidentally, that's all.

Sorry if I sound defensive, but it's frustrating to have people put words into my mouth that I didn't put there, especially after I try to correct it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


miles2go Contributor
miles2go
Posted
So, really, you need to do something about the cancer immediately... Anyway, I hope you figure it all out and start feeling better soon.

Ursa, I just wanted to say that I'm sorry for overlooking this statement of yours embedded in a somewhat lengthy post. I don't think we're in disagreement here at all, I was misunderstanding you to be saying to wait on the cancer issue.

Tarnalberry, sorry likewise if you thought I was putting words in your mouth.

CarlaB, sorry that you're so sick, I really appreciate the links...

and Annettem I hope you get better soon, whatever you do. If you need some more info, please don't hesitate to PM me.

CarlaB Enthusiast
CarlaB
Posted

Thank you, miles2go. I actually feel blessed to finally know what it is so I can be treated! It was a long road and I had to figure it out for myself, just as many of us with gluten intolerance do. Doctors are too specialized and narrow-minded because of it ... they just don't even consider these systemic illnesses! We all end up looking like hypochondriacs.

miles2go Contributor
miles2go
Posted
Thank you, miles2go. I actually feel blessed to finally know what it is so I can be treated! It was a long road and I had to figure it out for myself, just as many of us with gluten intolerance do. Doctors are too specialized and narrow-minded because of it ... they just don't even consider these systemic illnesses! We all end up looking like hypochondriacs.

I think I may have lost my golden retriever that hiked with me for a while on the trail to that. He had the classic bull's-eye rash and then died a year later while running with my dad. I think it may have been carditis; the medical diagnosis was heat exhaustion. Maybe not, but he was a great dog. Sad times...

I hope you start feeling better, soon!! It's not fair that we started gluten-free at about the same time and I am starting to feel better while you are not. That's just not right.

Margaret

CarlaB Enthusiast
CarlaB
Posted
I think I may have lost my golden retriever that hiked with me for a while on the trail to that. He had the classic bull's-eye rash and then died a year later while running with my dad. I think it may have been carditis; the medical diagnosis was heat exhaustion. Maybe not, but he was a great dog. Sad times...

I hope you start feeling better, soon!! It's not fair that we started gluten-free at about the same time and I am starting to feel better while you are not. That's just not right.

Margaret

Sorry about your golden retriever. Sounds like it could have been ...

Well, if you think about it, the whole gluten-free thing isn't fair either!! :P

miles2go Contributor
miles2go
Posted
Well, if you think about it, the whole gluten-free thing isn't fair either!! :P

No one said that life was going to be fair, but that doesn't mean that it could be!!

;)

Ursa Major Collaborator
Ursa Major
Posted
Ursa, I just wanted to say that I'm sorry for overlooking this statement of yours embedded in a somewhat lengthy post. I don't think we're in disagreement here at all, I was misunderstanding you to be saying to wait on the cancer issue.

Apology accepted, it was just a misunderstanding, no hard feelings here.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NoGluGirl Contributor
NoGluGirl
Posted

Dear Ursa Major, Tarnalberry, CarlaB, and miles2go,

Boy am I glad you guys are not fighting anymore! :P I was getting worried there for a bit! At least we can calmly discuss issues here. At least we are all mature enough to be adults. I wish I could say the same about Rosie O'Donnell and Donald Trump! What are they, in kindergarten? I just want to say to them, "Get a life already and grow up!" :lol:

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,805
    • Most Online (within 30 mins)
      7,748
    Lori A K
    Newest Member
    Lori A K
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      4 Years and very little progress

      By trents · Posted

      Welcome to the  forum @maylynn! Have you had a follow-up endoscopy/biopsy of the small bowel to check for healing of the villous lining? If not, it's about time one was done. As Scott mentioned, I also wonder if you have food intolerances in addition to gluten. Oats (even gluten free oats), dairy, soy, corn and eggs are some of the most common ones in the celiac community.
    • Scott Adams
      4 Years and very little progress

      By Scott Adams · Posted

      Is your gluten-free diet strict? Do you eat out in restaurants? If so, you could be getting contamination, and over time that can slow recovery. You may want to get a follow up celiac disease antibody panel done to make sure that your levels have gone down since your last tests. Also, have you had various nutrient levels checked via a blood test, and have you been taking vitamin & mineral supplements since your diagnosis?  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.    Do you still have celiac disease symptoms?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • maylynn
      4 Years and very little progress

      By maylynn · Posted

      Hello!  I am here as a last result, hoping for some advice, similar stories, etc. When I was 17, I was diagnosed with Celiac disease. By the time we figured it out my iron levels were so low I had to get infusions, and I had lost 20lbs. in two weeks going from a 5'11 130lbs woman to a 110 lbs. Now, I am 21 and have gained 4 lbs since. Every time I eat a meal, I get three bites in and feel so full that I feel sick. I can't eat a full meal. Something else has to be wrong right? This can't just be more "normal" right? I have done test after test and no doctor in my area can figure anything else out. They have told me I most likely have shrunken my stomach by now with how little I am eating so that has to do with some of the sick feeling. What have you done to gain the weight back? Foods? Workouts? 
    • Bronwyn W
      Symptom treatment of gluten exposure with Anti-inflammatories

      By Bronwyn W · Posted

      Thank you so much, Scott. I find it incredibly daunting navigating this celiac space and I find comfort in your wealth of knowledge. Thank you 🙏🏻
    • Scott Adams
      Make up. Is Mary Kay gluten-free?

      By Scott Adams · Posted

      I am not sure about that brand specifically, but this article may be helpful:  
×
×
  • Create New...