Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Bro...

JerryK

By JerryK
in Coping with Celiac Disease

Recommended Posts

JerryK Community Regular
JerryK
Posted

So my brother calls me this morning. (my identical twin, for those who don't know)

He says they ran out of bread at his house, and he'd been feeling pretty good. His wife went and bought a couple loaves and he said "I had three Chicken Sandwiches". He says "My butt is scorched".

I'm about rolling on the floor laughing, because of the way he's describing his symptoms....and I'm like DUDE isn't it about time you listened to me?? I've been telling him for months. He's followed along...seen my Enterolab test results...seen the results of my Gene Tests. KNOWS that I've determined I'm SERIOUSLY gluten intolerant, yet HE IS STILL EATING IT.

Even my mom, who at first accused me of Hypocondria now gets it. She taped a TV interview with the doc who wrote "Celiac Disease a Hidden Epidemic"(sorry can't think of his name) and tells me "I'm sure glad you don't have that gene...you don't have to worry." Well maybe not totally true, but at least she's now paying attention. At least she understand why I don't go rushing for the cookies anymore.

The bro however, continues to scorch his behind.....I guess I can look at it as a double blind study of what would happen to me if I continue to eat it....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 53
  • Created
  • Last Reply
Jestgar Rising Star
Jestgar
Posted

The perfect chance to call a sibling an idiot! I look forward to those!

JerryK Community Regular
JerryK
Posted
  • Author
The perfect chance to call a sibling an idiot! I look forward to those!

I asked him if his butt was sore enough yet to stop eating wheat...and he said "could be

something else" Doh :lol:

Jestgar Rising Star
Jestgar
Posted
I asked him if his butt was sore enough yet to stop eating wheat...and he said "could be

something else" Doh :lol:

:lol: :lol: :lol:

One of my brothers prefers to think he has pre-leukemia (whatever THAT would be).

Guy, it's just wheat....

Guhlia Rising Star
Guhlia
Posted

Hmmmm Jerry.... Sounds like another gluten intolerant man I remember from a few months ago... :) :) :)

CarlaB Enthusiast
CarlaB
Posted

Well, it's a double study, don't know about the blind part. He does sound a lot like you though!! :lol:

Pre-leukemia??? :blink:

LoveBeingATwin Enthusiast
LoveBeingATwin
Posted

I am an idential twin also! However my twin does not have celiac disease as of right now. She got tested after I was diagnosed but everything was fine. So right NOW she is very lucky but who knows what the future will hold! I have to say though she is VERY supportive and helpful. She makes me gluten free/ dairy free goodies and prints me off recipe. She's the BEST! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted
Pre-leukemia??? :blink:

Major hypochondriac. His wife censors everything he sees or reads. And every once in a while calls me or my mom with "your brother/son is driving me crazy!"

Funny how almost anything is better than 'giving up' something.

jerseyangel Proficient
jerseyangel
Posted
Funny how almost anything is better than 'giving up' something.

You hit the nail squarely on the head there! :D

JerryK Community Regular
JerryK
Posted
  • Author
I am an idential twin also! However my twin does not have celiac disease as of right now. She got tested after I was diagnosed but everything was fine. So right NOW she is very lucky but who knows what the future will hold! I have to say though she is VERY supportive and helpful. She makes me gluten free/ dairy free goodies and prints me off recipe. She's the BEST! :)

I have a love hate relationship with being a twin. I hated it when I was a kid because mom dressed us the same...we always had the same birthday. Some relatives got us ONE present to share etc...

Also, being an identical twin...all you had to do is look across the table and there you are...sort of weird if you get my drift, and I'm sure you do.

Also, especially with boy twins, one has to end up being the dominant one. It was me and I feel terrible for all the times I beat him up when we were kids.

It seems odd that one twin can have Celiac and the other doesn't. It has to be environmental where one person's diet has sensitized them to gluten or something. j

miles2go Contributor
miles2go
Posted
It seems odd that one twin can have Celiac and the other doesn't. It has to be environmental where one person's diet has sensitized them to gluten or something. j

I remember quite distinctly when I was getting the "stomach flu" quite a lot. That wasn't that long ago. Really glad you've decided to try the gluten-free. Can't believe there's another one of ya. ;)

And whoever said it, sorry can't remember, but men who cook are HOT, (maybe not necessarily in aprons, unless they're particularly studly aprons).

JerryK Community Regular
JerryK
Posted
  • Author

I'm using the same arguments you guys used on me. Telling him....if your behind hurts this bad now....what do you think it's doing to your insides? What about the damage you can't feel?

Told him next time he eats a sandwich he can hum...."come on baby light my fire" :lol::lol::lol:

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Pre-leukemia??? :blink:

When you think about it, that's not so far off from reality, as celiac is often pre-non-Hodgkin's Lymphoma!

CarlaB Enthusiast
CarlaB
Posted
When you think about it, that's not so far off from reality, as celiac is often pre-non-Hodgkin's Lymphoma!

Then he should start saying he's pre-non-Hodgkin's Lymphoma!! ;)

Jestgar Rising Star
Jestgar
Posted
Then he should start saying he's pre-non-Hodgkin's Lymphoma!! ;)

I'm guessing you can't have this for 15 years.....

Jestgar Rising Star
Jestgar
Posted

Well, or actually maybe you can...

But that would be assuming everyone got it eventually.

CarlaB Enthusiast
CarlaB
Posted
Well, or actually maybe you can...

But that would be assuming everyone got it eventually.

He's a hypochondriac ... have fun with it. :lol:

Jestgar Rising Star
Jestgar
Posted
He's a hypochondriac ... have fun with it. :lol:

Unfortunately it's bordering on pathological. He was going in for kidney stone removal and he called us all to say goodbye (although he didn't specifically say that).

And other than the "carbs" issue (as his wife calls it) he bike rides, eats healthy, goes to the gym, etc.

No reason at all to be 'pre-non-hodgkins-lymphoma' :P

CarlaB Enthusiast
CarlaB
Posted
He was going in for kidney stone removal and he called us all to say goodbye (although he didn't specifically say that).

My dad tweaked his will when he went in for gall bladder surgery. ;)

NoGluGirl Contributor
NoGluGirl
Posted

Dear JerryK,

Your brother sounds exactly like my parents and brother! My brother and mom especially are candidates for Celiac. I already explained to them it is genetic, and they probably have it as well. My father was an infant that failed to thrive, had starvation diarrhea and they almost lost him. If the nurse had not told my grandmother to put him on 2 percent milk, he would have died! His butt was so small, it fit into a tea cup! My grandmother told me about this before.

Well, when Dad got older, he had ulcerative colitis. Does that sound plausible to you he is Celiac too? Mom has the runs everyday, and my brother gets them all the time, too. Naturally, the say it cannot be gluten, because they eat it all the time. :blink: (That is the only emoticon I could use, they do not have a DUH face.)

My mother takes three prescription pills plus generic anti-diarrheal medication (I so affectionately call it liquid cork) daily so she is not stuck in the bathroom all day. My brother toughs it out, but won't do anything to fix it! He does not want to give up his pastries. Vegetables are pretty much out of the question, too. There just seems nothing can be done with them!

A song I would recommend for your brother is any by the Butthole Surfers! :P

Dear miles2go,

Yep. I was the one talking about how attractive men in aprons are. Emeril, Ming, Mario, they are all babes! A man that can feed you is a babe! There is nothing better than an adonis holding a spatula! Rocco DiSpirito, or my favorite Todd English, or how about Aaron Sanchez? There are many to choose from! So many flavors, so little time! :lol:

Sincerely,

NoGluGirl

kbtoyssni Contributor
kbtoyssni
Posted
Funny how almost anything is better than 'giving up' something.

Until you actually do give it up and realize that in this case, the grass really is greener without gluten :)

JerryK Community Regular
JerryK
Posted
  • Author

2 Day the bro sends me e-mail and quips that "Chili seems to go right thru me without changing much".

I told him, check the label on the can you fruitcake. This little problem will not go away until you start eating things that do not say WHEAT under ingredients.

I have to confess it's entertaining watching him go thru all the steps of denial that I went thru. :rolleyes:

CarlaB Enthusiast
CarlaB
Posted
I have to confess it's entertaining watching him go thru all the steps of denial that I went thru. :rolleyes:

Yes, I have to confess, "watching" you was entertaining, too. :lol:

JerryK Community Regular
JerryK
Posted
  • Author
Dear JerryK,

A song I would recommend for your brother is any by the Butthole Surfers! :P

OK, I may be a bit slow on the uptake here, I just noticed this today. I'm laughing my butthole off.... :lol: Is that really a group's name?

JNBunnie1 Community Regular
JNBunnie1
Posted
OK, I may be a bit slow on the uptake here, I just noticed this today. I'm laughing my butthole off.... :lol: Is that really a group's name?

Yup! Google it, they're lotsa fun....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,905
    • Most Online (within 30 mins)
      7,748
    klmgarland
    Newest Member
    klmgarland
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.