Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Other Food Issues Vs. Recovery Time?


GeoffCJ

Recommended Posts

GeoffCJ Enthusiast

So I've been gluten-lite since November/October, gluten-free since Christmas, with a few slips.

My gluten reactions seem pretty severe, I had a "known" glutening middle of February, and it resulted in the bid D and vomiting for 12 hours, and felt bad for a few days. Based on that, I think I've been doing a pretty good job of avoiding gluten, but I guess I'm not sure.

I've been paying attention to my food, and started to suspect Corn. I haven't eaten corn in a week or more. Can't see any correlation between Dairy and when I feel bad.

I've seen people post here that it took a year to feel right again. I've seen a lot of improvements, but I guess the problem I'm having is that I can't really figure out if the issues I'm still having are one of the three following options, or some combination:

1) It's just been three months, my body is still healing.

2) Other food issues (corn?Soy?Dairy?)

3) Not avoiding some hidden, small sources of Gluten

Any thoughts? Should I give it more time, then try an elimination diet? I'm involved in a startup and a full time graduate student, and have a hard enough time dealing with the food. (I end up skipping meals because I don't have food with me)

Geoff


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mn farm gal Apprentice

Hi Geoff, I am in the same shoes as you. Some days I think that it could be corn or dairy and it only happens to me when I have larger amounts of one or the other that I get "Gluten feeling" upset stomach or headach, mood swings something on that order. If I have just a little I don't see the effects so I think my body is still healing and I hope it goes away. For now I am just watching what I eat so I don't get much of either one. Sorry I am not much help.

oceangirl Collaborator
Hi Geoff, I am in the same shoes as you. Some days I think that it could be corn or dairy and it only happens to me when I have larger amounts of one or the other that I get "Gluten feeling" upset stomach or headach, mood swings something on that order. If I have just a little I don't see the effects so I think my body is still healing and I hope it goes away. For now I am just watching what I eat so I don't get much of either one. Sorry I am not much help.

Geoff,

I absolutely think you may have some other food intolerances. I had a glorious honeymoon of relatively symptomless living for about a month before things started showing up. I have now spent close to a year gluten, soy, corn and dairy-free. I have kept a food log (I'm freaking religious about it- it's nuts!) But, hey, I don't eat much so it's not too hard to remember!) for almost all that time and it IS very helpful. There have been times when I just want to throw my hands up in the air and say, well, an off-color phrase, because I can't make sense of what food is bothering me, but there have been just as many times of a bit of a "Eureka!" moment because of it. I, too, go without eating rather than risk something questionable; it can be daunting when you work full-time and have teenagers! Or are in grad school! Or have a life! Anyway, I recommend the old pain in the butt elimination diet- it has helped me find some culprits. Feel better!

lisa

Lisa Mentor

Geoff:

I have been gluten free since August 06 and seemed to slowly improve. Arriving to the point that I felt good, things started to bother me again.

I have gone dairy light and it seems to be better. I don't drink milk, but do have some yogurt and a little ice cream. I do get some very loose poop, but no other sympstoms like the nasty gluten symptoms.

I can do without the rest, but butter is my staple on top of a baked potato. I do use smart balance when I am cooking an adjusted to olive oil for every day, non-exotic dinners. That seems to work for me.

I do think this is very common among us.

hathor Contributor

There is always testing. Enterolab, for instance, tests for casein, soy, egg & yeast intolerance. But that may take money you don't have as a grad student with a startup ...

How are you doing without the corn? Any difference?

Is there anyway you could plan & motivate yourself to go a week without corn, soy, and casein? These are the other items that I've heard can be hard for the small intestine to cope with, as with gluten. (Corn to a lesser extent than the other two, though. I can look up the article if you're interested.)

After a week, assuming you are symptom-free, you could try challenging with one of the three. If you are OK, try another one. If not, it would seem you have one answer at least. Wait until you are symptom-free, and then try a second one. Etc.

If you are still having symptoms even without these three, you may need to do an elimination diet. At least, keep a food diary so you can try to identify possible culprits. I know somebody that persisted in symptoms even after going gluten-free. She really didn't want to do an elimination diet. Finally, she figured out she was reacting every time she had tomatoes.

CMCM Rising Star

Sorting out other intolerances is HUGELY difficult, I've found. After going gluten free 14 months go, I initially had enormous problems with all sorts of foods. I couldn't handle any of the gluten free baked things....all the various rice, bean and tapioca flours seemed to bother me, and lots of these things are very high carb/high sugar and I have also come to believe I'm sensitive to that too. So I kept my diet fairly limited and plain for a long time, and now a year later I can have an occasional goodie, but I still have to keep it fairly simple. Even this long later, I made a gluten free chocolate cake the other night and one slice of it made me feel kind of sick.

Corn is a highly allergenic food. But having celiac disease, especially when untreated, can lead to all sorts of other sensitivities which will, over time, can often go away. I think you've first got to heal, and then indulge in such things only occasionally.

Dairy is often a problem with celiacs, too. I just read that the molecular structure of casein is very similar to gluten! I myself thought my big problem was dairy for most of my life. After being gluten and dairy free for nearly a year, I now find that I can have occasional dairy without problems.

Even now, 14 months later, I have a lot of problems with vitamins, even though they are gluten free. I don't know what it is with them, but certain ones make me sick.

When my mom was diagnosed with celiac disease 40 years ago, they told her that her intestines were smooth as a billiard ball, and also that her stomach lining was nearly destroyed. I just thought of the stomach lining bit....I haven't seen that discussed here, but I wonder if some degree of damage could affect a lot of us, hence all the apparent sensitivities.

bluejeangirl Contributor

I have sensitivities to everything it seems but I have to eat and decided that I can't afford to lose anymore weight, so after reading a book titled "Brain Allergies" by William Philpott, M.D. I decided to do the rotation diet. I'm having corn but then won't have it again for 7 days. I'm alittle more relaxed with it then he is though. He won't have you eating anything from the same family for 7 days. So that would mean corn is in the grass family along with rice, millet, oats and sorghum. I would have to wait 7 days just to have rice and then 7 days to have oats. Where I'll have corn one day and rice the next. I do recommend the book, its in paperback and explains so much more. He really believes in what Hippocrates said "Leave your drugs in the chemist's pot if you can heal the patient with food."

It does talk about how doctors put so many on tranquilizers and antidepressants for example where there is dangerous side affects when many times allergies are responsible for behavior, or reactions to chemicals or inhalants. There are times you'll have to totally eliminate a food and other times if you just rotate them and having that break in between is enough.

I find that is true for me with corn, tomato, legumes and dairy especially. I can have them but not to often. Its the frequent contact with these foods that will do me in. I don't want to be as intolerant to these foods as I am to gluten so I'm finding this to be my answer.

Hope this is all it is for you so I thought I'd pass this along,

Gail


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mn farm gal Apprentice

Well it could be all 3 things you listed. If it has only been 3 month it may need more time. I myself, is in my 9th month. I did notice alot of changes for the better right away, but still working on still healing and dificiencies. I can tell with the very little gluten if I get gluten. However you could have intorlerences to other things. I have a couple of things I know I need to stay away from. I was reading in a book last night and it said to heal the fasted is to eat fruits, veggies, chicken and fish. Each person will take different amounts of time and then slowly add in the other things. This is also a way of finding other intolerences, by adding a new food each week after being on the bland diet first. Sorry I am not the best person to ask but this is what I have found out.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,672
    • Most Online (within 30 mins)
      7,748

    Kate cavanaugh
    Newest Member
    Kate cavanaugh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • StevieP.
      Thanks so much for that information!! That helps me out alot!!
    • Scott Adams
      It’s completely understandable to feel confused and anxious—colonoscopy prep can feel overwhelming, especially when you’re already dealing with symptoms like loose stools and elevated inflammation markers (that high calprotectin and CRP definitely warrant further investigation!). Regarding the senna tablets: The warning about avoiding senna with IBD (like Crohn’s or colitis) is typically because it can irritate an already inflamed colon. Since you don’t yet have a confirmed diagnosis—but your brother has colitis—it might be worth calling your gastroenterologist’s office today to clarify if you should skip the senna given your symptoms and family history. Some clinics have an on-call nurse who can advise quickly. For the prep itself: Plenvu is strong, so if your bowels are already loose, the senna might be overkill. Stick to clear liquids tomorrow (broth, apple juice, etc.) and stay near a bathroom! For anxiety, remember the procedure itself is painless (you’ll likely be sedated), and the prep is the hardest part. Bring a phone charger or book to the clinic, and treat yourself afterward to something gentle on your stomach (like mashed potatoes or yogurt). Hang in there—this is a big step toward answers. You’re doing great advocating for yourself!
    • Scott Adams
      Great question! Wheat straw dishes are typically made from the stalks of wheat plants (which are naturally gluten-free) combined with a binding resin. While the straw itself shouldn’t contain gluten, the safety depends on how the product is processed. Some manufacturers may use wheat-based binders or process the straw in facilities that handle gluten, creating cross-contact risks. To be safe, I’d recommend reaching out to the company directly to ask: 1) If their wheat straw material is tested to confirm it’s free of gluten proteins, and 2) Whether the production line avoids cross-contamination with gluten-containing ingredients. Many brands now cater to gluten-free consumers and will provide detailed answers. If you’re uncomfortable with the uncertainty, alternatives like bamboo, ceramic, or glass dishes are inherently gluten-free and worry-free. Always better to double-check—your diligence is totally justified!
    • Scott Adams
      I’m so sorry you’ve been struggling for so long without the answers or relief you deserve. It’s incredibly frustrating to have a celiac diagnosis yet still face debilitating symptoms, especially after decades of strict gluten-free living. Your history of chronic health issues—SIBO, food allergies, recurrent infections, and now potential complications like nerve pain (left leg) and mucosal ulcers—suggests there may be overlapping conditions at play, such as autoimmune comorbidities (e.g., Hashimoto’s, Sjögren’s), nutrient deficiencies, or even refractory celiac disease (though rare). Stanford is an excellent step forward, as their specialists may uncover missed connections. The medical gaslighting you’ve endured is unacceptable, and while legal action is an option, focusing on thorough testing (e.g., repeat endoscopy, micronutrient panels, autoimmune markers, skin biopsy for dermatitis herpetiformis) might be more immediately helpful. Menopause can absolutely exacerbate underlying inflammation, so hormonal imbalances should also be explored. For symptom relief, some in the celiac community find low-dose naltrexone (LDN) or mast cell stabilizers helpful for systemic issues, but a functional medicine doctor (if accessible) could tailor supplements to your needs. You’re not alone in this fight—keep advocating fiercely at Stanford. Document everything meticulously; it strengthens both medical and potential disability claims. Sending you strength—this shouldn’t be so hard, and you deserve real solutions.
    • Scott Adams
      Since you have a confirmed celiac disease diagnosis alongside severe IgA deficiency, consulting an immunologist is a reasonable step to better understand the implications of your immune status. While many IgA-deficient individuals remain asymptomatic, the deficiency can occasionally be linked to increased susceptibility to infections, autoimmune conditions, or other immune-related concerns. An immunologist can assess whether additional monitoring or preventive measures (e.g., vaccinations, infection screening) are warranted. Given your location in Atlanta, academic medical centers like Emory University may have immunologists familiar with IgA deficiency, even if they don’t specialize exclusively in it. Telemedicine is also a great option—consider reaching out to specialists at institutions like the NIH, Mayo Clinic, or Cleveland Clinic, many of whom offer remote consultations. If you haven’t already, checking with the Immune Deficiency Foundation (IDF) for provider recommendations might help. It’s always wise to gather expert insight, especially since celiac and IgA deficiency can coexist with other immune dysregulation.
×
×
  • Create New...