Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

10 Things I Hate About Celiac

Mtndog

By Mtndog
in Coping with Celiac Disease

Recommended Posts

Mtndog Collaborator
Mtndog
Posted

Please do not attempt to inject any positivity into this thread :P as I am ready to tear my hair out. I will also start a thread called 10 Things I like about being gluten free.

10. EnerG bread is an expensive sponge.

9. I am also soy intolerant and finding chocolate without soy lechitithin in it is HARD.

8. Too many autoimmune disorders in this world- why do we need another one?

7. Worrying about how I'm going to feel when I wake up in the am

6. Embarassing smelly gas :ph34r:

5. Nothing is sacred food-wise

4. That you can get glutened by orange juice

3. Celiac sprue sounds like a tree disease.

2. Traveling with my own food everywhere I go.

1. CROSS-DAM-CONTAMINATION

Ahhh....big sigh...now on to what's better in a nother thread.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 107
  • Created
  • Last Reply
Jestgar Rising Star
Jestgar
Posted
3. Celiac sprue sounds like a tree disease.

Or an expensive designer Christmas tree

Mtndog Collaborator
Mtndog
Posted
  • Author
Or an expensive designer Christmas tree

:lol: :lol: :lol: :lol:

"No I told you I don't want the BLUE SPRUCE! I want the celiac sprue!"

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

LOL too funny! I will have 10 things later..

celiac sprue tree!

:lol:

Lisa Mentor
Lisa
Posted

*Keeping a roll of toilet paper in the car and purse.

*Asking about gluten free in a restaurant and get the deer in headlights look.

*Knowing where all the restrooms are in town and know how long it takes to get there.

*Don't get dinner invitations much any more.

*Tearing up in a restaurant after looking at a menu for 20 minutes.

*Explaining, over and over and over again.

*Skinny clothes and Fat clothes - in a 12 hour day.

*100 hand washes in a day

*No more of Hazel's Caramel Cake.

*Explaining what happens when you get glutened.

Mtndog Collaborator
Mtndog
Posted
  • Author
*Keeping a roll of toilet paper in the car and purse.

Which in turn means you have to buy a bigger more expensive purse! "Hmm. I'd like the Coach bag with the tp roll attachment" "that will be an extra $200" :blink:

rsm Newbie
rsm
Posted

i just paid $4.69 for a tiny loaf of four flour bread, so excited, I was going to have grilled cheese. That bread is hideous, my old socks taste better, I ate the grilled cheese anyway, dairy and all.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DingoGirl Enthusiast
DingoGirl
Posted
"No I told you I don't want the BLUE SPRUCE! I want the celiac sprue!"

:lol::lol::lol: most excellent

Which in turn means you have to buy a bigger more expensive purse! "Hmm. I'd like the Coach bag with the tp roll attachment" "that will be an extra $200" :blink:

hmmmm.....where's our friend Richard? seems like he could design this for us...or get someone to......what an excellent Celiac invention! A lovely Coach bag, with handy metal brackets and roll on the side, for one's toilet paper! :lol:

i just paid $4.69 for a tiny loaf of four flour bread, so excited, I was going to have grilled cheese. That bread is hideous, my old socks taste better, I ate the grilled cheese anyway, dairy and all.

Well, $4.69 is quite a bargain for bad-tasting sock bread.....my recent loaf at Whole Foods was NINE DOLLARS AND TWENTY SIX CENTS......... :angry:

....and BTW, only TEN things we hate about Celiac?? I could come up with a hundred.... :( but it's a good start......

chocolatelover Contributor
chocolatelover
Posted

Hmmm...can I add to that list? How about:

-the deer in the headlights look from your relatives who don't believe gluten makes you sick?

-spending 4 hours and who knows how much money to make a loaf of bread that tastes like crap?

-having your a$$ feel like someone rubbed sandpaper on it for an hour?

I can think of more, but don't want to take anyone else's ideas! :lol:

Mtndog Collaborator
Mtndog
Posted
  • Author
....and BTW, only TEN things we hate about Celiac?? I could come up with a hundred.... :( but it's a good start......

BRING IT ON BABE! I'M ON A TEAR!

Richard Gere in Pretty Woman "I'm angry my with father;very angry!"

Me in My Life as Mtndog "I'm angry with Frito-Lay's; VERY VERY VERY Angry!"

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

embarassing trips to the bathroom in public places!

having to carry a can of Oust in your purse at all times!

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Personally, I've always found it humorous that people ALWAYS ask me the effects of being "glutened" at the dinner table.

If I had a nickel for every time that i have said "Digestive Trauma" in an effort to subtly answer that question, I would be a millionaire.

Mtndog Collaborator
Mtndog
Posted
  • Author

It just feels good to get it all out! Nice not to be alone!

mouse Enthusiast
mouse
Posted

All the food we have to throw away (especially in the beginning) because it is just plain awful.

I am having a Longaberger basket party tonight and everything is gluten free and it cost me $$$$ to prepare and MANY hours in the kitchen. Most of my friends have no concept ot the cost or time of this diet.

DingoGirl Enthusiast
DingoGirl
Posted

oaky, how about this - - - -

COOKING.

:angry::angry::angry:

Cooking every stinkin' day. I HATE to cook, could think of a THOUSAND things I'd rather do at any given moment than worry about food acquisition and preparation.......... :angry:

and how about this......the new brown rice tortillas I just discovered at Trader Joe's and bought four packs of on Saturday??? (nearly jumping up and down with glee - an exciting change from stupid corn tortillas) - - - they're hard as rocks, really chewy, and essentially, unbendable....... :angry:

more bad food, as Mouse says, to throw away. (lately I just let every bad food product "petrify" and make them into dog "bones" for the girls :huh: )

Ashley Enthusiast
Ashley
Posted

Some of these have already been listed...but, I dislike them so much that I'll list them again anyway.

10.) Extreme Pain when doing sit-ups

9.) I can't go one day without being bloated

8.) Not having enough time to eat a whole, decent meal because I don't have the time to cook/ lack of convience

7.) The pointless use of 'barely malt' in any food items.

6.) Dodging the question of "what does gluten to do you?" at the table, due to the squeamish stomachs of most.

5.) Being gluten-free is hell when you travel, especially when you're without your mom that know how to help you.

4.) Ener-G. The entire brand. Waste of money...honestly, I don't see how people can eat it without gagging.

3.) When people "think" they know what gluten and Celiac is when they really don't. One man tried to agrue that 'casein' was wheat...

2.) The horrible stinging in my hands once I've handled gluten

1.) Being hungry all the time but I can't eat too much because it's so painful to eat.

-Ash

Mtndog Collaborator
Mtndog
Posted
  • Author
Some of these have already been listed...but, I dislike them so much that I'll list them again anyway.

7.) The pointless use of 'barely malt' in any food items.

6.) Dodging the question of "what does gluten to do you?" at the table, due to the squeamish stomachs of most.

-Ash

Oh yeah- good old barley malt ended up in my ex-favorite herbal tea (Celestial Seasonings Vanilla maple) Grrrrr!!!!!!!!!!!!!! Emulsifiers and binders are for wimps!!!!!!!!!!!!!!! I want my food straight up!

As far as #6 goes I say it's like having a really bad stomach flu and hangover at the same time. Don't usually need to go much further. :rolleyes:

miles2go Contributor
miles2go
Posted

1. Knowing that I was born a certain way, like everyone else and then earning stories about beings who may be undiagnosed gluten-intolerant for whatever reason.

2. Gluten sneaking into every processed product imaginable.

3. The FDA.

4. People who stood in line for hours on end in the past in Northern Europe for a product that probably wasn’t good for them, but was the only food they could get.

5. Other people who are starving, since I kind of know what it feels like.

6. The communion host and issues with that.

7. Eight years spent on things I hadn’t planned.

8. Trusting a product or someone to cook for you and having it back-fire through ignorance and not intent.

9. The endless search for non-barley malt and those lovely malted Easter eggs and malted milk balls and malted milks.

10. Redbridge hasn’t made it to central Maine yet.

darlindeb25 Collaborator
darlindeb25
Posted

Can I add to the list:

Fearing the kisses of your beautiful grandchildren!

A brother who thinks barley soup is all I need to make me well!

I agree, the need to know where every bathroom is along the way to anywhere!

Not being able to trust others with my food!

The knowledge that "normal" is something I will never achieve!

And the worst thing, knowing I shared this with my kids and probably their kids!

missy'smom Collaborator
missy'smom
Posted
As far as #6 goes I say it's like having a really bad stomach flu and hangover at the same time. Don't usually need to go much further. :rolleyes:

This is actually a pretty good explanation. I may start using it.

johnsoniu Apprentice
johnsoniu
Posted
Which in turn means you have to buy a bigger more expensive purse! "Hmm. I'd like the Coach bag with the tp roll attachment" "that will be an extra $200" :blink:

Yea, try fitting a double roll of Xtra soft Cottonelle in your Wallet!

I'm as secure in my manhood as the next guy, but I don't do "man bags" B)

Jestgar Rising Star
Jestgar
Posted
Yea, try fitting a double roll of Xtra soft Cottonelle in your Wallet!

I'm as secure in my manhood as the next guy, but I don't do "man bags" B)

I'm sure someone must make belt clips. So right next to your phone and pager you can clip on your toilet roll holder.

blueeyedmanda Community Regular
blueeyedmanda
Posted

1) I don't care what anyone says....I miss some of my old foods.

2) Social Situations

3) Catered meals at work you have to pass up on and everyone shuns you for it.

4) Having to become paranoid.

5) Expensive food.

6) Limited dining places depending on your location.

7) Product availabilty depending on location. I feel for for rural people. I live in a city and things are limited.

8) The embaressing symptoms.

9) NO one understands unless they are gluten free.

10) People who still offer you gluten free, people who know you can't have it and then say in the sing-song voice....oh you can't have cake...or you can't have fill in the blank...***holes!

There is my list. As many good things that have come along since going gluten free, I still have my tears.

confused Community Regular
confused
Posted

1. my kids saying mom you can eat this can you cause it has gluten.

2. having pms and u have no idea what to eat

3. knowing your kids should not eat gluten

4. being mad that everything has gluten or milk

5. having to think what to have for dinner every night

6. afraid to go out to eat, cause living in a small town

7. knowing family members before you had this disease but never diagnosed

8. having pms and seeing candy on the counter you cant have

9. paying an high price for beer

10. making stupid mistakes that leave u feeling likfe crap for days

paula

miles2go Contributor
miles2go
Posted
7) Product availabilty depending on location. I feel for for rural people. I live in a city and things are limited.

There is my list. As many good things that have come along since going gluten free, I still have my tears.

No tears here, blueeyedmanda, we eyeball them free-range chickens next door daily. :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.