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Do You Celebrate Your Celiac Diagnosis Day?

gfgypsyqueen

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gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

It seems that my past life was the life that I got to eat whatever I want where ever I wanted. Food was just something that tasted great and I craved different things at different times, like chocolate . . . I never read a label, execpt to look at the fat content and probably buy it anyway. Now after years of being sick and never knwoing what the problem was I found out about Celiacs. After the Celiac diagnosis I go through phases of missing the old days - pre-celiacs.

So I was wondering does anyone else celebrate their diagnosis day? Or am I just a tad crazy :rolleyes: I try to remember the day by going out to eat to my favorite gluten-free restaturant (PF Chang's) and really enjoying a good meal out with friends.

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jerseyangel Proficient
jerseyangel
Posted

I don't celebrate it, as such, but last year on June 2nd (my first gluten-free anniversary), I did stop and remember how far I'd come and how much things had changed since before I was diagnosed. :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Oh yea, it's my other 'birthday'. Being a twinless twin I don't usually celebrate my real one so my Diagnosis day is a day to feel good and treat myself. It will be 5 years 11/20 :)

angel-jd1 Community Regular
angel-jd1
Posted

Mine is New Years Eve Day.........sooo EVERYBODY celebrates mine :P Didn't you realize that is what the party in New York's Times Square is all about.........my gluten-free anniversary?! ! haha :lol:

-Jessica :rolleyes:

miles2go Contributor
miles2go
Posted

Absolutely! And I got a kind of nebulous dx, so I celebrate that day in September and also the day I went completely gluten-free in January, so I get two days. :) We can eat anything we want, just as long as we know how to substitute.

It is great to feel well!

Partay on!

:D :D :D

celiacgirls Apprentice
celiacgirls
Posted

Mine was yesterday! I thought I would celebrate but I forgot about it. I take that as a positive since being gluten-free is fading into the background now and is just a part of my life.

happygirl Collaborator
happygirl
Posted

We celebrate it at my house! :) Getting the diagnosis gave me my life back....

This summer will be three years for me! :)

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gfp Enthusiast
gfp
Posted

??

I don't even celebrate my birthday... if I can get away with it.

Indeed, Im a bit embarassed to say but when I moved I had 5yrs worth of unopened birthday and XMas cards...to throw away.,..

kbtoyssni Contributor
kbtoyssni
Posted
Oh yea, it's my other 'birthday'. Being a twinless twin I don't usually celebrate my real one so my Diagnosis day is a day to feel good and treat myself. It will be 5 years 11/20 :)

I treat mine as a second birthday, too! Why not celebrate the fact that I've got my life back? Last year (my one-year) I had my friends over for a gluten-free dinner.

chocolatelover Contributor
chocolatelover
Posted

I definitely will--it's only been a couple of months, but I really do feel like the day I went off gluten was the day I regained my life. I feel better now than I have for the past 20 years.

I love the idea of celebrating going gluten free!

:P

aikiducky Apprentice
aikiducky
Posted

I don't have a diagnosis, and I don't actually remember when exactly I went gluten free any more. It was somewhere in October or November 2004, but other than that... maybe I should just celebrate for two months straight. :D

Pauliina

mamabear Explorer
mamabear
Posted

Well, considering my biopsy was done on April Fool's Day and the GI didn't tell me he had added a biopsy for celiac disease, so I didn't get the chance to eat one more piece of real birthday cake.... And I thought it was just an extended April Fool's joke....no, I don't celebrate the day. I do however celebrate my heightenned awareness of celiac disease and gluten sensitivity on a daily basis.....personally and professionally.

Generic Apprentice
Generic
Posted

Nope, I have no idea what day I was diagnosed. All I remember was it was 1988, I was at a restaurant with my mom eating a huge stack of pancakes and she dropped the bomb.

Nantzie Collaborator
Nantzie
Posted

I don't, but I think it's a neat idea. Mine was a few days after Christmas '05, not sure exactly when though... Considering my biopsy was in mid-Feb, it's no wonder I had a negative biopsy. :P

By the time Christmas was over I could barely make myself eat any of the "goodies". So I just threw in the towel and went gluten-free because I knew I wasn't eating enough gluten for a positive biopsy as it was. I just couldn't make myself eat it anymore.

Nancy

sugarlust Newbie
sugarlust
Posted

you all have such good storys about going gluten free, it makes me feel very positive about celebrating my 1 year anni of being gluten free on the 25th april 2008! (yes went gluten free 2 days ago!)

doctor did 1 celiac blood test and decided i dont have it, apparently i have IBS and anxiety..... but i know i have a history of feeling 'better' after going gluten free in the past (was very young at the time tho and didnt stick with it for long, even tho it it made me feel Heaps better in only 2 weeks! kids eh ;) )

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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