Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Interesting Article In The New Scott Free Issue


jerseygrl

Recommended Posts

jerseygrl Explorer

There is an article about a young woman who has just been dx'd with celiac disease. Now, instead of the flirtatious girl that she once was, she feels

extremely inhibited socially. She worries about getting glutened by kissing someone! In fact, she has been known to carry a new toothbrush

and toothpaste to any party in case she meets someone she's attracted to.. Now, there are a whole lot of "issues" I could comment

on regarding this, but for now, I am curious about this one aspect -- I dont have celiac, but my young DD does --

is it common to have to worry about playing "tonsil-hockey" with someone (of course, she's not dating till she's 30, heh heh!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



snapple Apprentice

I don't know about everyone else, but I do worry about kissing those that eat gluten. I have been known to be so strict about others lips touching mine, that my husband started comlaining a lot (he wasn't getting his daily alottment of kisses :P ) . I have toned it down some, but yes, it is something I really am careful with. Usually if it has been a few hours or he has brushed his teeth, than we can kiss freely. other than that, we usually stop and think before kissing ensues. Spontaneous is no longer part of our vocab :lol:

Kate

jerseygrl Explorer

Wow, this concern just never occured to me. But then again, there was the girl who died 6 months or so ago by kissing her boyfriend

after he ate peanuts. She was allergic, and I guess he just didnt think about it...... so sad.

Nantzie Collaborator

Yep. My husband doesn't kiss me if he's had gluten. He has to brush his teeth first. Or if several hours have gone by, it seems to be okay.

Just like the rest of the celiac life, the boys who really care about her will be more than willing to do what they need to do to keep her safe and healthy. It will probably weed out a lot of jerks. ;)

My daughter also is going to have to deal with this when she dates. Although my husband assures me that we're moving to an island, patrolled by boyfriend-eating sharks. :lol: I'm pretty sure he's kidding. :unsure:

:D

Nancy

jerseygrl Explorer

I don't know how old your daughter is, Nan, but maybe by the time my 6yo learns how to jump the BF-eating sharks,

there will be a cure or a pill ofr celiac disease ;)

Nantzie Collaborator

LOL!

Nancy

blueeyedmanda Community Regular
Wow, this concern just never occured to me. But then again, there was the girl who died 6 months or so ago by kissing her boyfriend

after he ate peanuts. She was allergic, and I guess he just didnt think about it...... so sad.

That is sad, it probably was the last thing on his mind.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kyalesyin Apprentice

We've had problems with kissing a few times here....

We know when I've had gluten and not gotten rid of it- my wife gets rash around her mouth. I find that eating cheese works well- seems to pick up any clinging gluten and get rid of it very effectively.

jerseygrl Explorer

Oddly, my DD never has stomach discomfort when glutened -- she just gets terribly aggitated and really "wigs out" neurologically.

That should make for an interesting dating scenerio!! :lol::blink:

mandasmom Rookie

My husband is really allergic to shell fish--I sent him to the hospital on our honeymoon bacuse I had eaten lobster and then kissed him!!!! We are very careful about kissing....lots of toothbrushes in our house!!!! But i have given up my seafood..just to be sure!!

sfm Apprentice
There is an article about a young woman who has just been dx'd with celiac disease. Now, instead of the flirtatious girl that she once was, she feels

extremely inhibited socially. She worries about getting glutened by kissing someone! In fact, she has been known to carry a new toothbrush

and toothpaste to any party in case she meets someone she's attracted to.. Now, there are a whole lot of "issues" I could comment

on regarding this, but for now, I am curious about this one aspect -- I dont have celiac, but my young DD does --

is it common to have to worry about playing "tonsil-hockey" with someone (of course, she's not dating till she's 30, heh heh!)

I don't always think of things like that - but my boyfriend will not kiss me, after eating gluten, until he has had a chance to rinse his mouth or chew gum for awhile. My children are the same way, and won't drink from my straw or my cup if they've been eating gluten. And it does make sense, if you think about it... I am extremely sensitive to very small amounts of gluten.

Sheryll

zansu Rookie

it does give all new meaning to the phrase "you make me sick!" :o

Karen B. Explorer

When I was first diagnosed, I didn't believe that it could be that sensitive. I was still thinking of it like an allergy (a little bit is okay). My hubby didn't tell me what he was doing but for a few weeks, he tracked which days he had raisin bran for breakfast and which days he had a gluten-free hot cereal. He also called me at work to see if I was having tummy troubles.

After a few weeks he showed me the results and we've been careful since then. Understand that we've been married for over 20 years and I'm not talking about a major lip lock. Our only morning contact was a quick peck on the way out the door and it was enough to make my tummy rumble all day. That was when I started changing my paradigm for Celiac from a dimmer switch (like my MSG allergy) to an on/off switch.

I would almost think that such sensitivity was psychosomatic except that I didn't know he was tracking my answers when I gave them. When he charted it, there wasn't a lot more to say but "You're right, Dear!"

Sneaky man, my husband.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,913
    • Most Online (within 30 mins)
      7,748

    Jennrhart
    Newest Member
    Jennrhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.