Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Did I Do Wrong This Time?!?!?!?


Walter S

Recommended Posts

Walter S Explorer

Hello All. I had another party yesterday. It was a second birthday for my friend's son. I have a lot of friends with young children and many godchildren, so I attend a lot of parties. Well, I thought for sure I had everything planned out to be safe this time. I brought all of my own food (wrapped) and onl ate what I brought. I had a gluten free bagel before the party (I was there very eraly helping set up for the party and picking things up because the boy's mother and I are very close friends and she is going htrough a divorce so I try to help her as much as possible!) So then during the party I had a plain baked chicken cutlet (which I cooked at home) on gluten free bread. I drank decaf tea (black), which I have been drinking right along, and water. The only other thing I had was a handful of blue organic corn chips which I understood to be gluten free as per the literature I received from my nutritionist. I have been having blue corn chips on accassion for a snack or with a sandwich at lunch. The only thing different is that I got a different brand at the supermarket when I was picking up the food for the party. Could that be the problem? The fact that it was a different brand. I was doing ok most of the day, but after most guests had left I was helping to clean up when the diarrhea struck very bad. I was running in and out of the bathroom and just barely making it. Eventually I had to leave without being able to help finish cleaning up. I felt bad about that, but of course I couldn't help it. Basically anytime I eat away from home (even though I bring my own food) I still get sick. It's frustrating and embarassing. I'm not sure what else to do or what I am doing wrong? The only thing I can think of is that the brand of blue corn chips was different and so next time I will take care of that, but is that likely to be the culprit here? I'm just not sure. Thanks in advance for any input you might offer. I know people have said I should give it time becasue it takes months to heal and feel better, but it doesn't seem like a coincidence that everytime I eat away from home that I get sicker than usual. Perhaps it is just a matter of time, but I wonder if I am doing something wrong and not realizing it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wowzer Community Regular

Maybe CC. From maybe shaking someones hand. Also check the ingredients on the bag. I'm sure that has to be so frustrating, especially when you bring your own food.

Teacher1958 Apprentice
Hello All. I had another party yesterday. It was a second birthday for my friend's son. I have a lot of friends with young children and many godchildren, so I attend a lot of parties. Well, I thought for sure I had everything planned out to be safe this time. I brought all of my own food (wrapped) and onl ate what I brought. I had a gluten free bagel before the party (I was there very eraly helping set up for the party and picking things up because the boy's mother and I are very close friends and she is going htrough a divorce so I try to help her as much as possible!) So then during the party I had a plain baked chicken cutlet (which I cooked at home) on gluten free bread. I drank decaf tea (black), which I have been drinking right along, and water. The only other thing I had was a handful of blue organic corn chips which I understood to be gluten free as per the literature I received from my nutritionist. I have been having blue corn chips on accassion for a snack or with a sandwich at lunch. The only thing different is that I got a different brand at the supermarket when I was picking up the food for the party. Could that be the problem? The fact that it was a different brand. I was doing ok most of the day, but after most guests had left I was helping to clean up when the diarrhea struck very bad. I was running in and out of the bathroom and just barely making it. Eventually I had to leave without being able to help finish cleaning up. I felt bad about that, but of course I couldn't help it. Basically anytime I eat away from home (even though I bring my own food) I still get sick. It's frustrating and embarassing. I'm not sure what else to do or what I am doing wrong? The only thing I can think of is that the brand of blue corn chips was different and so next time I will take care of that, but is that likely to be the culprit here? I'm just not sure. Thanks in advance for any input you might offer. I know people have said I should give it time becasue it takes months to heal and feel better, but it doesn't seem like a coincidence that everytime I eat away from home that I get sicker than usual. Perhaps it is just a matter of time, but I wonder if I am doing something wrong and not realizing it.
Teacher1958 Apprentice

Hi,

I'm assuming that you checked the label on the new chips. If not, it could certainly be the chips. I haven't been doing this very long (only a month), but I have found that I have to be very brand specific when I purchase products. For example, I love to eat hummus, and the store where I shop has several varieties. I have been buying the one kind and doing fine, but I wanted a smaller quantity the last time I shopped, so I picked up another brand. I decided to check the label just to make sure it was okay. I was shocked to find that it was made on machinery that processed wheat. I went ahead and checked all of the other brands and flavors and found that the only one that was gluten free was the one I had been buying all along. I am going to just put out a few questions for you to think about:

1) When you heated up the chicken at the party, what did you put the chicken on to heat it up?

2) There were lots of little ones at the party, and you know how thorough (not) small children are about washing their hands. Is there any chance that you might have dried your hands on a towel that had a hidden residue of cake frosting or something like that?

3) Also, check all cups and dishes before you use them. My dishwasher sometimes kicks up crumbs onto cups and dishes, then during the drying cycle, the hot crumbs stick to the dishes. If you're using a dark colored dish, you might not see one.

4) I assume the tea was the same brand you always use.

5) You didn't toast the gluten free bread before you ate it, did you? That's something I didn't even think about until I was ready to eat my toast, and my husband said, "No, don't do it!" Duh. The toaster was filled with wheat crumbs.

This disease is so frustrating. We have to be on our toes every time we open our mouths. Yesterday I just plain lucked out. I decided to try some restaurant food at a Thai restaurant, so I ordered steamed vegetables with tofu. Well, the food arrived, and the tofu had been deep fried. I had already asked the waitress if the tofu would be breaded, and she said 'no.' I ate a bite of the tofu and then panicked!! What if the tofu had been deep fried with other breaded foods??? I gave the tofu to my son and waited for the agony to begin, but it never did. My son reminded me that Thais don't usually bread their food. However, if it had been a Japanese restaurant, I would have been in a world of hurt, because they bread and deep fry their foods very frequently. I was reading Living Gluten-Free for Dummies, and they recommended that we have our own separate colanders and pasta spoons, because the residue of pasta is very difficult to totally remove in the cleaning process.

Oh well, I'm getting long winded again, so I will sign off. I hope you can find out what went wrong. Eating is such a social event, and it's hard to be in situations where we can't partake like other people.

happygirl Collaborator

Walter,

Did you check the ingredients on the chips? Unless you KNOW it is safe, don't eat it.

My two main guesses are:

In cleaning up, helping, etc you might have touched something, ad then touched your mouth.

My hunch though, is that since you are still new to the diet, you haven't healed, so your body isn't properly digesting food yet. So even if you are gluten free, you can still be getting sick.

Pick up some immodiums to keep with you and take whenever you are out/when you start feeling ill.

kbtoyssni Contributor

I would also be suspicious that someone ate something with gluten, then reached into the chip bag and contaminated everything. It's pretty risky eating anything at a party if there are gluten foods around.

JEM123 Newbie

I would also be suspicious that someone ate something with gluten, then reached into the chip bag and contaminated everything. It's pretty risky eating anything at a party if there are gluten foods around.

[/quote

That's my thought too. CC from someone else handling the chips.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Karen B. Explorer

This may be a dumb question, but kids can be enthusiastic. Any of them kiss you on the mouth after eating cake or grab your hand with cake crumbs on theirs?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    bostonbell
    Newest Member
    bostonbell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.