Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Thoughts Please...

SunnyDyRain

Recommended Posts

SunnyDyRain Enthusiast
SunnyDyRain
Posted

I am just asking for positive vibes and energy for my father, he was slightly out of it this Sunday, Monday things got worse, he fell, so my mom took him to the ER, they say it was probably minor stokes. He isn't completely aware of what is going on, but they ran lots of tests. They are keeping him in the hospital, but i'm worried about him. Yesterday he couldn't find his car in the parking lot so I had to go pick him up at work. Just now talking with him he told me to make sure I did my homework... I've been out of school for 4 years. I'm very worried and scared.

When thinking about my celiac it seems so trivial when thinking about the stuff that going on in my dad's head.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Good luck to your Dad, SunnyDyRain!

confused Community Regular
confused
Posted

thinking about your dad. we went threw years of that happening to my grandpa.

paula

blueeyedmanda Community Regular
blueeyedmanda
Posted

I will keep your dad and the rest of your family in our prayers. Hope things get better. Did you come back home or are you still up there?

jerseyangel Proficient
jerseyangel
Posted

I know how worried you must be. Please know that I'll keep your dad in my thoughts and prayers :)

wolfie Enthusiast
wolfie
Posted

I will keep your Dad in my thoughts and prayers. Please let us know how he is doing.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author
I will keep your dad and the rest of your family in our prayers. Hope things get better. Did you come back home or are you still up there?

I'm still down here, my mom told me there is nothing I can do if I were to come home. He is in CMC still, they keeping him until they know for sure what It was and if it was some new meds they but him on that caused it. I was home on monday when he couldn't find his car in the parking lot at work so i had to pick him up. I will probally be coming home again this weekend, unless my mom tells me not to. I have the 4-8th off so I will be home for a long time then.

My mom said that they were expecting more news from the nurologist this morning, but haven't heard yet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jkmunchkin Rising Star
jkmunchkin
Posted

I'll definately be thinking of you and your dad. Keep us posted on his recovery.

debmidge Rising Star
debmidge
Posted

Hope your Dad gets his strength back and doctors give him treatment/meds which will keep him from having another episode.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author

It's day 3 and they still have no answers on what happened. They arn't even sure that it was a stroke anymore. They ran lots and lots of tests, and the best they can say is they think that some drug he was taking interfered with another drug, and caused his blood pressure to drop and loose his balance. They arn't addressing the fact he has no memory of monday at all, or that he ever was confused. They can't even tell us what drugs interacted... he's on almost 10 prescriptions. My mom hasn't been able to talk to the nurologist, she gets there 7 in the morning, but the doc has allready come in and out.. they tell my dad stuff, and by the time she gets there, he can't remember it all. His other doctors have come by, but mostly just to check in. She dosen't think that any of them are talking to each other, so no one is really understanding all his problems. I am getting so frustrated, I keep telling my mom to go and ask to see his chart. She needs to find out what he is being tested for, make sure he is being tested for things like B12 deficency or celiac! (had to throw that in). I am about 2 hours away, I can't go see him and demand these things for him, I need to work. Just really frustrated.

On the plus side, my mom had her Dr appointment today and she has blood test script for the Celiac Panel. My mom is not too happy with it, but our doc told her "Dr Anna" (that's me) insisted that she get tested. She is having really bad leg cramps, and while she is avoiding wheat, she isn't gluten-free at all. Tuesday she ate a PBJ sandwich, and the next day she woke up with a migrane and vomiting. I told her it was the wheat, my mom said just stress over my dad.

Anyway thanks for letting me rant... I am really stressed over this!

Rosewynde Rookie
Rosewynde
Posted

Sunny,

Sorry to hear your having such a time of it :( We had problems with communications when my dad was in hospital with a head injury. Pin the doctors down by phone if you have too to get information or have your mom do it. She needs to get the info directly from them instead of through your dad under the circumstances. Give the nurses what for on the lack of communication and demand to be put into touch with someone that knows what's going on and what's been tested. Sometimes you have to be really witchy to get info out of hospitals.

jmd3 Contributor
jmd3
Posted

Will be saying prayers for you and your family. Please keep us posted how your dad is doing.

God-Bless you during this trying time.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author

Hey all, my dad came home yesterday. They say they don't actually think it is a stroke, they are just going on the assumption that his BP medication was too high and this new medication they put him on interacted with some other medication he was on, and he got disoriented and dizzy. I don't like how they are saying, we can't find anything else wrong, so this is what we assume happened. But he is home and my mom says he is getting back to normal (which wasn't too great to begin with actually). Thanks everyone for letting me vent and sending your prayers and support.

little d Enthusiast
little d
Posted

Sunny

My daughter and I will still say our night night prayer for you and your family

donna

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Dr. Gunn
      - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual.
    2. trents
      - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population...
    3. Dr. Gunn
      - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life.
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Spring 2026 Issue
      1

      How Social Media Algorithms Are Fueling Gluten Anxiety: TikTok, Reddit, and Instagram Trends

      Good, balanced analysis. I liked the comparison of the different platforms in this context. Fwiw, the same essay largely would work if you substitute any of many contemporary topics. As a moderator of this site, have you stepped back and considered how this site fits into this essay? Personally, I don't think I have enough visibility into the comments...
    5. Scott Adams
      - Scott Adams replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also h...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,659
    • Most Online (within 30 mins)
      7,748
    Dr. Gunn
    Newest Member
    Dr. Gunn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      Test interpretations

      By trents · Posted

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Test interpretations

      By Scott Adams · Posted

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Test interpretations

      By trents · Posted

      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.