Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Thoughts Please...


SunnyDyRain

Recommended Posts

SunnyDyRain Enthusiast

I am just asking for positive vibes and energy for my father, he was slightly out of it this Sunday, Monday things got worse, he fell, so my mom took him to the ER, they say it was probably minor stokes. He isn't completely aware of what is going on, but they ran lots of tests. They are keeping him in the hospital, but i'm worried about him. Yesterday he couldn't find his car in the parking lot so I had to go pick him up at work. Just now talking with him he told me to make sure I did my homework... I've been out of school for 4 years. I'm very worried and scared.

When thinking about my celiac it seems so trivial when thinking about the stuff that going on in my dad's head.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

Good luck to your Dad, SunnyDyRain!

confused Community Regular

thinking about your dad. we went threw years of that happening to my grandpa.

paula

blueeyedmanda Community Regular

I will keep your dad and the rest of your family in our prayers. Hope things get better. Did you come back home or are you still up there?

jerseyangel Proficient

I know how worried you must be. Please know that I'll keep your dad in my thoughts and prayers :)

wolfie Enthusiast

I will keep your Dad in my thoughts and prayers. Please let us know how he is doing.

SunnyDyRain Enthusiast
I will keep your dad and the rest of your family in our prayers. Hope things get better. Did you come back home or are you still up there?

I'm still down here, my mom told me there is nothing I can do if I were to come home. He is in CMC still, they keeping him until they know for sure what It was and if it was some new meds they but him on that caused it. I was home on monday when he couldn't find his car in the parking lot at work so i had to pick him up. I will probally be coming home again this weekend, unless my mom tells me not to. I have the 4-8th off so I will be home for a long time then.

My mom said that they were expecting more news from the nurologist this morning, but haven't heard yet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jkmunchkin Rising Star

I'll definately be thinking of you and your dad. Keep us posted on his recovery.

debmidge Rising Star

Hope your Dad gets his strength back and doctors give him treatment/meds which will keep him from having another episode.

SunnyDyRain Enthusiast

It's day 3 and they still have no answers on what happened. They arn't even sure that it was a stroke anymore. They ran lots and lots of tests, and the best they can say is they think that some drug he was taking interfered with another drug, and caused his blood pressure to drop and loose his balance. They arn't addressing the fact he has no memory of monday at all, or that he ever was confused. They can't even tell us what drugs interacted... he's on almost 10 prescriptions. My mom hasn't been able to talk to the nurologist, she gets there 7 in the morning, but the doc has allready come in and out.. they tell my dad stuff, and by the time she gets there, he can't remember it all. His other doctors have come by, but mostly just to check in. She dosen't think that any of them are talking to each other, so no one is really understanding all his problems. I am getting so frustrated, I keep telling my mom to go and ask to see his chart. She needs to find out what he is being tested for, make sure he is being tested for things like B12 deficency or celiac! (had to throw that in). I am about 2 hours away, I can't go see him and demand these things for him, I need to work. Just really frustrated.

On the plus side, my mom had her Dr appointment today and she has blood test script for the Celiac Panel. My mom is not too happy with it, but our doc told her "Dr Anna" (that's me) insisted that she get tested. She is having really bad leg cramps, and while she is avoiding wheat, she isn't gluten-free at all. Tuesday she ate a PBJ sandwich, and the next day she woke up with a migrane and vomiting. I told her it was the wheat, my mom said just stress over my dad.

Anyway thanks for letting me rant... I am really stressed over this!

Rosewynde Rookie

Sunny,

Sorry to hear your having such a time of it :( We had problems with communications when my dad was in hospital with a head injury. Pin the doctors down by phone if you have too to get information or have your mom do it. She needs to get the info directly from them instead of through your dad under the circumstances. Give the nurses what for on the lack of communication and demand to be put into touch with someone that knows what's going on and what's been tested. Sometimes you have to be really witchy to get info out of hospitals.

jmd3 Contributor

Will be saying prayers for you and your family. Please keep us posted how your dad is doing.

God-Bless you during this trying time.

SunnyDyRain Enthusiast

Hey all, my dad came home yesterday. They say they don't actually think it is a stroke, they are just going on the assumption that his BP medication was too high and this new medication they put him on interacted with some other medication he was on, and he got disoriented and dizzy. I don't like how they are saying, we can't find anything else wrong, so this is what we assume happened. But he is home and my mom says he is getting back to normal (which wasn't too great to begin with actually). Thanks everyone for letting me vent and sending your prayers and support.

little d Enthusiast

Sunny

My daughter and I will still say our night night prayer for you and your family

donna

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Dried Chickpeas

    2. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    3. - Scott Adams replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    4. - Aretaeus Cappadocia replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Dried Chickpeas

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,436
    • Most Online (within 30 mins)
      7,748

    LuluPanda
    Newest Member
    LuluPanda
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver.  😺 I react to nutritional yeast the same way as if I were glutened.  Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten.  The proteins in rice, corn (maize), and chicken meat have them as well.   Some people with Celiac might tolerate them without a problem, but I need to avoid them.  For those still having symptoms, cutting these out of our diet may improve symptoms. 
    • trents
      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
    • ainsleydale1700
    • Scott Adams
      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.