Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Thoughts Please...

SunnyDyRain

Recommended Posts

SunnyDyRain Enthusiast
SunnyDyRain
Posted

I am just asking for positive vibes and energy for my father, he was slightly out of it this Sunday, Monday things got worse, he fell, so my mom took him to the ER, they say it was probably minor stokes. He isn't completely aware of what is going on, but they ran lots of tests. They are keeping him in the hospital, but i'm worried about him. Yesterday he couldn't find his car in the parking lot so I had to go pick him up at work. Just now talking with him he told me to make sure I did my homework... I've been out of school for 4 years. I'm very worried and scared.

When thinking about my celiac it seems so trivial when thinking about the stuff that going on in my dad's head.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Good luck to your Dad, SunnyDyRain!

confused Community Regular
confused
Posted

thinking about your dad. we went threw years of that happening to my grandpa.

paula

blueeyedmanda Community Regular
blueeyedmanda
Posted

I will keep your dad and the rest of your family in our prayers. Hope things get better. Did you come back home or are you still up there?

jerseyangel Proficient
jerseyangel
Posted

I know how worried you must be. Please know that I'll keep your dad in my thoughts and prayers :)

wolfie Enthusiast
wolfie
Posted

I will keep your Dad in my thoughts and prayers. Please let us know how he is doing.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author
I will keep your dad and the rest of your family in our prayers. Hope things get better. Did you come back home or are you still up there?

I'm still down here, my mom told me there is nothing I can do if I were to come home. He is in CMC still, they keeping him until they know for sure what It was and if it was some new meds they but him on that caused it. I was home on monday when he couldn't find his car in the parking lot at work so i had to pick him up. I will probally be coming home again this weekend, unless my mom tells me not to. I have the 4-8th off so I will be home for a long time then.

My mom said that they were expecting more news from the nurologist this morning, but haven't heard yet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jkmunchkin Rising Star
jkmunchkin
Posted

I'll definately be thinking of you and your dad. Keep us posted on his recovery.

debmidge Rising Star
debmidge
Posted

Hope your Dad gets his strength back and doctors give him treatment/meds which will keep him from having another episode.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author

It's day 3 and they still have no answers on what happened. They arn't even sure that it was a stroke anymore. They ran lots and lots of tests, and the best they can say is they think that some drug he was taking interfered with another drug, and caused his blood pressure to drop and loose his balance. They arn't addressing the fact he has no memory of monday at all, or that he ever was confused. They can't even tell us what drugs interacted... he's on almost 10 prescriptions. My mom hasn't been able to talk to the nurologist, she gets there 7 in the morning, but the doc has allready come in and out.. they tell my dad stuff, and by the time she gets there, he can't remember it all. His other doctors have come by, but mostly just to check in. She dosen't think that any of them are talking to each other, so no one is really understanding all his problems. I am getting so frustrated, I keep telling my mom to go and ask to see his chart. She needs to find out what he is being tested for, make sure he is being tested for things like B12 deficency or celiac! (had to throw that in). I am about 2 hours away, I can't go see him and demand these things for him, I need to work. Just really frustrated.

On the plus side, my mom had her Dr appointment today and she has blood test script for the Celiac Panel. My mom is not too happy with it, but our doc told her "Dr Anna" (that's me) insisted that she get tested. She is having really bad leg cramps, and while she is avoiding wheat, she isn't gluten-free at all. Tuesday she ate a PBJ sandwich, and the next day she woke up with a migrane and vomiting. I told her it was the wheat, my mom said just stress over my dad.

Anyway thanks for letting me rant... I am really stressed over this!

Rosewynde Rookie
Rosewynde
Posted

Sunny,

Sorry to hear your having such a time of it :( We had problems with communications when my dad was in hospital with a head injury. Pin the doctors down by phone if you have too to get information or have your mom do it. She needs to get the info directly from them instead of through your dad under the circumstances. Give the nurses what for on the lack of communication and demand to be put into touch with someone that knows what's going on and what's been tested. Sometimes you have to be really witchy to get info out of hospitals.

jmd3 Contributor
jmd3
Posted

Will be saying prayers for you and your family. Please keep us posted how your dad is doing.

God-Bless you during this trying time.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author

Hey all, my dad came home yesterday. They say they don't actually think it is a stroke, they are just going on the assumption that his BP medication was too high and this new medication they put him on interacted with some other medication he was on, and he got disoriented and dizzy. I don't like how they are saying, we can't find anything else wrong, so this is what we assume happened. But he is home and my mom says he is getting back to normal (which wasn't too great to begin with actually). Thanks everyone for letting me vent and sending your prayers and support.

little d Enthusiast
little d
Posted

Sunny

My daughter and I will still say our night night prayer for you and your family

donna

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases...
    2. McKinleyWY
      - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast. All my life I have avoided bread and most products containing enriched flour as they contain yeast (when making the man made vitamins to add back in to the flour). Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat...
    3. trents
      - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you...
    4. Peace lily
      - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    5. Teaganwhowantsanexpltion
      - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,238
    • Most Online (within 30 mins)
      7,748
    tcpb
    Newest Member
    tcpb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      A little about me and my celiac disease

      By trents · Posted

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Gluten Free Coffee

      By Peace lily · Posted

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      A little about me and my celiac disease

      By Teaganwhowantsanexpltion · Posted

      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.