Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Thoughts Please...

SunnyDyRain

Recommended Posts

SunnyDyRain Enthusiast
SunnyDyRain
Posted

I am just asking for positive vibes and energy for my father, he was slightly out of it this Sunday, Monday things got worse, he fell, so my mom took him to the ER, they say it was probably minor stokes. He isn't completely aware of what is going on, but they ran lots of tests. They are keeping him in the hospital, but i'm worried about him. Yesterday he couldn't find his car in the parking lot so I had to go pick him up at work. Just now talking with him he told me to make sure I did my homework... I've been out of school for 4 years. I'm very worried and scared.

When thinking about my celiac it seems so trivial when thinking about the stuff that going on in my dad's head.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Good luck to your Dad, SunnyDyRain!

confused Community Regular
confused
Posted

thinking about your dad. we went threw years of that happening to my grandpa.

paula

blueeyedmanda Community Regular
blueeyedmanda
Posted

I will keep your dad and the rest of your family in our prayers. Hope things get better. Did you come back home or are you still up there?

jerseyangel Proficient
jerseyangel
Posted

I know how worried you must be. Please know that I'll keep your dad in my thoughts and prayers :)

wolfie Enthusiast
wolfie
Posted

I will keep your Dad in my thoughts and prayers. Please let us know how he is doing.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author
I will keep your dad and the rest of your family in our prayers. Hope things get better. Did you come back home or are you still up there?

I'm still down here, my mom told me there is nothing I can do if I were to come home. He is in CMC still, they keeping him until they know for sure what It was and if it was some new meds they but him on that caused it. I was home on monday when he couldn't find his car in the parking lot at work so i had to pick him up. I will probally be coming home again this weekend, unless my mom tells me not to. I have the 4-8th off so I will be home for a long time then.

My mom said that they were expecting more news from the nurologist this morning, but haven't heard yet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jkmunchkin Rising Star
jkmunchkin
Posted

I'll definately be thinking of you and your dad. Keep us posted on his recovery.

debmidge Rising Star
debmidge
Posted

Hope your Dad gets his strength back and doctors give him treatment/meds which will keep him from having another episode.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author

It's day 3 and they still have no answers on what happened. They arn't even sure that it was a stroke anymore. They ran lots and lots of tests, and the best they can say is they think that some drug he was taking interfered with another drug, and caused his blood pressure to drop and loose his balance. They arn't addressing the fact he has no memory of monday at all, or that he ever was confused. They can't even tell us what drugs interacted... he's on almost 10 prescriptions. My mom hasn't been able to talk to the nurologist, she gets there 7 in the morning, but the doc has allready come in and out.. they tell my dad stuff, and by the time she gets there, he can't remember it all. His other doctors have come by, but mostly just to check in. She dosen't think that any of them are talking to each other, so no one is really understanding all his problems. I am getting so frustrated, I keep telling my mom to go and ask to see his chart. She needs to find out what he is being tested for, make sure he is being tested for things like B12 deficency or celiac! (had to throw that in). I am about 2 hours away, I can't go see him and demand these things for him, I need to work. Just really frustrated.

On the plus side, my mom had her Dr appointment today and she has blood test script for the Celiac Panel. My mom is not too happy with it, but our doc told her "Dr Anna" (that's me) insisted that she get tested. She is having really bad leg cramps, and while she is avoiding wheat, she isn't gluten-free at all. Tuesday she ate a PBJ sandwich, and the next day she woke up with a migrane and vomiting. I told her it was the wheat, my mom said just stress over my dad.

Anyway thanks for letting me rant... I am really stressed over this!

Rosewynde Rookie
Rosewynde
Posted

Sunny,

Sorry to hear your having such a time of it :( We had problems with communications when my dad was in hospital with a head injury. Pin the doctors down by phone if you have too to get information or have your mom do it. She needs to get the info directly from them instead of through your dad under the circumstances. Give the nurses what for on the lack of communication and demand to be put into touch with someone that knows what's going on and what's been tested. Sometimes you have to be really witchy to get info out of hospitals.

jmd3 Contributor
jmd3
Posted

Will be saying prayers for you and your family. Please keep us posted how your dad is doing.

God-Bless you during this trying time.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author

Hey all, my dad came home yesterday. They say they don't actually think it is a stroke, they are just going on the assumption that his BP medication was too high and this new medication they put him on interacted with some other medication he was on, and he got disoriented and dizzy. I don't like how they are saying, we can't find anything else wrong, so this is what we assume happened. But he is home and my mom says he is getting back to normal (which wasn't too great to begin with actually). Thanks everyone for letting me vent and sending your prayers and support.

little d Enthusiast
little d
Posted

Sunny

My daughter and I will still say our night night prayer for you and your family

donna

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748
    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.