Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By Coffee?

chatycady

Recommended Posts

chatycady Explorer
chatycady
Posted

I mixed coffee beans together, half decaf and half regular. Neither were "flavored" but I think I'm being glutened slowly by my cup of Joe. It's the only thing I changed last Thursday and am having symptoms. Off balance, brain fog, tired, back ache and I think the digestive issues will start soon.

Is plain coffee a problem? Someone told me I can not drink any decaf, is that true? I though plain coffee is always okay, but why do I feel so poorly.

I switched the brand on one, threw the bag away so don't know what brand or what it said on the bag.

If it says 100% Arabic coffee is it okay?????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
I mixed coffee beans together, half decaf and half regular. Neither were "flavored" but I think I'm being glutened slowly by my cup of Joe. It's the only thing I changed last Thursday and am having symptoms. Off balance, brain fog, tired, back ache and I think the digestive issues will start soon.

Is plain coffee a problem? Someone told me I can not drink any decaf, is that true? I though plain coffee is always okay, but why do I feel so poorly.

I switched the brand on one, threw the bag away so don't know what brand or what it said on the bag.

If it says 100% Arabic coffee is it okay?????

I think that you should look elsewhere for the gluten.

How long have you been gluten free. It does take time to heal. Coffee should not be an issue, at least not a gluten issue.

Karen B. Explorer
Karen B.
Posted

I know some decaf coffee is decafeinated using chemicals, others use a more natural approach. You might be having a reaction to chemicals used to make the coffee decaf. A friend of mine reacts to the less expensive decaf coffee.

darlindeb25 Collaborator
darlindeb25
Posted

I always use Arabian coffee, I do always make sure that it is 100% coffee though. Flavored coffees can contain gluten, not usually regular coffee.

Kayaking Mom Newbie
Kayaking Mom
Posted

I buy beans at Whole Foods and mix them also half & half, as I am trying to get off caffeine (and I really miss it too!!). Whole Foods buys the raw beans and roasts them in the store, without any flavorings. So far it is going fine.

snowcoveredheart Apprentice
snowcoveredheart
Posted

personally i have found that ive had to totally give up my coffee (which was a bind to start with!) i dont think it was to do with gluten itself, but just that my system (now ist all working) just couldnt handle the stuff... and then i was getting sysmptoms that were like being gluten'd... coffee is a natural laxative as well, so i just figured it was all to do with ...also it made me feel REALLY all anxious and nervous and skitty.... i cut it out and it went away... i can however have tea, so thats all fine.

kbtoyssni Contributor
kbtoyssni
Posted

I don't think gluten in the coffee is the problem. If anything, I'd say it could be the caffeine. I get really bad stomach pain and foggy head from caffeine - maybe you have a similar reaction?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chatycady Explorer
chatycady
Posted
  • Author

Thanks all! It has helped.

I went out and bought some regular Starbucks coffee and it made a difference. I just need my cup of joe in the morning. I don't drink caffeine the rest of the day. I've had to give up so much, I hate the thought of giving up coffee too!

So now the question is does the decaf I bought have gluten in it? Or is it the processing that causes me trouble. I guess I will never know!

Thanks all!

Chaty

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley...
    2. MogwaiStripe
      - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease. Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/
    3. Scott Adams
      0

      Tahini Swirl Fudgy Brownies (Gluten-Free)

    4. Butch68
      - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too. is this everyone’s experience? Can I drink it? I get dermatitis herpetiformis and don’t get instant react...
    5. trents
      - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,214
    • Most Online (within 30 mins)
      7,748
    Grams x 8
    Newest Member
    Grams x 8
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Gluten Issues and Vitamin D

      By MogwaiStripe · Posted

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Guinness, can you drink it?

      By Butch68 · Posted

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.