Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Guess I Am Joining In Too...


goldyjlox

Recommended Posts

goldyjlox Contributor

I Have been reading some posts here and it is all sounding too familiar. I will tell you a bit about myself first. My names is Jessica and I am 30 years old, I have two beautiful children a girl who is 3 1/2 and a boy who is 11 months. I got tendionitis years ago and have had three surgerys to try and repair it...and funny how my wrist has been bugging me the last couple of weeks. Anyways, I seemed to have gotten my symptoms after my surgerys, the normal....gas, bloating, loose stools, weight loss, constiaption, large stools. And I was diagnosed with IBS. The symptoms never really improved however I only got "outbreaks" once or twice a year. But at the birth of my son, they have been really bad and I could not stop them until I tried going gluten free and what a difference, I have not felt this good in years, eating is hard as I find that I am always hungry and I eat ALOT of fruit and eggs. But I am getting there.

Tomorrow is my Biopsy and I am nervous, I wish that I got onto this site before now. I have not been able to tolorate any Gluten so I have not eaten alot of it, I am still eating the hidden Gluten and I try and make sure that I have something with Gluten in it everyday, and with young kids that is pretty easy to do. My doctor told me that this was okay, I tried increasing my Gluten intake but gotreally sick. My daughter has not had any symptoms but my son has, and at 11 months I would think that he would not show signs. But as soon as I had introduced Wheat he started getting these super bad rashes on his bum..all over, and they look like Eczema...and I cant stop them, new ones seem to pop up all the time. And his bowl movements are large, very frequent and almost have a "foamy" look to them and smell more then usual. He doesnt seem to show too mush else yet. Could this be a sign that he may be Celiac?? I have stopped giving him Gluten 2 days ago and I am going to see if this helps.

So I guess I need some help now, I have no idea what to eat and what not to eat. I will admitt that I have not been

a good eater so far, I eat alot of junk food...a candy addiction. But I need to eat better not only for myself but for my kids. Any advice would be greatly appreciated. And I will let you know what my Biopsy results are. Do you get them right away or have to wait for weeks?

Thanks.

Jessica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Hi Jessica and welcome. :D

I'll let others chime in about good things to eat. Diet is definately important for your health.

As far as your little one I would suspect celiac with him, or if he doesn't have it yet then it would more than likely turn to that later. My son broke out with eczema just after he was 2 months old. After ELISA IgE/IgG allergy testing I went gluten lite.....still eating oats and barley because I wasn't intolerant to them.

I then did enterolab testing and found that I was gluten intolerant and had one of the main celiac genes. As soon as I went gluten free completely my sons eczema went completely away. It had diminished going gluten lite.

From what I've read testing isn't really accurate with little ones. If you test positive by biopsy then I would pursue testing with him unless you're comfortable just taking him gluten free. Did you have bloodwork done?

I've had no formal testing done and have chosen not to, but that's just me. People on the board have chosen both ways, you need to make the decision of what's best for your family.

blueeyedmanda Community Regular

Welcome Jessica!!!

jerseyangel Proficient

Welcome to the group, Jessica :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,225
    • Most Online (within 30 mins)
      7,748

    Paulyw
    Newest Member
    Paulyw
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.