Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really Confused

Spike23

Recommended Posts

Spike23 Newbie
Spike23
Posted

Hi everyone,

Would really appreciate some insight.

For the past three years i have had gas, runs, tiredness etc. I had just come back from a stint o/s so doctors sent me for numerous tests to see if i had contracted some sort of o/s parasite-no!

THEN i was diagnised with IBS, i had heard about gluten intolerances and went to my doctor to get a blood test and since then have had three more..all came back negative.

When i went to see a specialist he was like again you have IBS but i will do a gastroscopy/colonoscopy to apease you but i am sure you have IBS. I became frusrated and never had the tests done and thought well maybe i do have IBS as life is stressfull.

I then went to a Naturopath who informed me i am Gluten Intolerant and Lactose Intolerant! When i heard this i was annoyed thinking what on earth am i meant to eat now and no more chocolate!

Anyway, i went on this new diet and after a week began to feel a bit better but i relapsed and had some chocolate biscuits the other day and within half an hour i was sick but i was sicker than i ever have been before, is this because my body was beginning to get used to having No gluten and lactose?? AND my body responded so bad because of the reaction...How long does it take for Glutent to leave your body..???

This whole thing can be so annoying and if i do eat such food i am literally sick for a few days?? Does this happen to others?? I Am really confused!!!

Again would apprecaite any insight??

Thanks ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gfmolly Contributor
gfmolly
Posted

Your story sounds very much like mine. It does take awhile for your body to heal. I am on month 4 and when I get glutened, it takes about a week for my bm's to be normal and for me to feel energized. You may have celiac, the biopsy is the gold standard of diagnosis. If you respond to the gluten free diet, then you probably need to be gluten free, especially since you reacted so strongly to your mistake. If you do want a diagnosis with a biopsy, then you need to continue to eat gluten until you have it done. Unfortunately, you may get another false negative if you don't. It sounds like the naturpath can help guide you through this experience. This forum is great for getting answers! Good luck and welcome.

A couple things that might help you as you heal:

you may want to try a probiotic to help get some good bacteria in your system

alot of people have great lists for first timers on their personal accounts. Noglugirl has a really good list that can help get you started.

Terri

par18 Apprentice
par18
Posted

Just give the diet a chance. Concentrate on doing what is necessary to feel better and see what happens. A negative response to a relapse is an indication in itself. Take it one step at a time. Understand that if you have to give up something (gluten) you have the possibility of getting something (a better quality of life) in return. Think positive and good luck.

Tom

Guest j_mommy
Guest j_mommy
Posted

Yes, When I get glutened or CC'd I am not myself for days!!! big D and EXHAUSTED!!!!

Hang in there...the first few weeks are hard but it gets easier.

Also you said you were going to do an endoscopy...if you are interested in checking for celiac you need to be eating gluten!!!!

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi everyone,

Would really appreciate some insight.

For the past three years i have had gas, runs, tiredness etc. I had just come back from a stint o/s so doctors sent me for numerous tests to see if i had contracted some sort of o/s parasite-no!

THEN i was diagnised with IBS, i had heard about gluten intolerances and went to my doctor to get a blood test and since then have had three more..all came back negative.

When i went to see a specialist he was like again you have IBS but i will do a gastroscopy/colonoscopy to apease you but i am sure you have IBS. I became frusrated and never had the tests done and thought well maybe i do have IBS as life is stressfull.

I then went to a Naturopath who informed me i am Gluten Intolerant and Lactose Intolerant! When i heard this i was annoyed thinking what on earth am i meant to eat now and no more chocolate!

Anyway, i went on this new diet and after a week began to feel a bit better but i relapsed and had some chocolate biscuits the other day and within half an hour i was sick but i was sicker than i ever have been before, is this because my body was beginning to get used to having No gluten and lactose?? AND my body responded so bad because of the reaction...How long does it take for Glutent to leave your body..???

This whole thing can be so annoying and if i do eat such food i am literally sick for a few days?? Does this happen to others?? I Am really confused!!!

Again would apprecaite any insight??

Thanks ;)

You just did a gluten challenge. The results were positive. It is common for the symptoms to become worse after going gluten free and then getting poisoned. Your body is going to tell you in no uncertain terms that if does not want you eating it again. This is how some of us who are unfortunate and have false negatives on blood work are diagnosed. Unfortunately in my case it took 15 years for a doctor to think to suggest it. It took 2 weeks off gluten and then 3 days on for my body to react violently. That was 5 years ago, after 40 years of debilitating neuro and joint problems and 15 years of serious illness and thousands of dollars for tests.

hathor Contributor
hathor
Posted

You've gotten some good advice.

All I can add is -- dark chocolate, hon! Come over to the good stuff -- you won't want your chocolate adulterated with dairy ever again :lol: In addition to the straight stuff, I've seen recipes & mixes for chocolatey delights that are also dairy free. Despair not :wub:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,341
    • Most Online (within 30 mins)
      7,748
    Jim Caputo
    Newest Member
    Jim Caputo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Gluten exposure when trying to conceive

      By trents · Posted

      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Gluten exposure when trying to conceive

      By Skydawg · Posted

      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      Gluten Free Cannabis Edibles

      By ShadowLoom · Posted

      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      Damage after 13 years gluten free

      By Scott Adams · Posted

      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Damage after 13 years gluten free

      By RMJ · Posted

      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...