Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Know This Has Been Asked A Million Times, But...


holiday16

Recommended Posts

holiday16 Enthusiast

how long does it really seem to take to get over when you've accidentally had gluten? I had some on accident about a week ago. It was Wyler's bouillon and from the label I think it was because it's produced on the same machines that wheat products are. At first the reaction didn't seem too bad and I cycled through the neuro. symptoms very quickly so I thought it wouldn't be so bad.

It's been about 10 days and I'm still not feeling right. It's not super bad just low energy and I don't feel like doing anything. Right before this I had not had any "accidents" and was finally feeling better than I had in years so this makes it particularly difficult. I guess I know the answer, but it would help to know other people have reactions that last this long too. Sometimes I feel like I'm nuts for thinking feeling like this is from something that happened 10 days ago!

I can tell that mentally I'm just not back to normal yet. My reactions are slower than what they should be and my head just feels weird still. I guess one plus would be that this is the first time I've accidentally had gluten where I've been able to trace it back and know for sure. The symptoms match up with all the other times I thought I may have had gluten so I guess at least now I know all those other times I was right...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

Everyone is different. Some, like me, it only takes a few hours or a few days to recover. Others it can take up to about a month to recover fully. I think some it may take even longer. Hopefully your reaction is almost over.

jerseyangel Proficient

Everyone's reactions are different. It's not at all unusual for it to last 10 days. Mine take 2-3 weeks to feel completely normal again.

aikiducky Apprentice

Mine take two to three weeks as well. The worst and most obvious symptoms are over in a few days, but after that it takes the three weeks or so before I'm my usual perky self.

Pauliina

Aligray Apprentice

Well, im on day 5 of an accidental glutening...still havent figured out the source....

Im glad (well, not really ;) ) to read that glutenings can last over 3 days. Usually i am better by now. I thought that was the magic number. This time is just really bad.

I hope u feel better soon!

Yellow Rose Explorer

In the beginning my time was 2 days as time goes on the reactions are getting stronger and longer up to a week and a half. Hang in there.

Yellow Rose

holiday16 Enthusiast

Thank you so much to everyone that replied. I seem to finally be over it thank goodness. It looks like this one lasted 2 weeks. Now I have to catch up on cleaning the house, laundry, bills etc. Seems like when this happens I just go into "survival mode". Hmmm, and people wonder why we're so careful when it comes to gluten...

Sometimes it just helps to hear I'm not the only one that takes so long to recover. I just have no energy during it and feel so "lazy" that it gets frustrating!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748

    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.