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Introducing Myself


Guest kivmom3

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Guest kivmom3

I've been posting the past few weeks but never really introduced myself.

I got diagnosed on June 26 of this year. Prior to getting the diagnosis I had severe stomach cramping, D, and nausea. In addition to the GI symptoms, I also had sever back pain, tingling in my arms and legs, depression and a 15 year problem with severe migraines. I had 2 miscarriages and a fetal demise at 19 weeks gestation in the past 3 years. I do have 3 beautiful children, thank God for them. I am a stay at home mom and my oldest is 6 and youngest is 18 months. Since going gluten free I have felt a lot better. I would not say that I am 100% better since i still have problems on occasion. I've been keeping a food log and with that have found that I am also soy and rice intolerant and I have not tried dairy yet. It has been very hard for me to find foods and gain weight. I lost 10lbs prior to the diagnosis and have only gained 2 since then.

This site is so wonderful in so many ways and I just want to thank everyone for all the support. I check the site frequently throughout the day just so i feel like I am not the only one having bumps in the road.

Anyone have any suggestions on starches to eat other than quinoa and potatoes? I am also having a problem finding a pancake mix that does not have rice or soy in it.

Thanks everyone for everything!!!

Gg


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gfpaperdoll Rookie

Baked sweet potatoes are good. I would be careful with trying to eat the gluten-free mixes, I am now having a problem with rice & I never could eat those mixes...

An apple sliced in a baking dish & sprinkled with 100% maple syrup & maybe a little honey & some raisins, & a handful of chopped walnuts, bake or cook in microwave - makes a good breakfast. Good with ham...

mftnchn Explorer

Legumes are a good source of starch. Buckwheat is not a grain, and you may be able to find 100% buckwheat noodles.

Try the various flour mix recipes, some don't have rice flour.

hathor Contributor

Starches not yet mentioned -- wild rice (not a rice, so you might tolerate it), millet, amaranth, teff, sorghum, lentils, split peas, peas (yes, the last three are legumes, but folks sometimes just think of beans and peanuts in this category), corn, winter squashes (butternut, acorn, Hubbard, banana, pumpkin, buttercup, turban squash), other root vegetables.

For root vegetables, the list I've seen from Dr. McDougall considers the following to be starches: burdock

sweet potatoes

celeriac (celery root)

tapioca

Jerusalem artichoke (sunchoke)

taro root

jicama

water chestnuts

parsnips

white potatoes

rutabaga

yams

I can't say I've yet to try all these things. But at least I have a list :lol:

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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