Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Introducing Myself


Guest kivmom3

Recommended Posts

Guest kivmom3

I've been posting the past few weeks but never really introduced myself.

I got diagnosed on June 26 of this year. Prior to getting the diagnosis I had severe stomach cramping, D, and nausea. In addition to the GI symptoms, I also had sever back pain, tingling in my arms and legs, depression and a 15 year problem with severe migraines. I had 2 miscarriages and a fetal demise at 19 weeks gestation in the past 3 years. I do have 3 beautiful children, thank God for them. I am a stay at home mom and my oldest is 6 and youngest is 18 months. Since going gluten free I have felt a lot better. I would not say that I am 100% better since i still have problems on occasion. I've been keeping a food log and with that have found that I am also soy and rice intolerant and I have not tried dairy yet. It has been very hard for me to find foods and gain weight. I lost 10lbs prior to the diagnosis and have only gained 2 since then.

This site is so wonderful in so many ways and I just want to thank everyone for all the support. I check the site frequently throughout the day just so i feel like I am not the only one having bumps in the road.

Anyone have any suggestions on starches to eat other than quinoa and potatoes? I am also having a problem finding a pancake mix that does not have rice or soy in it.

Thanks everyone for everything!!!

Gg


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfpaperdoll Rookie

Baked sweet potatoes are good. I would be careful with trying to eat the gluten-free mixes, I am now having a problem with rice & I never could eat those mixes...

An apple sliced in a baking dish & sprinkled with 100% maple syrup & maybe a little honey & some raisins, & a handful of chopped walnuts, bake or cook in microwave - makes a good breakfast. Good with ham...

mftnchn Explorer

Legumes are a good source of starch. Buckwheat is not a grain, and you may be able to find 100% buckwheat noodles.

Try the various flour mix recipes, some don't have rice flour.

hathor Contributor

Starches not yet mentioned -- wild rice (not a rice, so you might tolerate it), millet, amaranth, teff, sorghum, lentils, split peas, peas (yes, the last three are legumes, but folks sometimes just think of beans and peanuts in this category), corn, winter squashes (butternut, acorn, Hubbard, banana, pumpkin, buttercup, turban squash), other root vegetables.

For root vegetables, the list I've seen from Dr. McDougall considers the following to be starches: burdock

sweet potatoes

celeriac (celery root)

tapioca

Jerusalem artichoke (sunchoke)

taro root

jicama

water chestnuts

parsnips

white potatoes

rutabaga

yams

I can't say I've yet to try all these things. But at least I have a list :lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    3. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,261
    • Most Online (within 30 mins)
      7,748

    Pbaentine
    Newest Member
    Pbaentine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.