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Introducing Myself


Guest kivmom3

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Guest kivmom3

I've been posting the past few weeks but never really introduced myself.

I got diagnosed on June 26 of this year. Prior to getting the diagnosis I had severe stomach cramping, D, and nausea. In addition to the GI symptoms, I also had sever back pain, tingling in my arms and legs, depression and a 15 year problem with severe migraines. I had 2 miscarriages and a fetal demise at 19 weeks gestation in the past 3 years. I do have 3 beautiful children, thank God for them. I am a stay at home mom and my oldest is 6 and youngest is 18 months. Since going gluten free I have felt a lot better. I would not say that I am 100% better since i still have problems on occasion. I've been keeping a food log and with that have found that I am also soy and rice intolerant and I have not tried dairy yet. It has been very hard for me to find foods and gain weight. I lost 10lbs prior to the diagnosis and have only gained 2 since then.

This site is so wonderful in so many ways and I just want to thank everyone for all the support. I check the site frequently throughout the day just so i feel like I am not the only one having bumps in the road.

Anyone have any suggestions on starches to eat other than quinoa and potatoes? I am also having a problem finding a pancake mix that does not have rice or soy in it.

Thanks everyone for everything!!!

Gg


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gfpaperdoll Rookie

Baked sweet potatoes are good. I would be careful with trying to eat the gluten-free mixes, I am now having a problem with rice & I never could eat those mixes...

An apple sliced in a baking dish & sprinkled with 100% maple syrup & maybe a little honey & some raisins, & a handful of chopped walnuts, bake or cook in microwave - makes a good breakfast. Good with ham...

mftnchn Explorer

Legumes are a good source of starch. Buckwheat is not a grain, and you may be able to find 100% buckwheat noodles.

Try the various flour mix recipes, some don't have rice flour.

hathor Contributor

Starches not yet mentioned -- wild rice (not a rice, so you might tolerate it), millet, amaranth, teff, sorghum, lentils, split peas, peas (yes, the last three are legumes, but folks sometimes just think of beans and peanuts in this category), corn, winter squashes (butternut, acorn, Hubbard, banana, pumpkin, buttercup, turban squash), other root vegetables.

For root vegetables, the list I've seen from Dr. McDougall considers the following to be starches: burdock

sweet potatoes

celeriac (celery root)

tapioca

Jerusalem artichoke (sunchoke)

taro root

jicama

water chestnuts

parsnips

white potatoes

rutabaga

yams

I can't say I've yet to try all these things. But at least I have a list :lol:

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
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    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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