Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Informal Poll


L.A.

Recommended Posts

L.A. Contributor

Hi Everyone: I really miss oatmeal...and was wondering who eats oats and who doesn't. Too many conflicting reports on whether oats are safe and I'm afraid to try them for fear of getting sick. Would love your input. Just leaving work now, but will check back in the morning. Thanks, L.A.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Luisa2552 Apprentice

I'm still healing and afraid to try them. I'm going to look into the guaranteed gluten-free ones.

burdee Enthusiast

There are several varieties of certified gluten free oats (grown in oats only fields, processed in oats only factories and verified gluten free). I tried and like "Gifts of Nature" and "Gluten Free Oats". I'm VERY sensitive to gluten (react with painful cramps and bloating). I did not react to either of those.

BURDEE

sickchick Community Regular

I eat oats. Oat flour. :)

MaryJones2 Enthusiast

I've tried several brands of gluten free oats and can say that oats cause the worst reaction of all the glutens for me.

happygirl Collaborator

I have successfully eaten certified gluten free oats.

NWLAX36Mom Rookie
I've tried several brands of gluten free oats and can say that oats cause the worst reaction of all the glutens for me.

Does that mean that gluten free oats do cause the worst reaction or all or regular oats?

I miss oats more than anything but I'm still too afraid to try even the gluten free ones yet. If I test well once I have follow-up medical tests, I am planning to try them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rsm Newbie

I have purchased some guaranteed gluten free oats but have been too afraid to try them. I love oatmeal, but raw oats have always been a problem for me. When I get the courage up I'll try them. They are very expensive! The brand I have is also Gifts of nature.

mamaw Community Regular

I have been gluten-free for over 4 years now , I started eating oats when they first became available.If you are new to the diet & not recovered yet I would say don't eat them until you have been gluten-free totally for over two years. If you are one of the very sensitives ones , I would say DO NOT eat them.

Everyone is different so you might just have to take a chance but I would not eat the non gluten-free oats ever.

I eat only a 1/2 cup serving to this date. I think again this can be a product that many will eat & eat until it causes a reaction so go very slowly starting out maybe once a week.....I never thought I would say I miss Oats but I did...

I love the Lara's oats the best but I'm using the gluten-free oats from Powell, Wy as shipping was cheaper at the time. Now Lara's can be found in the US fairly easy.....

mamaw

melrobsings Contributor

I'm crazy allergic to them. If you touch them and then touch me I'm in hives! but I LOVE LOVE LOVE THEM!!! i think it got worse cause as a child I could somewhat tolerate them and would eat them all the time....I just kept getting worse and worse and worse...now I can't even touch them...

Yellow Rose Explorer

The problem with oats is not gluten as oats don't have gluten it is the contamination of oats. There are only a few factories that process oats in the US but these places also process other grains like wheat. So if you can find a place that grows oats without growing other gluten grains in the same field and then find a place that processes without processing other grains you will be ok to eat oats.

Yellow Rose

Luisa2552 Apprentice
I've tried several brands of gluten free oats and can say that oats cause the worst reaction of all the glutens for me.

I'm confused. Oats don't have gluten. Do you think the gluten-free oats are contaminated or do you have an allergy or intolerance to oats?

confusedks Enthusiast

I just wanted to make a suggestion, have you tried quinoa flakes? I know they're not the same thing, but they are a similar idea to oats. I have them in the morning with banana, brown sugar and cinnamon. I don't eat oats. I get too worried about CC in my own home, I couldn't imagine glutening myself! EEK.

Kassandra

sickchick Community Regular

Something I have tried recently (that has a similar texture to cream of wheat) is Polenta. If you are just craving something warm and hearty and sweet, I made mine with milk, honey and sliced bananas!

They were yuuuuuuuum :)

Ursa Major Collaborator

Somehow oats don't agree with me. The protein in oats is very similar to gluten, and some people aren't just having a reaction because of contamination, but rather because they are intolerant to the protein in oats as well.

ENF Enthusiast

I'm OK with Lara's Creamhill oats for the most part, but they do cause a major cleaning out of my digestive system. The reaction isn't exactly the same as when I had problematic celiac digestive symptoms before going gluten-free - but makes me wonder if it's only because of the fiber in oats, which is one reason some people eat them, or if something else is going on, since I do not have a problem with C whether I eat oats or not.

darlindeb25 Collaborator
The problem with oats is not gluten as oats don't have gluten it is the contamination of oats
The problem is, that all grains do have their own type of gluten, it's not necessarily called gluten as in wheat, rye, and barley--which, if I recall, isn't really technically called gluten anyways. Some of us just tend to react to all grains and when the monies are there and and full force research gets going on celiac disease, I think they will find there are different varients of gluten. Just like now, there are gluten sensitive, gluten intolerant, and celiacs--these levels will become much closer defined in time.

I think it will someday be proven that there are definitely celiacs who absolutely can not have oats either and I know I am one. I reacted to oats in foods long before we knew anything about gluten. Long before we knew anything about celiac disease, I reacted to meatloaf, which my mom added oatmeal, oatmeal cookies, apple crisp--anything with oatmeal bothered me. Now, I will not try oatmeal, I still react to oatmeal in lotions and such, so I am positive I can't eat it anyways, I can't eat any other grains anyhow. It's just not worth upsetting the balance. :(

L.A. Contributor

Thanks for the input--think I will stick with my Cream of Rice cereal. You guys are great! L.A. :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.