Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Palm Pilot


Guest Annie74

Recommended Posts

Guest Annie74

Does anyone use a palm or similar device to keep track of forbidden ingredients or other info? My 3 year old son was just diagnosed and the amount of information is overwhelming to me now. I am trying to manage all the lists, etc but my huge black binder isn't the most convenient way to do this!

Any suggestions are welcome! Thanks!

Annie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Thomas Apprentice

I think using a palm pilot/sony clie is a great idea!

Guest talsop

Hi,

I use a palm and it has pocket excel in it, I have several list > safe, forbidden, questionable. I also have downloaded resturants that are in my area that are gluten-free. Also I have a great shopoing list that I downloaded which I use everytime I go to the grocery store. I'm finding I can't live without it lol. I was taking a big note book with me everywhere and then I realized how many stares I was getting. Also its was so inconviente to wag around.

Be sure you back up your palm onto your home computer so you dont lose any thing you have stored on your palm. I accidently deleted what I had and lost it and had to start over because I didn't back it up :(

celiac3270 Collaborator

I think you can download a food list...Clan Thompson or something like that...you buy it to download to your palm--they specifically mention the list as being for your palm on the site, last time I checked.

Of course, you're probably better off getting all your lists for free (ingredients, etc.) or typing up your own and then downloading--just if you're interested, there's another option.

dreamhouses Newbie

HI, I've been fantasizing about this palm pilot thing - so I was glad to see some posts. I don't have one, but would spend actual money on it if it would help. Is there a way to download lists onto them from Word? , or do you have to type all your stuff on their tiny keypad? (I know this is a dorky - computer idiot question!)...just help me out here...Could I actually transfer some of my lists onto the thing? By the way couldn't all of our list problems be solved if some COMPUTER GENIUSES would just have a site that we could plug into that would keep updated information on products and restuarant chains? Retailers could supply updated info, and sell more stuff... and we could actually use the power of technology to save us from all the time we have to use trying to keep up with all this. I've only been at this for a few months but I can't believe the amount of e-mail and phone calls I've made to get product info. This makes all my regular "Mom" list making pale in comparison! Any thoughts? Valerie

Seosamh Newbie

Hi Dreamhouses--

I've got a PDA (palm pilot) with the downloadeded food and drug lists from Clan Thompson ($38). I love it and have benefitted from it--for instance, the drug list let me know that Maalox anti-gas tablets and Tums have gluten--something for a celiac to be aware of! Yes, maintaining your own list is a good idea also.

And I believe you can use MS Word on many PDAs nowadays--or you can cut and paste text onto the program (you can type on your computer) and download it onto a palm pilot. It is great--I really rely on mine.

best

Seosamh

dreamhouses Newbie

Thanks for that extra info, I am defininitely going to get a palm pilot, I think we all deserve one! Valerie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiacfreeman Contributor

Yes I use the palm solely for my gluten-free list.

I made about 15 files

a-b

ingedient

fast food

sauces

snack

v-z

etc

place into a word or notepad file and hot sync

it's prettiy great for travel

Zire palm is about $ 79 buck

YankeeDB Contributor

I use the Clan Thompson list on my Pocket PC. It is worth paying for. It's a lot of work keeping these lists and ingredients in processed food are constantly changing.

tom Contributor

I recently got a palm zire72 model and just love it. I'd been keeping lists and web bkmrks on a sidekick device (awesome mobile web) but it was missing one crucial function - Find w/in a pdf.

Anyway, i think some older palms may not be able to view and do Find in a pdf, but it seems all recent devices will.

The reason for the pdf req is that there is a very complete "safe" list in pdf format.

Open Original Shared Link

It seems to be updated 4x/yr, tho as it's just done by volunteers I don't know that they are adhering to a strict update schedule.

I LOVE this list, as it can become tiresome to pore over the other type of lists containing what i CAN'T eat.

I did try the pc version of the clan thompson program, but didn't think it suited me all that well. But it is free to try so i'd suggest at least a look.

I also have numerous small txt files by category, both created w/ copy/paste and those i wrote out myself w/ comments.

So Annie, I'd STRONGLY suggest getting just about any of the current devices. Many have features unrelated to our gluten-free lists and can get costly, but i think the palm zire31 is easily found for ~$150 and would do the job wonderfully. (my zire72 was $250 after $50 reb)

Or to spend less, i've seen older models that i believe can do the job on sale for as low as $30.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,912
    • Most Online (within 30 mins)
      7,748

    westman3d
    Newest Member
    westman3d
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.