Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactaid Pills - Kind Of Ranting!

Sweetfudge

By Sweetfudge
in Related Issues & Disorders

Recommended Posts

Sweetfudge Community Regular
Sweetfudge
Posted

so i bought the rite aid brand last month, and the only time i took it i got sick. don't know if it was from that, or cc. so i went out and got the fast acting lactaid pills, but couldn't call the company, since its the weekend. anyone know if they are gluten-free? if not, anyone take walmart's brand? NO ONE WILL TELL ME ANYTHING!!!!

i was really pissed off at rite aid. i asked the pharmacist, and he said if there's nothing on the box, there's no gluten in them. i called the company and the rep i talked to didn't know, so he said he would find someone who did, and have them call me. well, a week went by, and i was tired of waiting, so i took the pill. after being sick for a couple days (from it or not), i get a call from someone who said they couldn't guarantee that the pills were gluten-free. i was ticked. and why the heck does no one list their phone numbers on their generic brand products. i had to hunt down rite aid's number, and no one in the store would give it to me either!

i would have gotten walmart's box, but there's no number on theirs either!! idiots!

so if none of these are safe, please tell me what you use!!

..................sorry, think it may be that time of the month.............

Thanks for your time :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JennyC Enthusiast
JennyC
Posted

I buy the Lactaid brand for my son. They are made by the Tylenol company. They do not test the pills for gluten, but they track outside ingredients and there is no gluten-containing ingredients in Lactaid. This is the same principle why when Tylenol sends you their gluten free list only some products are on there. For example, Tylenol grape, Tylenol cold cherry. Many more flavors are gluten free, they just don't test every single one of their products. My son takes the Lactaid frequently, and is very sensitive, and does not react to them.

2kids4me Contributor
2kids4me
Posted

Both my kids use the Lactaid brand as well (Lactaid ultra). Kathryn is very sensitive to trace gluten and neither one has a problem.

If you are casein intolerant and not just lactose intolerant then no brand of lactose med will help with dairy.

Unless a company has certified gluten free facility (done through ELISA testing) then legally they cannot claim something is gluten free. They usually say " we do not use gluten products in the manufacture but cannot guarantee it to be free of trace amounts). Dont get mad at the employees who have to respond in a way that their legal dept says is the only way.

It is always a frustrating journey to contact companies. Even when you work in a medical field - this is what actually happened to us: A dog eats a store brand name of mouse killer - it is toxic when ingested by dogs. Could not reach the company via number listed (no answer)...called poison control to confirm ingredients as box was half eaten too. Got the info and then gave dog an injection of Vitamin K from a a new bottle - dog screamed and flipped, swelling at injection site. We are like "What the he**??" Contact drug company - we stayed on the line for a while then faxed after getting bored on hold for 15 minutes. They called 2 days later and asked that we fill out an "adverse effect sheet" and send it to them.. Jeez, thanks for your help people!! [insert sarcasm here]

Guest j_mommy
Guest j_mommy
Posted

I use lactaid fast acting and they are gluten-free!!! Was told that by teh tylenol co!

Sweetfudge Community Regular
Sweetfudge
Posted
  • Author

yeah it can be very frustrating <_<

thanks for letting me know about the lactaid brand. yay! maybe i'll start feeling better soon! *crosses fingers* Otherwise i'll have to kick the dairy habit :angry:

wolfie Enthusiast
wolfie
Posted

I called Wal-Mart a while back and they said their brand of Lactaid was gluten-free. I usually buy the Lactiad Fastact now, though. I think it works better.

  • 5 months later...
Swimmy Rookie
Swimmy
Posted

Lactaid pills (brand name) are gluten free! :) I take them often because I am lactose-intolerant and have never had a problem. They are also listed as a "safe" drug on www.glutenfreedrugs.com

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted

Before gluten-free I seemed to have trouble with one of the store brands. They either didn't work or irritated my system and I ended up with stomach irritation and D everytime I took them. Didn't have trouble with the Lactaid brand.

Puddy Explorer
Puddy
Posted

I use the Lactaid Fastact....no problem here!

  • 2 weeks later...
zagadka Newbie
zagadka
Posted

As a warning, DO NOT use VITAMIN WORLD lactase enzymes. I have used them for years and for some reason today looked on the bottle, read the ingredients -nothing odd- but found the disclaimer "this product contains wheat"!!! No wonder why I still feel bloated and icky a year after going gluten-free. WTF!

celiacmegan Newbie
celiacmegan
Posted

I took lactaid fast act last year for about 2 weeks and have never been sicker. I don't know if they've changed their ways since last May, but I definitely got glutened from them.

Sweetfudge Community Regular
Sweetfudge
Posted
  • Author
As a warning, DO NOT use VITAMIN WORLD lactase enzymes. I have used them for years and for some reason today looked on the bottle, read the ingredients -nothing odd- but found the disclaimer "this product contains wheat"!!! No wonder why I still feel bloated and icky a year after going gluten-free. WTF!

i hate it when companies change their products :( hope you get feeling better soon!

I took lactaid fast act last year for about 2 weeks and have never been sicker. I don't know if they've changed their ways since last May, but I definitely got glutened from them.

hm, i've been using them quite regularly for the last 3 months, and have been fine.

also, anyone know if you can build up an intolerance to lactaid? i feel lately like they're not working as well as they used to. still not full out dairy reaction, but definitely not fun <_<

oh, and FYI, I was at costco the other day, and was trying to find out if the costco brand lactaid was gluten-free. took 15 minutes of me on the phone with them, but they finally were able to tell me that they couldn't confirm that the pills were gluten-free. *crosses another one off the list*

aikiducky Apprentice
aikiducky
Posted

What could be happening is that your body has started to produce even less lactase, if it was still producing a little bit until now. That would mean that you need to take more pills for the same amount of dairy.

Pauliina

  • 2 months later...
Beth in NC Contributor
Beth in NC
Posted

I woke up this morning feeling awful, just like I did a week ago (not even) when I got glutened from some crackers that I thought were ok. The only thing differently I did yesterday was Lactaid...my first one. And the pharmacist at Target even called them FOR me!

I guess I'll have to search elsewhere for the culprit. I guess sometimes we just never know?

Sweetfudge Community Regular
Sweetfudge
Posted
  • Author
What could be happening is that your body has started to produce even less lactase, if it was still producing a little bit until now. That would mean that you need to take more pills for the same amount of dairy.

Pauliina

Decided either this was happening, or I was suffering from a dairy allergy (my allergist said either could be a possibility...) so I stopped eating dairy a couple months ago. I've felt a lot better, and have lost 19 lbs!!

I woke up this morning feeling awful, just like I did a week ago (not even) when I got glutened from some crackers that I thought were ok. The only thing differently I did yesterday was Lactaid...my first one. And the pharmacist at Target even called them FOR me!

I guess I'll have to search elsewhere for the culprit. I guess sometimes we just never know?

Sorry to hear that Beth. Hope you can figure out what was causing you to feel sick :(

ravenwoodglass Mentor
ravenwoodglass
Posted

One other thing to consider if you are still getting ill with dairy even with a lactaid product is that you may be sensitive to the milk protein in the dairy products rather than the milk sugar in them. If your problem with dairy is casien and not lactose the lactaid pills are not going to help.

dadoffiveboys Rookie
dadoffiveboys
Posted
One other thing to consider if you are still getting ill with dairy even with a lactaid product is that you may be sensitive to the milk protein in the dairy products rather than the milk sugar in them. If your problem with dairy is casien and not lactose the lactaid pills are not going to help.

Yep you are right. After going gluten-free and still not feeling 100% I tried Lactaid milk (as a recommendation by my Allergist). He said, and I quote, "I think your reaction (that I was describing) is an intolerance to the milk protein and not lactose - drink lactaid and if you are sick - you are also allergic to casein." Well.. I was even MORE sick drinking lactaid then regular milk! So.. if you are trying these lactase enzymes and feeling really bad - you probably are also allergic to Casein - which is VERY COMMON among celiacs.

Beth in NC Contributor
Beth in NC
Posted

:huh: :huh: :huh:

La la la la la la la la la la la

I'm not ready to hear that! Don't even wanna THINK about that!

:ph34r:

ravenwoodglass Mentor
ravenwoodglass
Posted
:huh: :huh: :huh:

La la la la la la la la la la la

I'm not ready to hear that! Don't even wanna THINK about that!

:ph34r:

Neither did I! :D

I have been surprised though that many of the dairy replacements haven't been too bad. Hemp milk turned out to be rather tasty, I really enjoy the chocolate and Wegmans Rice milk seems to work well in my cooking and baking. Finding a butter sub was hard for me because they all have soy. I used Ghee for a bit and had no problems with it but I have started using butter again, so far with no issues.

Sweetfudge Community Regular
Sweetfudge
Posted
  • Author
:huh: :huh: :huh:

La la la la la la la la la la la

I'm not ready to hear that! Don't even wanna THINK about that!

:ph34r:

lol kinda feeling the same way.

so, if it's casien...do i have to avoid ALL dairy? how can i learn more about avoiding casien....gulp :blink:

ravenwoodglass Mentor
ravenwoodglass
Posted
lol kinda feeling the same way.

so, if it's casien...do i have to avoid ALL dairy? how can i learn more about avoiding casien....gulp :blink:

Yes all dairy would need to be avoided including items that are labeled lactose free or a non-dairy product if it still contains casein (which many do)

To find out more I would post a specific question or two here, lots of us here have to avoid it, and I would also do a search on a good search engine using the words 'casien intolerance' you should have quite a bit come up.

Also it should be noted that unlike with celiac and gluten you may be able to handle casien after you have healed. After a few months with your digestion working properly you could do a challenge and see how you handle it. Not all of us can add it back in but some will be able to.

  • 3 years later...
AJ Leigh Rookie
AJ Leigh
Posted

Does anyone know about the BJ's brand? I've been having gluten symptoms, but I've been watching my diet carefully. I cannot find the source! This is the last thing I can think of to check.

I read the ingredients and they seem okay. I would call the company but it's the weekend :(.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    2. trents
      - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient. The one test that was ordered...
    3. mamaof7
      - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful...
    4. Dizzyma
      - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me. My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free i...
    5. tiffanygosci
      - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748
    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Help understand results

      By trents · Posted

      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      Help understand results

      By mamaof7 · Posted

      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.