Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Lactaid Pills - Kind Of Ranting!

Sweetfudge

By Sweetfudge
in Related Issues & Disorders

Recommended Posts

Sweetfudge Community Regular
Sweetfudge
Posted

so i bought the rite aid brand last month, and the only time i took it i got sick. don't know if it was from that, or cc. so i went out and got the fast acting lactaid pills, but couldn't call the company, since its the weekend. anyone know if they are gluten-free? if not, anyone take walmart's brand? NO ONE WILL TELL ME ANYTHING!!!!

i was really pissed off at rite aid. i asked the pharmacist, and he said if there's nothing on the box, there's no gluten in them. i called the company and the rep i talked to didn't know, so he said he would find someone who did, and have them call me. well, a week went by, and i was tired of waiting, so i took the pill. after being sick for a couple days (from it or not), i get a call from someone who said they couldn't guarantee that the pills were gluten-free. i was ticked. and why the heck does no one list their phone numbers on their generic brand products. i had to hunt down rite aid's number, and no one in the store would give it to me either!

i would have gotten walmart's box, but there's no number on theirs either!! idiots!

so if none of these are safe, please tell me what you use!!

..................sorry, think it may be that time of the month.............

Thanks for your time :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JennyC Enthusiast
JennyC
Posted

I buy the Lactaid brand for my son. They are made by the Tylenol company. They do not test the pills for gluten, but they track outside ingredients and there is no gluten-containing ingredients in Lactaid. This is the same principle why when Tylenol sends you their gluten free list only some products are on there. For example, Tylenol grape, Tylenol cold cherry. Many more flavors are gluten free, they just don't test every single one of their products. My son takes the Lactaid frequently, and is very sensitive, and does not react to them.

2kids4me Contributor
2kids4me
Posted

Both my kids use the Lactaid brand as well (Lactaid ultra). Kathryn is very sensitive to trace gluten and neither one has a problem.

If you are casein intolerant and not just lactose intolerant then no brand of lactose med will help with dairy.

Unless a company has certified gluten free facility (done through ELISA testing) then legally they cannot claim something is gluten free. They usually say " we do not use gluten products in the manufacture but cannot guarantee it to be free of trace amounts). Dont get mad at the employees who have to respond in a way that their legal dept says is the only way.

It is always a frustrating journey to contact companies. Even when you work in a medical field - this is what actually happened to us: A dog eats a store brand name of mouse killer - it is toxic when ingested by dogs. Could not reach the company via number listed (no answer)...called poison control to confirm ingredients as box was half eaten too. Got the info and then gave dog an injection of Vitamin K from a a new bottle - dog screamed and flipped, swelling at injection site. We are like "What the he**??" Contact drug company - we stayed on the line for a while then faxed after getting bored on hold for 15 minutes. They called 2 days later and asked that we fill out an "adverse effect sheet" and send it to them.. Jeez, thanks for your help people!! [insert sarcasm here]

Guest j_mommy
Guest j_mommy
Posted

I use lactaid fast acting and they are gluten-free!!! Was told that by teh tylenol co!

Sweetfudge Community Regular
Sweetfudge
Posted
  • Author

yeah it can be very frustrating <_<

thanks for letting me know about the lactaid brand. yay! maybe i'll start feeling better soon! *crosses fingers* Otherwise i'll have to kick the dairy habit :angry:

wolfie Enthusiast
wolfie
Posted

I called Wal-Mart a while back and they said their brand of Lactaid was gluten-free. I usually buy the Lactiad Fastact now, though. I think it works better.

  • 5 months later...
Swimmy Rookie
Swimmy
Posted

Lactaid pills (brand name) are gluten free! :) I take them often because I am lactose-intolerant and have never had a problem. They are also listed as a "safe" drug on www.glutenfreedrugs.com

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missy'smom Collaborator
missy'smom
Posted

Before gluten-free I seemed to have trouble with one of the store brands. They either didn't work or irritated my system and I ended up with stomach irritation and D everytime I took them. Didn't have trouble with the Lactaid brand.

Puddy Explorer
Puddy
Posted

I use the Lactaid Fastact....no problem here!

  • 2 weeks later...
zagadka Newbie
zagadka
Posted

As a warning, DO NOT use VITAMIN WORLD lactase enzymes. I have used them for years and for some reason today looked on the bottle, read the ingredients -nothing odd- but found the disclaimer "this product contains wheat"!!! No wonder why I still feel bloated and icky a year after going gluten-free. WTF!

celiacmegan Newbie
celiacmegan
Posted

I took lactaid fast act last year for about 2 weeks and have never been sicker. I don't know if they've changed their ways since last May, but I definitely got glutened from them.

Sweetfudge Community Regular
Sweetfudge
Posted
  • Author
As a warning, DO NOT use VITAMIN WORLD lactase enzymes. I have used them for years and for some reason today looked on the bottle, read the ingredients -nothing odd- but found the disclaimer "this product contains wheat"!!! No wonder why I still feel bloated and icky a year after going gluten-free. WTF!

i hate it when companies change their products :( hope you get feeling better soon!

I took lactaid fast act last year for about 2 weeks and have never been sicker. I don't know if they've changed their ways since last May, but I definitely got glutened from them.

hm, i've been using them quite regularly for the last 3 months, and have been fine.

also, anyone know if you can build up an intolerance to lactaid? i feel lately like they're not working as well as they used to. still not full out dairy reaction, but definitely not fun <_<

oh, and FYI, I was at costco the other day, and was trying to find out if the costco brand lactaid was gluten-free. took 15 minutes of me on the phone with them, but they finally were able to tell me that they couldn't confirm that the pills were gluten-free. *crosses another one off the list*

aikiducky Apprentice
aikiducky
Posted

What could be happening is that your body has started to produce even less lactase, if it was still producing a little bit until now. That would mean that you need to take more pills for the same amount of dairy.

Pauliina

  • 2 months later...
Beth in NC Contributor
Beth in NC
Posted

I woke up this morning feeling awful, just like I did a week ago (not even) when I got glutened from some crackers that I thought were ok. The only thing differently I did yesterday was Lactaid...my first one. And the pharmacist at Target even called them FOR me!

I guess I'll have to search elsewhere for the culprit. I guess sometimes we just never know?

Sweetfudge Community Regular
Sweetfudge
Posted
  • Author
What could be happening is that your body has started to produce even less lactase, if it was still producing a little bit until now. That would mean that you need to take more pills for the same amount of dairy.

Pauliina

Decided either this was happening, or I was suffering from a dairy allergy (my allergist said either could be a possibility...) so I stopped eating dairy a couple months ago. I've felt a lot better, and have lost 19 lbs!!

I woke up this morning feeling awful, just like I did a week ago (not even) when I got glutened from some crackers that I thought were ok. The only thing differently I did yesterday was Lactaid...my first one. And the pharmacist at Target even called them FOR me!

I guess I'll have to search elsewhere for the culprit. I guess sometimes we just never know?

Sorry to hear that Beth. Hope you can figure out what was causing you to feel sick :(

ravenwoodglass Mentor
ravenwoodglass
Posted

One other thing to consider if you are still getting ill with dairy even with a lactaid product is that you may be sensitive to the milk protein in the dairy products rather than the milk sugar in them. If your problem with dairy is casien and not lactose the lactaid pills are not going to help.

dadoffiveboys Rookie
dadoffiveboys
Posted
One other thing to consider if you are still getting ill with dairy even with a lactaid product is that you may be sensitive to the milk protein in the dairy products rather than the milk sugar in them. If your problem with dairy is casien and not lactose the lactaid pills are not going to help.

Yep you are right. After going gluten-free and still not feeling 100% I tried Lactaid milk (as a recommendation by my Allergist). He said, and I quote, "I think your reaction (that I was describing) is an intolerance to the milk protein and not lactose - drink lactaid and if you are sick - you are also allergic to casein." Well.. I was even MORE sick drinking lactaid then regular milk! So.. if you are trying these lactase enzymes and feeling really bad - you probably are also allergic to Casein - which is VERY COMMON among celiacs.

Beth in NC Contributor
Beth in NC
Posted

:huh: :huh: :huh:

La la la la la la la la la la la

I'm not ready to hear that! Don't even wanna THINK about that!

:ph34r:

ravenwoodglass Mentor
ravenwoodglass
Posted
:huh: :huh: :huh:

La la la la la la la la la la la

I'm not ready to hear that! Don't even wanna THINK about that!

:ph34r:

Neither did I! :D

I have been surprised though that many of the dairy replacements haven't been too bad. Hemp milk turned out to be rather tasty, I really enjoy the chocolate and Wegmans Rice milk seems to work well in my cooking and baking. Finding a butter sub was hard for me because they all have soy. I used Ghee for a bit and had no problems with it but I have started using butter again, so far with no issues.

Sweetfudge Community Regular
Sweetfudge
Posted
  • Author
:huh: :huh: :huh:

La la la la la la la la la la la

I'm not ready to hear that! Don't even wanna THINK about that!

:ph34r:

lol kinda feeling the same way.

so, if it's casien...do i have to avoid ALL dairy? how can i learn more about avoiding casien....gulp :blink:

ravenwoodglass Mentor
ravenwoodglass
Posted
lol kinda feeling the same way.

so, if it's casien...do i have to avoid ALL dairy? how can i learn more about avoiding casien....gulp :blink:

Yes all dairy would need to be avoided including items that are labeled lactose free or a non-dairy product if it still contains casein (which many do)

To find out more I would post a specific question or two here, lots of us here have to avoid it, and I would also do a search on a good search engine using the words 'casien intolerance' you should have quite a bit come up.

Also it should be noted that unlike with celiac and gluten you may be able to handle casien after you have healed. After a few months with your digestion working properly you could do a challenge and see how you handle it. Not all of us can add it back in but some will be able to.

  • 3 years later...
AJ Leigh Rookie
AJ Leigh
Posted

Does anyone know about the BJ's brand? I've been having gluten symptoms, but I've been watching my diet carefully. I cannot find the source! This is the last thing I can think of to check.

I read the ingredients and they seem okay. I would call the company but it's the weekend :(.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Hi @CC90 Ah... that is very interesting. Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time? I could be wrong, but I would not be at all surprised if they find something on the next attempt. Coeliac damage can be very patchy, as I understand...
    2. CC90
      - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Hi Cristiana Yes I've had the biopsy results showing normal villi and intestinal mucosa. The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.
    3. Wheatwacked
      - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives. An elevated level means your immune system is reacting to gluten. Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis o...
    4. Wheatwacked
      - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      19

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

      In Addison’s disease, autoimmmune adrenal cortex disease adrenal glands don't make enough cortisol. At 12, it is usually caused by an autoimmune attack. It has a strong genetic link to the HLA-DQ8 gene. After 12 gluten free and 14 years on prednisone for adrenal insufficiency (symptoms like you describe from 1984 until 2014) I recently removed all c...
    5. trents
      - trents replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,191
    • Most Online (within 30 mins)
      10,442
    Samantha Ferrara
    Newest Member
    Samantha Ferrara
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Coeliac or not coeliac

      By Wheatwacked · Posted

      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Coeliac or not coeliac

      By trents · Posted

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hello @CC90 Can I just ask a question: have you actually been told that your biopsy were normal, or just that your stomach, duodenum and small intestine looked normal? The reason I ask is that when I had my endoscopy, I was told everything looked normal.  My TTG score was completely through the roof at the time, greater than 100 which was then the cut off max. for my local lab.  Yet when my biopsy results came back, I was told I was stage 3 on the Marsh scale.  I've come across the same thing with at least one other person on this forum who was told everything looked normal, but the report was not talking about the actual biopsy samples, which had to be looked at through a microscope and came back abnormal.
×
×
  • Create New...