Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Child Of Celiac

julianne

By julianne
in Dermatitis Herpetiformis

Recommended Posts

julianne Newbie
julianne
Posted

I'm the wife of a celiac diagnosed 8 years ago. He's doing great on the gluten free diet. I have 3 children, 12, 10 & 5. I had my 2 oldest tested for the antibodies (through blood test) and both were negative. No tests since then. My 10 year old now shows symptoms of psoriasis. It started on his scalp in August. Doctors first thought ringworm (yuck!) had the culture performed which takes weeks to grow. Then started the 8 week course of antibiotics. Throughout this time I also applied Elicon (leftover from my other son's mild exczema). That mild steroid was the only thing that would make these spots almost seem to heal. But after a few days of not using the Elicon, the spots would return to looking as they had before. Went back to the doc 6 weeks into treatment because my son now has more spots on his body. Doc now thinks psoriasis since it responded to the Elicon and he finally used the black light which showed no presence of ringworm (They glow under ultraviolet light)(Why didn't the first doc do this?!) :angry: .

To me they don't look like the pictures I've seen of DH because his don't look fluid filled at all. Can DH be all over the body including scalp and penis? Or does anyone know about the relationship between celiac disease and psoriasis? Should I have blood tests performed again on all children even if they were initially negative?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gf4life Enthusiast
gf4life
Posted
...does anyone know about the relationship between celiac disease and psoriasis? Should I have blood tests performed again on all children even if they were initially negative?

The relationship between celiac and psoriasis is that they are both auto-immune diseases. Meaning that the body is essentially attacking itself. Whenever you have one auto-immune disease you are at a higher risk of developing others. That is about the only connection that I know of though.

I have psoriasis. So far it is mild, but over the years it has been spreading. I have not found anything to treat it that will work long term. If I use the cream religiously then it gets a little better, but if I forget for a day or two, then it is back with a vengeance! I am sorry that your 10 year old is having to deal with this. I have a 10 year old boy also and I think how awful it would be for him...

Now as for having the kids tested again, YES. They should be screened for the disease about every few years, sooner if they are having symptoms. Since they are biologically related to someone (in this case a parent) they have an increased risk of developing the disease. I read one study that said first degree relatives of a Celiac have a 1 in 10 chance of developing the disease. But realistically they have a higher chance of carrying the gene and could either never get sick or they could get sick at any point in their lives. You could have them gene tested to see if they carry the gene, then you would at least know if they are carriers. Although even this is not a guarantee, since they don't know that they have isolated all the genes responsible for celiac disease, but you would know which ones they got from you husband. And if they have two copies, then you would know that you were a carrier as well. There are only a few labs that do the gene testing. We did ours through Enterolab(for $150 per person), since our insurance wasn't wanting to pay for Prometheus labs (at $750 a person). Enterolab also tests for more genes that they have isolated that cause gluten intolerance, but are not considered yet to be "Celiac" genes. We have two who have Celiac genes and three that have the gluten intolerance genes in our family of 5. Only myself and our three kids are gluten free. My husband is not sick enough yet to admit that he needs the diet.

God bless,

Mariann

  • 2 weeks later...
FreyaUSA Contributor
FreyaUSA
Posted

I am not certain exactly what psoriasis looks like, but my eldest has skin reactions to gluten (as well as many other more typical reactions.) He tested borderline (or so the doctor said) with just the IgG antibodies (I'm STILL confused about this. Either he tested just below the cutoff or just at the cutoff, but the doctor said not to worry about it.) My sister had positive results in going gluten-free (her skin cleared up for the first time in 30+ years) so my son wanted to try it. His skin almost completely cleared up. Now, however, just a trace of gluten sends his body into almost every reaction available (skin, gastro, depression and migraines... :( ) including itchy dry patches in several spots on his body (he also gets little red bumps that aren't typical dh, but we certainly know there is a cause and effect here!) Could it be that your son is just developing a dh reaction? It takes a while for the spots to clear on my son, but two weeks after going gluten-free, we'd seen a remarkable difference. As an added bonus, the acne he'd started having is almost completely gone now, too, just a random pimple now and then is all.

As an aside, ringworm is just a fungus with a disgusting name. Absolutely nothing to stress about. ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living...
    2. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sl...
    3. Scott Adams
      - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly c...
    4. Scott Adams
      - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained...
    5. Scott Adams
      - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,369
    • Most Online (within 30 mins)
      7,748
    Nick H.
    Newest Member
    Nick H.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Natural remedies

      By Scott Adams · Posted

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      Gluten and short-term memory.

      By Scott Adams · Posted

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Reintroduction of Gluten

      By Scott Adams · Posted

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      High Cost of Gluten-Free Foods

      By Scott Adams · Posted

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...