Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extra Energy W/ Less Food?


MrMark

Recommended Posts

MrMark Apprentice

Over a week ago, I eliminated gluten from my diet and am slowly seeing some health benefits.

My problem is that I used to eat about 3000+ calories a day and not even feel full. For about a week now I have been eating about 1000 a day (probably less) and feel satisfied (not hungry). Pre gluten-free, I weighed 215 lb (overweight), now I am 203 after a week. The strange thing is I have more energy than ever before. Is this declining weight and declining caloric intake an indicator of something dangerous?

Before I was gluten-free, my face always burned like there was a fire under my skin. It wasn't hot to the touch, but my nerves were signaling ye olde brain that it was hot. What is this and why did it suddenly stop - I don't miss it.

Thanks Mark


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I eat a lot less than I did before celiac. I am not as hungry half as much as I used to be. I never had facial burning but I did have other bothersome symptoms that have gone away.

I did gain some weigh on the diet, which I am going to try to get rid of after the holidays.

Congrats on feeling better, it is a great milestone!

njbeachbum Explorer

i've only been gluten free for a week (round of applause), but i haven't noticed a decrease in my appetite just yet. i also haven't dropped any weight. i am 5'9" and have been in the 155-160 range for the past few years. even with celiac, i have maintained that weight over this time. i was always in the 140's then started working out a few years ago and put on about 10-15 pounds of muscle. since i was originally diagnosed with crohn's disease many many years ago, i always judged my health by the stability of my current weight. anyway, with only a week under my belt, i can't say that i've seen amazing results... i'm still using the bathroom a few times a day, however i do notice a different kind of "clarity" in my head.... energy may be up a bit, but i haven't been getting great sleep since i found out i have celiac. i've been up late every night doing obsessive compulsive research!

what i'm most concerned with is keeping my energy level up on the days when i am competing... i play competitive volleyball, and day-long tournaments really use a LOT of energy. i always used to carb up before playing, so now i need to find alternate ways to get the same kind of energy.

bluejeangirl Contributor
. energy may be up a bit, but i haven't been getting great sleep since i found out i have celiac. i've been up late every night doing obsessive compulsive research!

There are more then a few of us with that compulsion here. Must be a side effect of eating too much rice. :P

Gail

sneezydiva Apprentice

The first days after going gluten-free, I was STARVING. I was eating all the time. But then, all of a sudden, I wasn't very hungry most of the time. I started the diet in earnest in August, and I've lost 15 pounds without even trying. (and it was weight I needed to lose) I also have more energy, though it waxes and wanes because of my environmental allergies.

silk Contributor

MrMark- Isn't it amazing to find other people with similar experiences. Being relatively new at this, you find yourself wondering if you are imagining some of these changes or attributing them to the celiacs when they might not be connect at all until you come here and find people like yourself experiencing the same things. I love this place!

I've been on the gluten-free diet, actually I would call it 'live it' for a little over 3 weeks now and I would agree with you whole-heartedly! I have a much smaller appetite and don't get hungry between meals. I am not tempted to snack at all and have to remind myself, because of my being a type 1 diabetic that I do need to eat something small between meals to keep my blood sugars at an even keel. Before discovering the celiac issue I had gained 6 lbs in a 2 month period while dieting and exercising like mad. I felt so frustrated. Since I went gluten free I have lost 9 lbs! and cut my evening insulin intake from 17 units to 8 units and I was still low on my blood sugar this a.m. so I will have to go lower on the insulin yet again!

I am so relieved to feel better (most of the time) as opposed to feeling like hell most of the time and the bonus is the un-expected weight loss, lower insulin needs/better bs control and that I sleep like a baby for the first time in years and have tons! of energy. Makes me happy to finally feel this way and sad for the 47+ years that I missed out on feeling this way.

I hope that this is not just a temporary side effect of the diet change.

bakingbarb Enthusiast
Over a week ago, I eliminated gluten from my diet and am slowly seeing some health benefits.

My problem is that I used to eat about 3000+ calories a day and not even feel full. For about a week now I have been eating about 1000 a day (probably less) and feel satisfied (not hungry). Pre gluten-free, I weighed 215 lb (overweight), now I am 203 after a week. The strange thing is I have more energy than ever before. Is this declining weight and declining caloric intake an indicator of something dangerous?

Before I was gluten-free, my face always burned like there was a fire under my skin. It wasn't hot to the touch, but my nerves were signaling ye olde brain that it was hot. What is this and why did it suddenly stop - I don't miss it.

Thanks Mark

Mark, I have only been gluten free since the end of October but I have not lost my appetite, if anything it is back like crazy!

The face burning though, I had that and all the time. It felt so hot but no one could understand what I was talking about although sometimes I looked red.

I lost 5 lbs right away but as I said my hunger is crazy and I am not losing anymore weight. From what I have read on here it all is normal, it just depends on your body. Mine is hungry! LOL My energy is up too but not as much as I would like.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Snowball1952 Newbie
:o Wish I could say that. I eat about the same. Energy not any different. How ever I feel better being celiac Free then I have in years.
  • 2 weeks later...
Guest maybe I have celiac
Over a week ago, I eliminated gluten from my diet and am slowly seeing some health benefits.

My problem is that I used to eat about 3000+ calories a day and not even feel full. For about a week now I have been eating about 1000 a day (probably less) and feel satisfied (not hungry). Pre gluten-free, I weighed 215 lb (overweight), now I am 203 after a week. The strange thing is I have more energy than ever before. Is this declining weight and declining caloric intake an indicator of something dangerous?

Before I was gluten-free, my face always burned like there was a fire under my skin. It wasn't hot to the touch, but my nerves were signaling ye olde brain that it was hot. What is this and why did it suddenly stop - I don't miss it.

Thanks Mark

for me, 15 pounds in 15 days, amazing isnt it. I know a lot of people gain weight but I am the reverse

cattriona Newbie

Maybe your metabolism has picked up. But if you're worried, you'd better talk to your doctor to try and ease your concerns. I found that I have lost quite a bit of weight despite the fact that I'm eating more, including quite a few things that have a higher fat content. However, I feel much healthier as a result, despite the weight loss.

I'm glad that the gluten-free diet is making you feel better.

Offthegrid Explorer

I love 14 pounds very quickly (a week and a half?) when I initially went gluten-free. I was somewhere around 240 pounds at the time? Not exactly sure.

When I eliminated casein (dairy), I had another fairly rapid drop of 10 pounds, but gained 5 of those back. Eliminating soy and I had another 5 pound loss very quickly. When I cut out potatoes, I dropped rapidly again.

I'm now at the lowest weight I've ever been since junior high school, and am very happy. I've always been overweight (my highest weight ever was 270), so this is great.

I'm not hungry all the time, and actually feel satisfied by my food instead of before when I would eat and eat and eat and never be full.

It's a good thing. :D

Joyous Enthusiast
Over a week ago, I eliminated gluten from my diet and am slowly seeing some health benefits.

My problem is that I used to eat about 3000+ calories a day and not even feel full. For about a week now I have been eating about 1000 a day (probably less) and feel satisfied (not hungry). Pre gluten-free, I weighed 215 lb (overweight), now I am 203 after a week. The strange thing is I have more energy than ever before. Is this declining weight and declining caloric intake an indicator of something dangerous?

Gluten is literally addictive to many people who are gluten intolerant because of an opioid chemical that's released in your system. (Because of this, serious cravings for foods with gluten are commonly a sign of gluten intolerance.) That's why some people with Celiac Disease weigh more than they'd like to (though many are too thin due to malabsorption). I've read that malabsorption can also cause an insatiable appetite because your body isn't getting the nutrients it needs.

You could also be losing water weight. From what I understand, that's common in the first week or two off of gluten.

That said, you should be eating a lot more than 1000 calories a day! To me, 3,000 calories per day doesn't sound like too much for a 200 lbs person if you're active, provided they're coming from sources that are healthy. You won't last on so few calories. You'll gain weight, too. I know all too well that diets only work if you eat. :lol: And that goes for any type of diet, not just weight loss diets. Your body needs nutrition in order to heal itself. Make sure you're getting enough fat and protein. Diary and high fiber foods can be rough on someone whose digestive track is still healing (though of course, it's still important to get enough complex carbohydrates), so it may be a good idea to plan your diet accordingly. There's a book called The Diet Cure that has a chapter about how much damage low calorie diets can cause.

Before I was gluten-free, my face always burned like there was a fire under my skin. It wasn't hot to the touch, but my nerves were signaling ye olde brain that it was hot. What is this and why did it suddenly stop - I don't miss it.

Not sure. I get that too, and I definitely got it in the week and a half that I wasn't eating gluten. I'm hoping it goes away for me as well.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.