Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advantages Of Not Being Completely Gluten Free?


Joyous

Recommended Posts

Joyous Enthusiast

I'm sure it depends on the person because some people are much more sensitive to gluten than others, but it seems to me that for people who are just starting out on a gluten free diet, it might be a good idea not to go as far as preventing cross contamination. When I read stories here about having reactions to the most miniscule amounts of gluten, worse reactions than they would have had after eating a wheat product before the gluten free diet, it makes me wonder if those people would have been better off if they wouldn't have been so careful in the beginning (and in the years following).

If you have Celiac Disease and you cut out all gluten products but allow a very small amount of gluten to sneak through via cross contamination, will you still heal? And will you react as strongly on those occasions when you do accidentally consume gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

According to Dr. Chaitan Khosla, who spoke at the Celiac Disease Foundation 2007 Conference:

"Celiac disease is not an allergy. This is a disease where the severity of the disease correlates with the exposure. How do we know that? There are many studies that have been done over the past 20 years and perhaps over the past 35-40 years that show you can reach the same degree of severity with a little gluten over a long duration or a lot of gluten over a short duration. It's cumulative."

Guest j_mommy

No I don't think you will ever totally heal. I reacted prediagnosis every time I ate ANY gluten. With celiac it doesn't matter how sensitive you are...you still have the disease and stil shouldn't eat ANY gluten....including CC. THe risks are too high.

blueeyedmanda Community Regular

I take CC very seriously, for our new members just learning the ropes, having the CC exposure could mean the difference to them feeling better or worse. It is very important to stress the CC issue, it helps people weed out what is making them sick, they could be suspecting a safe food and all along it can be crumbs from the toaster or contaminated pots.

pugluver31902 Explorer

You need to be one hundred percent gluten free for an extended period of time in order for your risk of cancer and other autoimmune diseases to drop back to a more normal level. Getting even the tiniest bit of gluten for any extended period of time will never lower your risks.

debmidge Rising Star

The smallest amount of gluten, wether or not it's accidential or deliberate ( in an attempt to deflect a really bad reaction if you were to go gluten free and then get "glutened" and have a bad reaction)...the smallest amount of gluten will "jump start" the immune system to protect the body by producing the antibodies which make the celiac person sick and cause damage to the small intestine.

For a celiac, there's no benefit in the short run or in the long run to consuming gluten at any level for any reason. You're just going to have your body get bombarded over and over again.

kbtoyssni Contributor

Ditto what everyone else said - if you eat even a little bit of gluten, you won't ever heal. There's no point in not going fully gluten-free because you're still going to have all the medical issues associated with eating gluten. And not everyone has worse symptoms after going gluten-free. My symptoms are much less after two years gluten-free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



njbeachbum Explorer

Is there anyway to really know if you are getting a little bit of gluten without knowing it? I've been pretty confident that I've changed my diet to be completely gluten free, however, i haven't changed all of my pots and pans, but scrubbed them all thoroughly. I bought new wooden spoons and i use a toaster oven (and i scrubbed down the rack). Anyway, I haven't had much improvement in symptoms but I also have many years of damage to undo.

As a side note, I don't really know what a "glutening" feels like yet, however, I made lentil soup the other day with Jack Rabbit lentils (which are supposed to be free of any grain contamination). the next morning i woke with a burning feeling in my midsection and i was very gassy and ended up running to the bathroom a few times. but later in the day i felt ok. so, was that a glutening, or could it be that i can't handle legumes yet? or maybe it's just that a soup with lentils and brown rice is fiber overkill for someone recovering from celiac?? inquiring minds wanna know!

thanks!

Jestgar Rising Star
I or maybe it's just that a soup with lentils and brown rice is fiber overkill for someone recovering from celiac?? inquiring minds wanna know!

thanks!

I'd bet on that. It's taken me a long time to be able to eat a lot of fiber at once. Try lentils OR brown rice, but maybe not both together. And maybe not as much as you'd normally eat. You wouldn't use an abrasive scrub on a healing cut on your skin, think of high fiber foods as a bit abrasive.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748

    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.