Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here :)


baylees-mummy

Recommended Posts

baylees-mummy Newbie

hi everyone, my name is tamika and i am 20 years old. i have been having symptoms since the birth of my child 1 year ago... they started out mild and didnt happen all the time but they have slowly gotten to the point that i feel sick all the time. i will start out with my symptoms..

stomache cramps

moderate nausea

thick narrowing feeling in my throat (HAS ANYONE ELSE HAD THIS?)

on and off loose stools that float

bloating which is worst at night

loss of sex drive

irritability

mood swings

breathlessness sometimes

feeling of something popping or moving in my abdomen

weight loss

extreme fatigue

cravings

extreme hunger

GERD

there are probably more but i cant think of them at the moment. i knew right from the start of my symptoms that something wasnt right but was to afrid to go to the dr about it or think about it.. i thought from the nausea which is the biggest symptom that something was really wrong with me. but.... i have now been on a gluten free diet as of yesterday and hey guess what.. no nausea and no cramps. i am waay too afraid to go back on the gluten as the nausea was so bad. is there any other way of getting a diagnosis? also has anyone had the same symptoms as me? my partner saw a tv show on extra the other night and immediatly thought that it was exactly what i was going through. i am finding it very hard to eat the gluten free products also they are so yuck and i dont really like vegetables and i cant live off fruit.. what do you guys eat? i cant afford to loose any more weight at the moment i am already a very skinny figure :( ... any ideas are very much appreciated.

thanks tamika xxx


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

You could very well be celiac, the birth of my second son is what triggered my celiac 6 yrs ago, but only found out 10 months ago.

When you are only gluten free there is so much out there that u can eat that is mainstream food. You can have any fresh meat and fish, you can have all veggies and fruits. You can use corn toritallas for wraps and breakfast burritoes. Almost all breakfast food is gluten free, just have to read labels for bacon and sausage. You can have lara bars for snacks, many chips are gluten free.

You can be tested threw enterolab if u dont want to go threw doctors and they can tell you if u are gluten intolerant and carry the celiac genes.

If you would be gluten free and do blood work you could very easily get an false negative.

Or you can just stay on the gluten free diet and see how you feel, but you have to be very strict about it.

paula

mn farm gal Apprentice

The thing to remember is if you do want the blood test done you need to stay eating gluten until the test is done. I don't think one day will throw it off but a few days will. It just depends if you are the type of person that needs a specific reading to confirm that or not. If not you can just do the diet and if you feel better then stay on it. Which is what I did, I was gluten lite for a couple of years before I even heard Celiac, so my test came back inconclusive.

CMCM Rising Star

Boy, you've definitely got a lot of things that are associated with celiac disease.

If you are still eating gluten, get the test right away. But remember if it is negative, it doesn't necessarily mean you don't have a potential problem. Since you have symptoms that bother you, you want to clear them up.

You could then get a gene test....I guess you can get them various places. I got one from Enterolab, costs about $169, easy to do. That would reveal whether or not you have a celiac gene and you would then know whether or not you are predisposed to celiac disease.

Finally, be seriously gluten free and give it a month or two to see if your symptoms go away. If they do, you'd want to be gluten free so you feel good, regardless of anything else.

Remember that 40 years ago doctors thought 1 in 10,000 people had celiac disease. Now the figure is 1 in 133, but other doctors think it's more like 1 in 85. And that's just celiac disease. Some doctors think virtually everyone is gluten sensitive to one degree or another, and that probably no one should eat much, if any gluten. Our digestive systems were not designed to handle gluten, which it interprets as a poison.

You're lucky if you figure all this out at 20....I didn't until 56, although in retrospect, if I had the knowledge and info that is out there today, I could have figured it out at 20 because I had various problems all the years until now. In the end, eating wheat/gluten is not worth it. Wheat is addictive, but once you get away from it, it loses its hold over your eating.

CMCM Rising Star
Boy, you've definitely got a lot of things that are associated with celiac disease.

If you are still eating gluten, get the test right away. But remember if it is negative, it doesn't necessarily mean you don't have a potential problem. Since you have symptoms that bother you, you want to clear them up.

You could then get a gene test....I guess you can get them various places. I got one from Enterolab, costs about $169, easy to do. That would reveal whether or not you have a celiac gene and you would then know whether or not you are predisposed to celiac disease.

Finally, be seriously gluten free and give it a month or two to see if your symptoms go away. If they do, you'd want to be gluten free so you feel good, regardless of anything else.

Remember that 40 years ago doctors thought 1 in 10,000 people had celiac disease. Now the figure is 1 in 133, but other doctors think it's more like 1 in 85. And that's just celiac disease. Some doctors think virtually everyone is gluten sensitive to one degree or another, and that probably no one should eat much, if any gluten. Our digestive systems were not designed to handle gluten, which it interprets as a poison.

You're lucky if you figure all this out at 20....I didn't until 56, although in retrospect, if I had the knowledge and info that is out there today, I could have figured it out at 20 because I had various problems all the years until now. In the end, eating wheat/gluten is not worth it. Wheat is addictive, but once you get away from it, it loses its hold over your eating.

CarlaB Enthusiast

First, I would get back on gluten and get properly tested if you want to know for sure.

I would also look into other things -- bacterial dysbiosis is one.

I had that gurgling, moving, popping sensation .... I knew I had bacterial dysbiosis and found a product called Humaworm (www.humaworm.com) that gets rid of bad bacteria, parasites, amoeba, protozoa, etc. in the intestine .... much to my shock, I had a rather large tapeworm! Since getting rid of the tapeworm, no more moving, gurgling, etc. in my stomach! Here's an article on them: Open Original Shared Link

baylees-mummy Newbie

thanks everyone you have all been a great help to me. may i ask what enterolab is and how it works? also i live in australia... do they have that test over here? to me the diagnosis really isnt as important as staying nausea free so i suppose i will stay away from gluten for now. some interesting info.... you can actually get a vanilla formula from the chemist with all the vitamins and fats etc. that you need in it and it is GLUTEN free so i am having one of those a day and eating my fruits veg and meat to hopefully gain back some of the weight i have already lost.. tastes quite good too btw. i dont feel as lost as i did before now that i have found you guys so thank you all so much. tamika xxx :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nutralady2001 Newbie

Hello Tamika there are a few of us in Australia Enterolab is USA I will pm you. Also look further down the index page at the "International Room" some of us are here

Open Original Shared Link

in an Australian/NZ thread

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,893
    • Most Online (within 30 mins)
      7,748

    Sgp
    Newest Member
    Sgp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.