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Additional Autoimmune Disease


holdthegluten

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holdthegluten Rising Star

what percentage of celiacs develop additional autoimmune disorders?


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Ann1231 Enthusiast
what percentage of celiacs develop additional autoimmune disorders?

I don't know what the percentages are but after reading on this board, I'd say it's fairly high! I have developed rheumatoid arthritis plus my hypothyroid, hypoglycemia and fibromyalgia.

Generic Apprentice

I don't know if they have a hard percentage number, but it is very common. Scientist for years have thought all the auto-immune diseases are linked to celiac plus many other things. They have even linked schizophrenia with celiac. A interesting book to read that talks about this is called Dangerous Grains, can't remember the author right now. My mom is borrowing my copy.

I personally have asthma, hypoglycemia plus fibromyalgia.

2kids4me Contributor

I dont know ther percentage , but if you read my signature...my kids and I are a statistic, see this article: Open Original Shared Link

it may be helpful.

Anyone with one autoimmune disease is more susceptible to developing another autoimmune problem.

pixiegirl Enthusiast

I'm not sure I'd buy the statistic if I saw one! There are so many undiagnosed Celiac's that I'm not sure a % of current celiac's would be representative and probably won't be until doctors are more open to making a celiac diagnosis.

I will say that from reading this list and talking to other celiac's it sure seems like a lot of us have other issues going on. I have allergies and eosinophilic gastroenteritis.

But I wish there was a lot more study on autoimmune system disorders.

Susan

wowzer Community Regular

I have asthma and thyroid. My arthritis symptoms pretty much went into remission when I went gluten free.

darlindeb25 Collaborator

Sometimes, I wonder if the problem is that so many celiac's go undiagnosed for so long, then other autoimmune diseases work their way into the process. Many times, other diseases are diagnosed before celiac disease has been found. Some say, if the celiac disease is diagnosed soon enough, then possibly the other autoimmune diseases just will not happen. Personally, I do not think they know enough yet about celiac disease to know what is what yet!

I have Raynauds and Peripheral Neuropathy, along with Celiac Disease. As of yet, the doctors haven't figured anything else out, so who knows.


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elye Community Regular

One in eight type one diabetics are also celiac. Again, I strongly suspect that the number is higher, but many diabetics have celiac without knowing it.

CMCM Rising Star

There is an association of celiac disease with various other autoimmune diseases. However, not all people with autoimmune diseases have celiac disease, but a great many with celiac disease (especially, untreated celiac disease) go on to develop other autoimmune diseases, perhaps because of the continual assault of gluten on the immune system, thus weakening it. I've read many places that one excellent reason to take even the POSSIBILITY of celiac disease seriously is to eliminate gluten and thus be in a better position to prevent another autoimmune disease from developing in the first place. Once something else crops up, such as arthritis, eliminating gluten may reduce symptoms but you are less likely to get rid of it entirely. Prevention is a much better option.

Also, there are many people with autoimmune diseases whose symptoms are greatly reduced by eliminating gluten and dairy, even though they aren't celiac and don't have the genes.

The more I read, the more evidence points to the general and widespread evils of gluten on our systems. I really believe that everyone, celiac or not, should never eat gluten. However, I doubt if it will be in any of our lifetimes that the medical community accepts this conclusion. And even if they did, I'll bet most people wouldn't give up gluten.

Respira Apprentice

Rheumatoid Arthritis and Crohn's disease here...

taweavmo3 Enthusiast

Yep....my 8 year old was diagnosed with psoriasis two years ago, but the rashes started when he was three. He tested negative for Celiac, but he's gluten/casein free anyway. The diet hasn't really helped his psoriasis. I guess like with any other auto immune disorder, once the trigger has been pulled, the damage is done. But I'm hoping the diet will at least slow his psoriasis down, or hopefully prevent some of the major complications that can arise from it.

It's a running joke that just like our family, even our immune systems are dysfunctional, lol. On my mom's side of the family, we have colitis, chrons and rheumatoid arthritis.

taweavmo3 Enthusiast

sorry, double post.

Electra Enthusiast
what percentage of celiacs develop additional autoimmune disorders?

I have Pernicious Anemia

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    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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