Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Additional Autoimmune Disease

holdthegluten

Recommended Posts

holdthegluten Rising Star
holdthegluten
Posted

what percentage of celiacs develop additional autoimmune disorders?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ann1231 Enthusiast
Ann1231
Posted
what percentage of celiacs develop additional autoimmune disorders?

I don't know what the percentages are but after reading on this board, I'd say it's fairly high! I have developed rheumatoid arthritis plus my hypothyroid, hypoglycemia and fibromyalgia.

Generic Apprentice
Generic
Posted

I don't know if they have a hard percentage number, but it is very common. Scientist for years have thought all the auto-immune diseases are linked to celiac plus many other things. They have even linked schizophrenia with celiac. A interesting book to read that talks about this is called Dangerous Grains, can't remember the author right now. My mom is borrowing my copy.

I personally have asthma, hypoglycemia plus fibromyalgia.

2kids4me Contributor
2kids4me
Posted

I dont know ther percentage , but if you read my signature...my kids and I are a statistic, see this article: Open Original Shared Link

it may be helpful.

Anyone with one autoimmune disease is more susceptible to developing another autoimmune problem.

pixiegirl Enthusiast
pixiegirl
Posted

I'm not sure I'd buy the statistic if I saw one! There are so many undiagnosed Celiac's that I'm not sure a % of current celiac's would be representative and probably won't be until doctors are more open to making a celiac diagnosis.

I will say that from reading this list and talking to other celiac's it sure seems like a lot of us have other issues going on. I have allergies and eosinophilic gastroenteritis.

But I wish there was a lot more study on autoimmune system disorders.

Susan

wowzer Community Regular
wowzer
Posted

I have asthma and thyroid. My arthritis symptoms pretty much went into remission when I went gluten free.

darlindeb25 Collaborator
darlindeb25
Posted

Sometimes, I wonder if the problem is that so many celiac's go undiagnosed for so long, then other autoimmune diseases work their way into the process. Many times, other diseases are diagnosed before celiac disease has been found. Some say, if the celiac disease is diagnosed soon enough, then possibly the other autoimmune diseases just will not happen. Personally, I do not think they know enough yet about celiac disease to know what is what yet!

I have Raynauds and Peripheral Neuropathy, along with Celiac Disease. As of yet, the doctors haven't figured anything else out, so who knows.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elye Community Regular
elye
Posted

One in eight type one diabetics are also celiac. Again, I strongly suspect that the number is higher, but many diabetics have celiac without knowing it.

CMCM Rising Star
CMCM
Posted

There is an association of celiac disease with various other autoimmune diseases. However, not all people with autoimmune diseases have celiac disease, but a great many with celiac disease (especially, untreated celiac disease) go on to develop other autoimmune diseases, perhaps because of the continual assault of gluten on the immune system, thus weakening it. I've read many places that one excellent reason to take even the POSSIBILITY of celiac disease seriously is to eliminate gluten and thus be in a better position to prevent another autoimmune disease from developing in the first place. Once something else crops up, such as arthritis, eliminating gluten may reduce symptoms but you are less likely to get rid of it entirely. Prevention is a much better option.

Also, there are many people with autoimmune diseases whose symptoms are greatly reduced by eliminating gluten and dairy, even though they aren't celiac and don't have the genes.

The more I read, the more evidence points to the general and widespread evils of gluten on our systems. I really believe that everyone, celiac or not, should never eat gluten. However, I doubt if it will be in any of our lifetimes that the medical community accepts this conclusion. And even if they did, I'll bet most people wouldn't give up gluten.

Respira Apprentice
Respira
Posted

Rheumatoid Arthritis and Crohn's disease here...

taweavmo3 Enthusiast
taweavmo3
Posted

Yep....my 8 year old was diagnosed with psoriasis two years ago, but the rashes started when he was three. He tested negative for Celiac, but he's gluten/casein free anyway. The diet hasn't really helped his psoriasis. I guess like with any other auto immune disorder, once the trigger has been pulled, the damage is done. But I'm hoping the diet will at least slow his psoriasis down, or hopefully prevent some of the major complications that can arise from it.

It's a running joke that just like our family, even our immune systems are dysfunctional, lol. On my mom's side of the family, we have colitis, chrons and rheumatoid arthritis.

taweavmo3 Enthusiast
taweavmo3
Posted

sorry, double post.

Electra Enthusiast
Electra
Posted
what percentage of celiacs develop additional autoimmune disorders?

I have Pernicious Anemia

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    2. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result. I am interested to know, is your gastroenterologist concerned? Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous...
    3. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease...
    4. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    5. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748
    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.