Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Update On My Sister


blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular

Yesterday my sister went for a colonoscopy. As most of you know she has been sick for a year. So the last month or so she has had the "C", so I actually was thinking she was dealing with IBS. She has been under a lot of stress, with the job-she works for a temp agency now at UPS. She has been at this job since July. She was a fulltime employee and a full time student, she finished school in December and is looking for a job in her field.

So in the midst of everything with her finishing school the insurance would be ending. She talked to the insurance company who is allowing her to have insurance longer. Which is a blessing.

So back to the colonoscopy. They found two polyps and they are being biposied. She has also been referred for further testing, I believe a barium X-ray. I just wanted to update you guys all.

Thanks for all your support through this time.

Amanda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

I have been wondering how she was and was going to ask u on many occassions but just kept thinking no news is good news.

I am so sorry she has to go threw this. I will keep her in my thoughts and prayers.

paula

Cheri A Contributor

((hugs)) and prayers for your sister, Amanda.

ptkds Community Regular

I am sorry to hear about this.

Just to make you feel better, I had several polyps removed from my colon several years ago (I was only 24) and everything is fine with me, except my celiac! Some of them were precancerous, though. So I have to have a repeat colonoscopy every few years. Since then, there has not been one single polyp! I just figure that the polyps were from years of undiagnosed celiac.

Colon cancer is a very slow-progressing cancer. So if it is cancer (that is a big if), they have caught it in plenty of time and she will be just fine.

Also, having colon polyps will not cause constipation or diarrhea. They still have not found the answer, and she still needs to find out what is going on.

Keep us updated!

Guhlia Rising Star

Amanda, our prayers are with your sister. My mom also had polyps and they were benign. Still, I know how scary it can be to go through that whole process with a loved one.

I know you guys aren't blood related, but has she tried just going gluten free to see if it helps? I know the labs were negative, but... You never know.

jerseyangel Proficient

Hi Amnda--

I'll continue to keep your sister in my prayers. :)

dlp252 Apprentice

Adding my prayers and {{{hugs}}}!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

Thanks Everyone :)

Darn210 Enthusiast

Amanda,

Hugs and Prayers for you and your sister. I know it's unsettling news, but thank goodness she didn't let this go and persued insurance coverage and got a colonoscopy.

Colon cancer is a very slow-progressing cancer. So if it is cancer (that is a big if), they have caught it in plenty of time and she will be just fine.

Also, having colon polyps will not cause constipation or diarrhea. They still have not found the answer, and she still needs to find out what is going on.

I couldn't agree with this more . . . stay on her to keep looking for answers!!

elye Community Regular

Oh, Amanda....didn't know about your poor sister. Hugs to you both. I'm assuming she knows about the possibility of celiac, having you as a sister. Has she been tested at all? Has she tried going gluten-free?

Ridgewalker Contributor

(((Hugs!!!))) Amanda, I'll be thinking about you guys!

Green12 Enthusiast

Oh Amanda, you and your sister are definitely in my thoughts :)

DingoGirl Enthusiast

{{{{{{{{hugs}}}}}}}}

Amanda - your sister is very young - it is highly unlikely the polyps are cancerous, although my wonderful GI told me that EVERY polyp turns into cancer, :o it takes decades, or even an entire lifetime. I had one removed (benign) in colonoscopy.

Great news about the insurance extension. :)

blueeyedmanda Community Regular
Oh, Amanda....didn't know about your poor sister. Hugs to you both. I'm assuming she knows about the possibility of celiac, having you as a sister. Has she been tested at all? Has she tried going gluten-free?

Acutally my sister has been tested and has come up negative. She has simplified her diet but no changes. Both of my sisters are adopted so there would be no genetic match on there.

She was very willing to try gluten-free but after a month with no changes she feels there is more.

Monday she is going for another test.

Judyin Philly Enthusiast

Gosh Amanda..........I've been wondering how she was

Thanks for the up date.

i'll sure keep you both in my prayers.

glad they are looking for reasons for her issues.

please keep posting.

{{{{{{{{{{{{{{{{{{{{{{{{{{{{{ HUGS }}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,078
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.