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Why Am I Not Getting Better

jasonD2

By jasonD2
in Coping with Celiac Disease

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

I was diagnosed with leaky gut and multiple food allergies and mild yeast overgrowth. I had extensive testing done back in October and have been on a very strict diet ever since. no gluten, soy, dairy, eggs and a whole list of other foods I tested positive for. Life has been very tough and im exhausted from constantly having to cook all my own food and its also putting a strain on my wallet since gluten-free foods are not cheap. I feel a touch better then I did before....my main symptoms were fatigue after meals and chronic constipation for 5 yrs. Now im having a BM pretty much every day, but I still have to strain to go cause my stools are a bit hard when they first come out. I guess im frustrated cause i am not experiencing dramatic relief, which is what i was hoping for. only supplements i take now are acacia fiber, probiotics and digestive enzyme supplements before meals which seems to at least guarantee a daily BM. i am sensitive to a lot of other supplements that i had to cut back on and am really just trying to keep it simple. Just not sure if all of this is worth it but I guess i will continue.

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scotty Explorer
scotty
Posted
I was diagnosed with leaky gut and multiple food allergies and mild yeast overgrowth. I had extensive testing done back in October and have been on a very strict diet ever since. no gluten, soy, dairy, eggs and a whole list of other foods I tested positive for. Life has been very tough and im exhausted from constantly having to cook all my own food and its also putting a strain on my wallet since gluten-free foods are not cheap. I feel a touch better then I did before....my main symptoms were fatigue after meals and chronic constipation for 5 yrs. Now im having a BM pretty much every day, but I still have to strain to go cause my stools are a bit hard when they first come out. I guess im frustrated cause i am not experiencing dramatic relief, which is what i was hoping for. only supplements i take now are acacia fiber, probiotics and digestive enzyme supplements before meals which seems to at least guarantee a daily BM. i am sensitive to a lot of other supplements that i had to cut back on and am really just trying to keep it simple. Just not sure if all of this is worth it but I guess i will continue.

what's acacia fiber?

hathor Contributor
hathor
Posted

Constipation issues seem to take much longer than 3 months to resolve. I've been reading this forum for quite a while now and I don't recall anybody, ever, reporting dramatic relief when C was the problem.

Have you tried taking magnesium? Not so much as to act like a laxative, just enough to soften your stools. (I think folks pretty much have to experiment to see how much is enough and how much is too much.)

I assume you are eating lots of fiber-rich foods?

mftnchn Explorer
mftnchn
Posted

Jason,

This does really sound difficult, especially when you don't see a lot of progress. With you having been faithful for several months, I would start to wonder if there is something else going on that is causing the multiple sensitivities.

There are several threads here of folks that have found help one way or another. Hopefully they'll post too.

Here's my suggestions: Just pop in (don't try to read it--its way too long) and post in the "OMG I think I might be on to something" thread, where there are a number of people who have not gotten better with very restrictive diets and have found other issues including infections, parasites, heavy metal toxicity, lyme disease, etc. etc. Just post your question again there and see what happens.

Also, I'd check out the lyme disease thread on this forum. Several who have now been diagnosed with lyme disease had a lot of digestive symptoms.

Hope you find some answers, and glad you keep asking here on this forum. Seems like there are such wonderful people resources here.

jasonD2 Experienced
jasonD2
Posted
  • Author

Thanks - but i dont have lyme disease or heavy metal poisioning- all of my problems originated from antibiotics and gastroenteritis and not taking proper care of myself back when everything happened. also been tested for parasites and all the other goodies.

ravenwoodglass Mentor
ravenwoodglass
Posted

Hi Jason, I have found something that seems to help me a great deal when I am dealing with C. It is sweet potatoes. I don't know why they seem to help regulate so well, I do know they are an 'ancient' oriental medicine 'cure' for C and D. If you like them try adding them to your diet, they seem to be rather soothing also.

It can take a while to heal and for your system to get used to working normally. You also mention being fatigued, you should add a good sublingual B12 and see if it helps. There are many different brands, I use country life. It may help a lot with the tiredness.

I hope you feel better soon.

sickchick Community Regular
sickchick
Posted

Jason could I recommend trying a super potent pribiotic and some psyllium daily?

Just don't take them at the same time. Take the probiotics on an empty stomach.

My two cents :)

Be well

sickchick

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confusedks Enthusiast
confusedks
Posted

This is very interesting, but I am on all kinds of meds (antibiotics) and supplements and I was getting really constipated for a while. So, I took some psyllium fiber and it actually made me WAY more constipated and feel WAY worse!

Some people say it's best to take all supplements out and slowly add them back in one at a time to see if any are making you worse without realizing it.

LoriG Contributor
LoriG
Posted

Jason,

I also know how you feel. I've been at this 5 months and have seen very little improvement. I also have symptoms of fatigue and constipation. What has helped me immensely with the constipation is a product called Natural Calm Magnesium. You mix it in a tea and can adjust the amounts.

I see a natural doctor who uses energy/biophysics to diagnose - hard to explain! I just saw him and he said I must have recently got some gluten in, which I knew based on the constipation coming back. So now I am calling every company about every product that goes in my mouth. I bought new pots etc. So maybe you might be getting a little bit in somewhere. Just a thought.

I keep hanging in there because I hope there is a light at the end of the tunnel. Take Care.

HappyMomof5 Newbie
HappyMomof5
Posted

Jason,

You should definitely check in to getting yourself a good gluten free vitamin with Magnesium, and/or get a 250 mg supplement of Mg. Magnesium is a natural muscle relaxer and will help you sleep as well as give a normal bowel movement within about 8 hours.

I take it about 30 minutes before bed and it its awesome since I have always had problems with those two issues.

It makes sense that you would be mineral deficient since your body has trouble absorbing nutrients right now. Also, 4 months seems like a long time when you're agonizing from day to day what to eat, but it really isn't that long in the whole scheme of things. I would give yourself at least a year. (I've only been gluten-free 3 weeks and would love to be where you are now! :) )

I have a Celiac friend who took 6 years to stop his IBS and diarrhea problem, and now at a restaurant even using a contaminated skillet to cook in sets him off. I think you'll heal up faster than him, though. It took him 40 years to catch his problem.

Good luck, and I hope this helps,

~Heather

hathor Contributor
hathor
Posted

Wow, I'd love it if I could take only 250 mg of magnesium and it acted in 8 hours. Unfortunately, I need much more over the course of a day and it takes longer.

Just to note that there are individual variations ...

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